• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Tsh Is 2.6 And My Doc Says It's Normal
0

12 posts in this topic

I had my TSH tested recently. Came out to 2.6 and I keep reading that it should be close to 1. I pointed this out to my GI doc, that new studies say anything over 2 is hypothyroid. He repeated that it's normal and said our lab uses 4 or more as the standard.

I know very little about thyroid stuff so didn't feel I could argue with him.

What I want to know is, if I am slightly hypothyroid, what is the treatment? Can I deal with it through diet? Do I really need to take synthetic thyroid, or can I just live with it? What symptoms should I watch for?

Sorry for so many questions, this is new to me!

PS. No, he didn't order any other thyroid-related tests, just TSH. Insurance reasons, I guess.

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Sigh. They always seem to do this. The equivalent of checking one tire on your car to see if they are all inflated. You should get a full panel of thyroid tests, including the antibodies, not just the hormone levels. Any doctor can do this, and it should be done because celiac auto immune disease and thyroid problems are known co- conditions. Then stick to the gluten free diet, if it still comes out "normal," and see if some of your symptoms resolve. I have read somewhere by a doctor- author that deals with a lot of this, that almost all celiacs are slightly under, or hypo, and then some of them go on to develop actual measurable thyroid disease.

If you have auto immune thyroid disease, you can have normal levels of thyroid hormone, on one or more of the different tests, as the swings back and forth, or up and down, will put your ranges technically within "normal" even if you are having the thyroid attacked by your own body, because it tries to compensate and pumps out more hormone.

Also, if you do take replacement hormone, be aware that some brands are no longer gluten free, the ultimate level of Catch-22 brought to you by Big Pharma. :angry:

0

Share this post


Link to post
Share on other sites

I had my TSH tested recently. Came out to 2.6 and I keep reading that it should be close to 1. I pointed this out to my GI doc, that new studies say anything over 2 is hypothyroid. He repeated that it's normal and said our lab uses 4 or more as the standard.

I know very little about thyroid stuff so didn't feel I could argue with him.

What I want to know is, if I am slightly hypothyroid, what is the treatment? Can I deal with it through diet? Do I really need to take synthetic thyroid, or can I just live with it? What symptoms should I watch for?

Sorry for so many questions, this is new to me!

PS. No, he didn't order any other thyroid-related tests, just TSH. Insurance reasons, I guess.

TSH is the first-line test they use to see if anything is out of whack with your thyroid. What they should be doing is TSH, Free T3 and Free T4. TSH is a measure of the pituitary hormone that gets secreted for the purpose of telling the thyroid gland to make thyroid hormone. As Takala said, your hormones can swing around quite a bit if you have autoimmune thyroid. Your TSH can swing around a good bit even if you DON'T have autoimmune thyroid.

You have a TSH number that would concern me though not alarm me (not a medical professional, just an experienced thyroid patient!).

If this doc won't test your thyroid hormones, find one who will. There are also places online you can order your own labs if you really want to get that info and can't get a doc on board, and they use the same laboratories your doc would use (such as LabCorp) so your doc can't say they are suspect.

0

Share this post


Link to post
Share on other sites

TSH can vary pretty widely over a few days. Mine can change by 2.0 in only a couple of weeks. Because of that, and the doctors love of the TSH test, my hypothyroidism was ignored for well over a decade. I remember getting a TSH test done 11 years ago because I'd been taking my basal body temp (trying to get pg) and it would not go above 97F; my TSH was right around where yours was and since our lab range is 0.2-6.0 I was deemed perfectly normal. Grrr. I was uneducated about thyroid health at the time and didn't know to push for more tests.

See if you can get those other tests done... Your TSH is a bit high. I wouldn't be surprised if you are hypo.

Good luck!!

0

Share this post


Link to post
Share on other sites

The high end of the range for TSH was recently changed to 5!! yes 5!!! You can order thyroid tests from www.canaryclub.org or as someone mention, find another doctor!

0

Share this post


Link to post
Share on other sites
Ads by Google:


Thanks for all the enlightening tips!

 

My GI is very good on the gut stuff (so far) so I want to keep him for that... but for this issue, I think I will seek another specialist or do the home tests or both. Maybe the home temperature test once this #@!! cold is gone...

 

I never really considered this problem because even though I usually have a low temp and am always cold, I am in no way constipated (the opposite) and not fatigued....

0

Share this post


Link to post
Share on other sites

I have to add a different perspective here which illustrates Takala's example of a thyroid problem that resolves off gluten.  .

 

Before my celiac DX, my TSH was 5.3 and I was put on thyroid medication.(i had many symptoms that shouted HYPO)

It swung to 0.1 and I was hyperthyroid.

 

This created all sorts of symptoms for 2 years and made me jittery, sleepless and gave me hair loss

 

I saw another doctor who agreed with me that I did not need meds. Because I did not even have thyroid antibodies, I was being dosed with drugs I did not need and after DX and  off gluten,  my TSH , free T4 and T3 are all perfectly normal.

I have no symptoms of Hashi's (as they said I did) and the TSH is almost always between 1.8 and 2.6

These swings are not cause for alarm..

 

My temp has always been 96.5-97.5 

This is not always an indicator of thyroid disease.

 

I was always cold, even wearing a sweat suit in summer when I was quite ill before DX. That all resolved.

 

I believe the range is up to 3.0. Higher than that may require thyroid medication, but it depends on your symptoms and as Takala said, the antibodies test.

 

Yes, see an endocrinologist if you are concerned, but I am guessing she will say you're in optimum range.

 

Many members of my family (including my sister and mother) are hyper or hypo, had goiters, thyroidectomies and even thyroid cancer. Most are on meds. (and they are not gluten-free and refuse to be tested). but my thyroid seems to function perfectly now on its own.

0

Share this post


Link to post
Share on other sites

Irish, that is very encouraging... I really don't want to go on medication, so maybe I should stop worrying and just stay the gluten-free course lol....

0

Share this post


Link to post
Share on other sites

This was just my experience of course, but unless you are experiencing hypo symptoms, IMHO, there's no point in worrying about it.

If you are concerned, see an endocrinologist. Ask for the antibodies test. Best wishes, hon! :)

0

Share this post


Link to post
Share on other sites

The thing to remember is that IH doesn't have tpo antibodies (Hashimotos). You don't yet know if you do. There's a difference between the two.

Hashis will probably need treatment. Non AI thyroid issues can resolve. Hashis doesn't go away...it can be controlled. It doesn't go away.

So, first, find out if you have thyroid antibodies.

I understand you don't want meds, but if you do have a Hashis you probably will need them to feel better.

All that said, you could very well not have any thyroid issues. Could be something else.

0

Share this post


Link to post
Share on other sites

Oh okay... well, once I get my colonoscopy/endoscopy out of the way (I keep picturing a chicken on a spit! :P ), I'll look into the antibodies questions.

 

I learn so much around here!!!

0

Share this post


Link to post
Share on other sites

Oh okay... well, once I get my colonoscopy/endoscopy out of the way (I keep picturing a chicken on a spit! :P ), I'll look into the antibodies questions.

 

I learn so much around here!!!

 

Hope you get sorted out in short order!

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,421
    • Total Posts
      930,464
  • Member Statistics

    • Total Members
      63,847
    • Most Online
      3,093

    Newest Member
    maclu5757
    Joined
  • Popular Now

  • Topics

  • Posts

    • That's what I thought!  My father has gluten sensitivity and I almost regret telling the doctor that because I feel that made her jump to conclusions because of that.  He never had the biopsy either.  I feel like doctors think it's just easier to say it's celiac when they show a gluten sensitivity to avoid additional testing, even if that diagnosis doesn't make any sense at all.  My doctor didn't even offer the biopsy, and said the blood work was enough.  Should I seek a third opinion?  I mean, I've been gluten free for 9 months...
    • It will prolong your life....celiac is a autoimmune disease that  causes your own immune system to attack you. The longer your eating gluten the worse it gets, I mean all kinds of other autoimmune disease, food allergies, food intolances. One day you could lose the ablity to eat carbs, or sugars, or become randomly allergic to tomatoes or corn all cause you decided not to be on road to healing I am not kidding here. I am allergic to corn, can not process meats, have another autoimmune disease that makes it so I can not eat dairy or CARBS/SUGARS.   I wish I could go back in time and go on a gluten-free diet a decade ago. Worse that could happen you could develop cancer or other complications and yes we have had this happen to a member before on our forums. Think of it like this your just changing brand here I will give you some links to some gluten-free foods, and how to order them, You can even order alot of them online this should help simplify it for you. I suggest thrive, amazon, or one of hte other links from there, Many you can order from the manufacture. https://www.celiac.com/gluten-free/topic/117090-gluten-free-food-alternatives-list/  
    • I know this is not funny for you guys, but I had to laugh about how all of those family members simply ignored your well meant advice. That is definitely head in the sand syndrome. I have tried for a long time to find the connection between autoimmune diseases and my health. With this celiac diagnosis I have finally found it. All of the puzzle pieces are in place for sure and it is going to be my mission to do the best possible in order to get healthy again.   What a sneaky disease this is and to think that none of my family members never were diagnosed, despite the fact that both have been in doctor's care all of their lives. It really goes to show that most medical doctors simply seem to completely disconnect nutrition with health.   I am scared to give that advice to people when I see them suffering from specific diseases. But there are people that I would like to help if I can. Scared to make those suggestions, because so many times negative reactions follow and all I meant to do was to help that person.
    • There are definitely things you can do to make it easier on yourself. But all of my ideas seem to cost money and involve cooking. But I'll give it a shot anyway in case you haven't already thought of it. I would buy a small chest freezer and put gluten-free foods in it. Canyon bakehouse sells their fantastic bread and bagels right on their website. You can just buy a case of it. Then if you ever get in the mood for a sandwich or bagel the bread's right there frozen in your chest freezer. If you get invited to somebody's house for dinner find out what their cooking and make your own similar version of it. So for Easter I would make ham, potatoes and broccoli and bring that with me. So when everybody else is eating a fantastic Easter dinner I'm also eating a fantastic Easter dinner. I have other food issues and before celiac I was invited to a friend's wedding. I wasn't going to be able to eat the food they were serving so I made similar food at home. They were serving lamb, ham, vegetables, potatoes. So I brought ham, corn and potatoes with me and heated it up when everybody was going to the buffet to get their food. So when everybody else was pigging out on this great wedding dinner I was also pigging out on a great dinner. And nobody would have noticed if they didn't try. Sometimes you just get in the mood to have a frozen dinner and just don't feel like cooking something. There's two ways you can go about this. I happen to be addicted to Udi's chicken Florentine and think that their broccoli kale lasagna is very good as well. So I'd stock up on that in that chest freezer. glutenfreemall.com has tons of stuff. On Sunday you can make a weeks worth of food and freeze a lot of it in individual portions. After a few weeks you will have several different meals in the chest freezer that you made at home. You can eat those on weeknights when you're too busy to cook. In my family Friday night was always eat out fast food night. McDonald's, Burger King, pizza, fried chicken. So for pizza my plan is to purchase Etalia New York style pizza crusts. Purchase some Escalon six in one crushed tomatoes and freeze in individual portions. Buy some Grande 50/50 mozzarella cheese and freeze in individual portions as well. If on Friday night if I am in the mood for pizza I'll just grab a crust, a portion of sauce and a portion of cheese from the chest freezer and make myself pizza in under 15 minutes. When I get invited to a barbecue I bring loaded potato skins or batter fried chicken wings. Everybody loves them as do I. I by Pamela's gluten-free flour from Amazon six at a time. So I always have some available. For the record, at the moment I am an extremely strict diet and cannot do any of the above. But will go back to that method in a few months.
    • Yes, I remember as a child being very ill too, could never explain it. The fact that I have several autoimmune diseases speaks volumes. I sure wish I had caught this much sooner.   Will have to research to increase enzyme consumption, but we can not look into our digestive system. Trying to concentrate on repairing the damage, not much else that can be done right now.    
  • Upcoming Events