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Hey Everyone! I’m pretty stressed and anxious about my healing and praying those of you more experienced might be able to help. A quick back story, I had my 2nd baby the end of Feb and became horribly ill at 6 weeks postpartum. Started with terrible abdominal pain every time I ate and slowly turned into numbness & tingling on the left side of my body. Also had all the typical GI symptoms, brain fog, exhaustion etc. After dozens of doctors appointments and being hospitalized I was finally diagnosed with Celiac on 6/4 by blood test and symptoms. Around the same time I started having scary allergic reactions to all the foods I was eating daily without issues. Some caused instant stomach pain, others made my face numb and throat swell, some made my neuropathy worse. The tests my GI ran showed food sensitivities to Soy, corn, wheat, shellfish, peanuts, treenuts, sesame & eggs however the allergy tests ran by my allergist showed zero food allergies (except celiac). I am 100% gluten free including my whole house, I don’t eat out and am following a strict AIP diet to try and heal my leaky gut per my Functional docs recommendation. I also don’t take any medication or vitamins as I was reacting to everything. I started to see some improvements the first few weeks of my diet however the past 2 weeks I’ve been having horrible allergy like symptoms to almost everything. I had one sip of gluten-free green tea for the first time and my face felt like it was on fire, I had this intense pressure in my face and it went tingly numb for hours. This has been happening daily. I feel like I can’t even think or see straight, I have occasional ringing in my ears, my GI symptoms are slowly regressing and my neuropathy has gotten worse again. I’m living off organic grass fed meat, poultry, steamed veggies (minus nightshades) and minimal fruit. I also get weekly B vitamin shots and biweekly multivitamin bags. I’m wondering if this could be a histamine issue? I have been eating tons of avocados, lemons and limes, maybe I just built up too many histamines or don’t have the enzymes to break them down properly? Anyone else have experience like this? I feel like I’m losing my mind and literally have almost no food I can eat. Plus I’m nursing so I’m starving all the time. Feeling so discouraged and scared of food :( Thanks for reading if you made it this far!

Hi. I’ve had endoscopy and colonoscopy to find put a cause of the occult blood in my stool and iron deficiency . After biopsy I was told it’s a mild atrophy of my duodenum and it’s celiac disease. Had my antibody test which turned out normal and genetic panel was positive with Hla q8 and celiac variants. My symptoms mainly is my hand tingling and headache. I have occasional diarrhoea ,sometimes cramps in my Tommy and dull pain in the right side of my abdomen under the ribs. I’m very concerned what if it’s no lt celiac and something more serious l. My doctor said that pathologist check for all other disease that can cause villi damage so it’s not them,but there is also something like HIV enteropathy option that can cause villi damage. Even though my life style is so far from HIV infection because I’m very hypochondriac person and since I remember myself I was always do my check ups every 6 months. I did have csection 4 years ago and dentist appointment last year. So freaked out what if it’s hiv because celiac antibodies were normal. My gastro said that generic panel and biopsy results consistent with celiac disease.have dietitian appointment os Wednesday . I really don’t kno what to think . Just anxious and depressed all the time . Does anyone else have similar diagnose…

Really hoping that someone will be able to help with the situation I’m currently facing. It’s a bit confusing (which seems to be the case with Celiac generally producing lots of strange side effects!) Okay, so I first received a positive celiac blood test via the GP in early 2018 after experiencing a few months of diarrhoea. It was triggered by a stomach virus in work that everyone seemed to get, but mine never quite went away. That’s when I headed to the doctor and got this positive celiac result, completely out of the blue! I have no celiac sufferers or other autoimmune diseases in the family (that we know of), so I couldn’t really understand how this had happened. I then got advice from the doctor to go completely gluten free immediately and she referred me for an endoscopy to confirm diagnosis (no mention of the fact that you need to be eating gluten to get a positive). So surprise surprise I got a negative endoscopy, and the gastro was absolutely certain that I wasn’t celiac for this reason. Despite this, I’d noticed that all of my diarrhoea and gastro symptoms disappeared pretty much immediately after stopping eating gluten. Based on this, I continued to cut gluten out. Also, I understand that a positive blood test alone is pretty much a sure diagnosis of celiac right? Anyway, onto this pesky tingling. A few months after my initial blood test diagnosis I noticed I was getting some very low level tingling in my lower legs. Very low level, easy to miss. I mentioned this to the gastro and he just suggested it could be some nutrient deficiencies still causing issues after the few months of diarrhoea. I stuck to a gluten free diet (with the occasional accidental slip up), hoping that the tingling would go away, but it’s still very much here and I’d say it’s slightly worse. It’s really hard to describe. It’s almost as if my lower legs are buzzing/vibrating. My skin feels really sensitive, so if I brush something against it I get a wave of tingles/shivers. It’s almost that skin sensitivity feeling you get if you have a fever (but I don’t have a fever). Does anyone have this? I was referred to a neurologist to check that there was nothing else going on. They did an MRI and a nerve conduction test, both came back absolutely fine. I also have no weakness/numbness etc. It’s just a sensation. But I don’t know what’s causing it and if it will ever go away. Would love to know if anyone has these sensory issues and how you improved them? I take multivitamins, magnesium and B12 with no change. Could I secretly be ingesting low levels of gluten which continue to cause problems, or could I have other food intolerances which cause systemic inflation. I’ve not yet cut out any food groups. Really hoping someone will be able to shed some light on this.