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Showing results for tags 'prediagnosis'.
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Hi guys! I just joined the group. As you can tell from the title, I haven't been diagnosed yet, but I have been experiencing symptoms for over a year now. Now, after lots of research and a recent increase in symptoms I am thinking that I might have a gluten intolerance or Celiac. Last year, I gained 20 pounds in about two months. This was very surprising to me, as I exercise about 6 days a week, and I hadn't changed my diet. I wear a Garmin, so I track my calories in/out, and I generally (when dieting, as I was because I wanted to lose the 20 pounds I gained) ate around 1300-1800 calories a day while consistently burning about 2200 calories (I am aware 1300 calories is low, but I'm recovering from an eating disorder that was triggered by the weight gain, so I'm working on it.) Despite all this, the weight just wouldn't come off. In November of last year, I fractured the femoral neck from running, a thing my doctor said is very unusual for a person my age (at the time I was 22), I have also seemed to have been plagued by breaking limbs every few years since my childhood. I also began to experience what I now think is bloating. I have also ever since I was a baby had severe constipation. Recently, I have had more mucus in my stool then I have ever seen before. On top of that, I have always have had a very hard tome falling and staying asleep. As I was researching Celiac, I realized that many of my symptoms matched with the intolerance. I am scheduled for an appointment with a gastroenterologist next week, but I am hoping to get some ideas for questions I should be asking, tests I should ask about getting, really anything you wish you had asked when first getting diagnosed. I also wanted to hear about your pre-diagnosis stories, especially concerning weight gain pre diagnosis, and if it came off once you started cutting out gluten. Thanks so so so much for taking the time to read my story! --A newbie to the Celiac community
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I took the test in Spain. I am American so unfortunately the test results are in Spanish. I think most of the words are similar to their English counterparts but I could not say for sure. Celiac Panel: anti Gliadina deaminada IgA suero- 38 -----> normal range 0.00 - 7.00 UI/ml anti Endomisio IgA suero - positive anti Endomisio IgG suero- negative anti Gliadina deaminada IgG suero - 98-------> normal range 0.00 - 7.00 UI/ml And then probably related but my IgE levels are 682.5 ---------> normal range (Inf. 120) KU/I I took this panel without the slightest clue I might have celiac disease so I ate tons of gluten filled foods months prior. So in that sense, its accurate as it will ever be. I have yet to speak to my digestive doctor regarding my results, however, my general physician is convinced it's highly likely I do. Any feedback to calm my nerves is appreciated. Sorry it's in Spanish!
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Hello everyone, I’ve been on and off gluten free diet for about a year now because of my digestive issues (all of the nasties). I had some basic blood work done and it turns out I have some abnormalities; high bilirubin, high MCV, high MCH, a very high count of leukocytes and eosinophils. Doc suggested a b12 deficiency anaemia. No bacteria or parasites. The thing is all I eat is fruit, vegetables, meat and some grains, mostly gluten free like oats, so plenty of b12 from food. I also have ringing and whistles in my ears. I used to swim 8km a day and now I can barely swim 1km! I’m starting to think this is celiac and that’s why I’m not absorbing nutrients. Has anyone had similar symptoms/results? I definitely feel better on a low gluten diet and my symptoms almost disappeared when I tried paleo diet for 4 months last year. Now I’m on low gluten and I’m considering going paleo again but I’ve seen people saying here that this can mess up the results of a blood test and I want to get tested. I’m wondering whether eating gluten for 2-4 weeks is enough to get a valid result? Thank you
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Hey there everyone! So I finally have my diagnosis TOMORROW! I’m 22 years old and feel like I’ve been dealing with this for 4 years now, but within the last year everything has got progressively worse. I guess I should’ve asked some of these questions months ago. But hey here we are... Anyway, I had the Endoscopy and Colonoscopy done about two weeks ago, with stool samples, and biopsies. My question is: Has anyone who is diagnosed, experience these specific symptoms. when I wake up I feel as if I’m hypoglycemic, my body is tingly, cold sweats (no matter how I dress myself when going to sleep) and then the urgency to go release a bowel movement (usually extremely oily, Diarrhea, or thin stringy) Also I feel as if my joints and bones are popping out of place a lot more frequently and a lot more painfully then they ever had ( this was a hard one to pin point because I use to dance competitively and so my joints naturally crack and pop in and out of place) I have ALLLL of the other symptoms that all lead to Celiacs, but I truly just want to know if anyone else had the same morning routine/experience. (if anyone is wondering my back story, I’ve always been a fit young girl, never had health problems, ate pretty good, except for the occasional gatherings, and parties. I recently got diagnosed with Endometriosis last November as that was something else I had suspected I had FOR YEARS. I’m glad I finally went to the Gastroenterologist but geez this celiacs seems like no freakin joke, if it ends up being the answer)
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Hi everyone, Can you shed some light? Suddenly finding ourselves with celiac disease at the top of mind, and I am not sure how to interpret lab results. My daughter was diagnosed with type 1 diabetes when she was 3. Now 10 (almost 11), she (and our whole family), just recovered from a nasty flu. She was sick on a Saturday, and had her normal blood tests done on a Monday. With type 1 (and other autoimmune diseases), I they regularly test for signs of other autoimmune diseases. She has a panel done every 6 months, with until now, no irregularities. Her pediatrician called me after receiving her latest panel, and told me that her iga ttg was 165. She warned us to not jump the gun. But I am having a hard time trying to find info online what this number means. Can anyone explain this further? What is the range? Is it time to brace ourselves for something likely, or does this indicate something “iffy”, or is it a matter of opinion? Are false positives more common with type 1? This community seems SO helpful and knowledgeable, I’m hoping some of you can help this worried mama out with more info.
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Hi, hoping for advice. I am a woman early 50's who is generally healthy and active. However, I have had 25 years of various health problems most of which have not had a satisfactory diagnosis. I am lactose intolerant (that one was easy).Chronic microcytic anemia that does not respond to iron therapy (including two intravenous iron therapies) , but not thalassemia trait, and normal numbers of red cells. A bleeding disorder (prolonged clotting time and excessive menstrual bleeding). Food allergies-shellfish, bananas, undercooked fish. Joint pain especially in the hips and lower back in the last ten years. Periods of anxiety/depression (now on Wellbutrin) and fatigue that come and go. Gastroesophogeal reflux treated with pantoprazole. Very low blood pressure (have to be careful standing up). My brother had Chrohns disease and died of a cancer of the small intestine at age 48. His son-my nephew-also has Chrohns. My other brother has psoriatic arthritis and our father had juvenile diabetes and rheumatoid arthritis. My 23andme results show heterozygous for HLADQ2.2 (I think I got that right...). I am normal weight. No skin symptoms. Have had two bouts of unexplained pancreatitis that resolved by themselves. Have had digestive problems off and on through life-mostly urgent needs to defecate especially right after breakfast that makes me late for work because I can't leave home until I've gone, but only rarely diarrhea. SOme days have 6-8 bowel movements with mucus but other days are fine. Definitely tend towards being gassy but usually blamed this on having milk that I wasn't aware of. I had a negative anti-transglutaminase test about 15 years ago but have not had other tests or biopsies, except had a normal colonoscopy after my brother died 6 years ago. My doctor has all this info but because of the negative anti-tGA says it can't be celiac. Should I just try a gluten free diet, and if I do would the anemia and reflux maybe clear up, and how long would it take? Thanks for any advice and sorry for the long post...
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