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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Coffee
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15 posts in this topic

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nvsmom    332

:(

I had that flu that's been going around. It caused me (I think) to feel like I had motion sickness for a few weeks and the my stomach was a bit off for a week or so. Now I have been getting stomach pain in the mornings that feel just like I was glutened and I think I've traced it back to a ground coffee we use (President's Choice from Superstore). I seem to be okay with instant coffee. My problem is that I'm not sure if this is still the flu messing with me, or a new sensitivity, or I am somehow being glutened with my morning coffee (I REALLY doubt that's it)

Coffee has always been a bit hard on my gut but that was part of the reaon I liked it. Due to celiac and hypothyroidism, my gut was, ahem, "slow" so coffee was a way to get it going in the morning. I am still "slower" than average so coffee remains a help.

Anyone else have a problem with brewed coffee? If so, please tell me it passed! LOL I doubt gluten got in the coffee unless they grind it at the same place they do flours or oats... pretty unlikely. I'm hoping this is because of the flu I had, or the coffee we use has changed, and not a new permanent problem....

I'm trying to cut down on my coffee intake... maybe this is the fates' way of hurrying me along! LOL :rolleyes:

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nvsmom    332

... I was just thinking that I probably should have posted this somewhere else... This is my brain on less coffee! EEK. LOL :rolleyes:

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cahill    189

I actuality quit drinking coffee and tea about a month before my elimination diet :ph34r: super scary I know :wacko: . It took me that whole month to get over the headaches . I wanted my head / body clear of the coffee before I started my elimination diet.I did not drink coffee AT ALL during my elimination diet :o That was a very very long 6 months with out any coffee or tea.

I have since added it back :D,,, I :wub: me a good cup of coffee.

Coffee ( as with all things) is an individual thing, if you think it is bothering you, stop drinking it . Then give your self some time to heal before you try reintroducing it .

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sharese28    0

I have had bad reactions to coffee since going gluten free is there a chance i can reintroduce it into my diet at a later time

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shadowicewolf    166

Coffee acts as a laxative sort to speak. It can also be very hard on a healing gut. There is a chance that it can be reintroduced, but i wouldn't bet on it too much.

 

I quit tea and soda right after my dx and i haven't looked back since.

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IrishHeart    1,634

I lost  coffee and dairy, citrus, soy and about 10 other foods for a few years before and a whole year after DX because the caffeine really agitated me and my GI tract was a burning mess from mouth to rectum.  I had GERD, IBS, etc. etc..and felt like death would be kinder.

 

Anything can give you grief when your gut is still damaged.

 

Now, I drink brewed decaf coffee with half and half every morning and orange juice with no problems whatsoever.

 

Never say never. ;) Things can change.

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cahill    189

I have had to give up sooooooooooooo very many foods that some one ,some where must have decided I would break  :ph34r:  if I lost coffee permanently.

 

Coffee , dairy and eggs are 3  foods I have been able to add back ( can I get a hellaluya !! :D )

 

 

I :wub: a good cup of coffee :D

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JNBunnie1    164

I've had to pass on the coffee for a few months now, in order to prevent cold sore outbreaks.

It doesn't bother my stomach at all anymore, though it used to. In fact, coffee in the AM is less

upsetting than tea, to my actual stomach, sometimes tea makes me a little nauseous. I can't

even begin to tell you how INCREDIBLY frustrating it is to not have coffee, cuz I lurves it

sooooooooooo much. But, we do what we gotta do!

 

To the OP, coffee did used to give my lower GI tract a hard time. Over the past two years, I've

been able to enjoy it with no GI distress whatsoever. If you do lose coffee for now, don't lose

hope!

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nvsmom    332

I think (or should I say hope - lol) that it was something else. I was eating some chocolates that were not made on a gluten-free line. They had barley malt cc. It was enough to give me stomach upset, bloating, and a general feeling of unwellness but because I did not get my old gluten stomach pain, it took equity a while to figure it out... That is why one should not savour chocolates over a few weeks but should eat it all at once.... After checking the labels better! Lol

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EmiPark210    5

Are you sure it's just the coffee or caffeine in the coffee?

I've been totally caffeine free since 2010 and it helped with a lot of my IBS symptoms (colon spasms), but it's also gotten to the point where "decaffeinated" drinks can set me off because of the traces of caffeine. 

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kittty    22

Coffee has bothered my stomach before and after going gluten free. It's not the caffeine (other sources of caffeine are fine), but other substances in the coffee. It's definately become worse as I get older.

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nvsmom    332

It is coffee that rumbles my belly. Tea and colas don't do it to me.  I'm fine with that though; my morning coffee gets my gut going better than fibre supplements ever could.  LOL 

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jamer    1

Hmmm...I was extremely lactose intolerant as a baby/toddler but seemed to have out grown it. Until several maybe even ten years ago. I can eat egss and things baked with dairy, no probem. If I have more than one glass of 2% milk or ice cream...I'm get the runs. :unsure: The lower the milk fat, the easier I can tolerate it...I do even better on organic milk. I was recently pregnant ( had a miscarriage last week) and noticed as I did with my first two pregnancies...I can handle milk and ice cream like it's no one's business. I was drinking almost a gallon a day and gluten free chex was my go to food. Wonder what that is all about. 

 

I can also drink coffee, although keeing that to a minimun, acidic foods haven't been a problem since going gluten-free. My GI doc thinks we just caught the celiac disease in its beginng stages. I havent' had symptoms for more than a year, two at most. I have an excellent primary doc who automatically ran a blood test when I came in complaining of severe relux, nausea, and fatigue. He's a godsend

 

Sorry for getting off topic. I'm just kinda curious how some with celiac disease can handle dairy, soy , citrus...etc and some can't. Does it have something to do with how long the celiac disease has been untreated or undiagnosed?

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nvsmom    332

Sorry for getting off topic. I'm just kinda curious how some with celiac disease can handle dairy, soy , citrus...etc and some can't. Does it have something to do with how long the celiac disease has been untreated or undiagnosed?

 

I know I'm lactose intolerant and have been for at least 10 years. I would still eat dairy like  icecream and cottage cheese, and I would just ignore the stomach aches because I had them so often anyways.  LOL   :rolleyes: I honestly don't know how long dairy has bothered me; I wasn't too observant about my diet in the past. It could be since childhood (I'm sure I've had celiac since then).

 

Everyone responds so differently with this disease. For example, I did not have a single nutrient deficiency and my B12 actually exceeded the normal range... There almost seems to be no normal. :huh:

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