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I'm 16. I was diagnosed with Celiac when I was 3 years old, they used a scope. I had been having a lot of pain, and after taking on the gluten free diet, I felt better and grew better. I know it may be risky, but I've been eating gluten for about 2 years now without any Celiac symptoms. I still follow my gluten-free diet most of the time, but when I don't I feel fine, and my stomach does not hurt afterwards. I am, however, often very tired/fatigued, but I don't know if that relates to my diet or not. I would like to see if anyone knows anything about Celiac going away? I've never heard of it before, but I just don't see why I wouldn't be feeling this way if it's not gone. Thanks!

I am really struggling watching my child not recover with the gluten-free diet, and would appreciate any input or advice. My 10 year old son had a sudden onset of symptoms with what we think might have been a GI virus (although he had had frequent illnesses the 6 months prior, which might have been because of Celiac). He woke up one morning with nausea, vomiting, dizziness, and pain in the lower right quadrant of his abdomen (right where his appendix is). It took 5 weeks to get a diagnosis via scope (his TTG IGA was only 5, measured twice, with 1-3 being normal and 4-10 being a faint positive). He was put on laxatives during this time and diagnosed with gastroparesis. He is now on Reglan, and off laxatives, and is having normal consistency stools once a day. The vomiting has stopped, I think because the Reglan is moving food through him. We almost at week 6 gluten-free- and I feel like we are being really strict and careful with it. About 4 weeks into the gluten-free diet he had lost more weight, so they sent him to the hospital for tube feeding (beyond the stomach). We are now home, and supplementing his diet with the Kate Farms tube feeding formula 2 times a day (no tube, just drinking it). It is a pea protein/ rice peptide drink that is supposed to be good for celiacs. His dizziness, fatigue, nausea, and abdominal pain are the same as before he was diagnosed. We do not have good GI support here, I am trying to get a GI consult from a pediatric celiac center in our state. His PCP is great, but not an expert on celiac. I had her test for some of the common vitamin deficiencies (B12, B6, Iron w/Ferritin,Copper, E, D 25 hydroxy, A, Phosphorus, Zinc, Folate, Magnesium, and later B1). He was only low on Copper, but was close to the low threshold on D. I had already started him on a B complex and D vitamins. His B6 was high (168, high threshold of 68). Could the supplements I was giving him before the testing have created a falsely high reading on B vitamins and D? Anything else I should have checked? I’ve read about Choline on here, maybe test for that? We have worked with a naturopath as well, he is taking glutamine, probiotics, and vitamin D. We tried giving him copper supplements, but they made him vomit and so nauseous he couldn’t eat for 12 hours. His stool is light in color, but does not appear “greasy” or extra smelly. He has also had trouble with dizziness and reading since this started (he went to an opthamologist and she said his eyes are fine). After our last stint at the hospital, I reduced his diet to rice, meat, vegetables, light dairy, fruit- no nightshades, nuts, seeds, or other grains. We did that for 10 days with no change in symptoms. He had his dissacharides tested, and lactase was in the normal range, which means he can have some dairy, right? He really wants to add back in tofu, beans, gluten-free bread products. I don’t want to restrict his diet for no reason, what should I do? We’ve been keeping a food diary and are not seeing any correlation between certain foods and symptoms. His symptoms have been stable throughout the entire sickness- a 3 out of 10 pain in the abdomen, right where his appendix is (made worse by eating or movement), nausea, dizziness, fatigue. Any suggestions on diet? Enzymes? We are going to do a GI Map type of test soon through the naturopath. He did have amoxicillin for the first time 3 weeks before the sudden onset of symptoms. He has had a brain MRI, CT scan, ultrasound to visualize appendix, barium contrast xray of small intestine, gastric emptying study (he was 2-3 times normal, before Reglan), colonoscopy and endoscopy, genetic test (he has one of the genes), and many other blood/urine tests. He’s been tested for thyroid, has normal glucose, normal ANA and RA tests.

Hello, I’ve been on my celiac diagnose journey for a year now, which has been difficult without insurance. About 6 years ago I started getting really sick out of no where other than the stomach problems I’ve had since I was young. I ended up getting staph infections and cellulitis twice. Each time a nurse would tell me to get checked for HIV. I have been check for HIV multiple times and it always comes back negative, I’m also an avid blood donor but haven’t been able to go due to being sick all the time. About a year ago I ran across a friend who was diagnosed with cealic and we compared our symptoms and it sounded to me that I should be checked for the condition. I was supposed to get a skin biopsy for my leg where I had a suspicious rash I’ve had since I was teenager and was told it was varicose veins without any testing. But I didn’t have insurance and decided against pushing for help for the time being. Everytime I go to the doctors im told I just have depression, but I’ve had depression my whole life mixed with aniexty. This is somthing more. Everytime I eat gluten I have severe diarrhea, and feel groggy. I get irritated and angry with the people I love. My rash gets worse. So I decided to go online and order my own IGA Antibody test a year ago just for the heck of it and it came back positive. When I explain this to medical professionals they write me off and treat me like I’m lying and bring up HIV again. Even tho I’m constantly testing. It has caused a fear of HIV in me to where I think I have it even though I do not. Has anyone else experienced something similar? I understand other things can cause a false positive for the IGA gluten antibody test, but I can’t even get someone to listen to me for a second. I have a hard time talking to doctors and nurses now because I just see them as judgmental and have had nurses say some out of place things to me. I’m a very shy person and have a hard time advocating for my health because I feel I just shut down after being told it’s just my period or depression.

I've been spending days look for a certified gluten free salt brand whilst eating bland food. I've heard mixed responses on McCormicks and Mortons, I've started looking at gourmet salts even. Most are labeled gluten free but have other products that contain gluten. Is there any certified gluten free salt?

Hi, apologies in advance if this has been asked before: I went out for sushi with my wife on Saturday, and I accidentally dipped one piece into the soy sauce and ate it, due to old habits. As well, I put a piece of cake in my mouth thinking it was egg omelet. I spit it out (my wife was horrified) but I think I did ingest some of it. On Sunday morning I felt pretty rough and thought it might be because I stayed up a couple of hours past my normal bed time. We went out shopping in the morning, and then came home for lunch. After lunch I felt pretty crappy and took a 1 hour crash nap. Sunday night I got a good solid sleep, and on Monday I felt pretty good. First day in months I didn't need a nap. (I have a fatigue issue that I haven't figured out yet.) Then on Tuesday (today) I again felt pretty crappy. I struggled through work and needed another 1 hour crash nap. And more naps after that. I also had a pretty loose BM, which is something that has become a lot more rare since cutting out all gluten. My question is, can the effects of a glutening be variable over time, with good days and bad days? Or did I somehow get glutened a second time yesterday? Or maybe it's something else altogether, I might have reactivated EBV, and I might have ME/CFS too. I haven't been diagnosed as celiac, but I'm definitely sensitive to gluten. (I'm going to do the gene tests first before trying a gluten challenge in a couple of months. Not looking forward to eating gluten every day.) TIA, Marcel

Hello. I was diagnosed celiac via bloodtest in November of 2020, and just got my "official diagnosis" today, as the hospital confirmed I have celiac after going through a gastroscopy December of 2020. I started having symptoms in June 2020, but it took me a few months and a couple of visits to the doctor to figure out why I was feeling so bad. Because of that, I've only been off gluten for about 4 weeks now, after my gastroscopy. My question is, is it normal to feel nauseous and have little to no appetite most of the time? I've already lost a lot of weight without doing anything, and I can't deny I am quite scared. I'm only able to eat very little without feeling really nauseous. I currently am eating nuts, some fruit (both fresh and dried), gluten-free oatmeal and gluten-free crackers, in various small portions throughout the day. I also get incredibly nauseous if I talk for 45 minutes to an hour, and I'm not sure if this is normal. I miss being able to talk to my friends and my family, but as I am right now I can't without feeling awful. I hope this post isn't too messy, it's my first time writing here, though I've looked through the forums as best I can for some answers beforehand. Thank you very much for reading.

Are all prepackaged vegetables safe? I have a package of skinned and peeled baby carrots which are Whole Foods brand 365. Are these safe from cross contamination?

I was wondering I anyone knows whether or not George’s 100% Aloe Vera oil is celiac safe? I got it from natural grocers. Also, does anyone have any recommendations for celiac friendly salt I can buy?

My daughter is 18 and all the sudden she started having stomach issues. It's been going on for 2 years now and almost every time she eats, she gets bloated, nauseous, and has stomach pains, even with things like plain tuna, or salad. Since tuna doesn't have gluten would celiac cause pain with eating tuna or other gluten free foods?

Hello, everyone. So, I have a question. I love animals, and i'm already dealing with 2 fish tanks and a gecko that all eat food containing gluten. I decided I want another pet. A hamster to be exact. The only problem is, as you may know, hamsters diets are entirely gluten filled. Does anyone own a hamster here? I had a hamster once but I did not deal with the food, or anything relating with the hamster, except buying things for it, when I was in 5th grade. I was recently diagnosed with Celiac (On the 24th of Christmas- yeah, great present, right?) so i'm not sure if I can have a hamster. Its going to be in my room this time so I'm a little worried. Thank you! ?