• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Hypo/and Hyper Thyroid Symptoms
0

17 posts in this topic

Recommended Posts

Happyw5    6

I have had many hypothyroid symptoms for a few years, however, my TSH is always in normal range.  The most recent TSH test was 1.95, which I understand is great.  I do have high thyroid antibodies 16.2 and normal is >9. My mom and sister are both hypothyroid.

 

I have many hypothyroid symptoms,

weight gain

low body temp (95.6 to about 97.2)

extremely itchy skin

dry eyes-can no longer where contacts because of it

always feel like I need to push in my throat, becauase it feels bulgy (hard to explain)

very tired

vertigo

very heavy menstrual cycles , every 25 days.

shortness of breath

hypoglycemia

 

 

I do also get hyperthyroid symptoms,

anxiety

jittery and shaky

heart palpitations

 

I have been gluten free now for over 2 years, and doing great on it.

My Dr.  treated me for anxiety/depression when I told him all my symptoms and I was on that for about 1.5 yrs.  It didn't do much but I was willing to try everything.  I have now been off that medicine for about 1 year.  If I go to him again I know he will want to treat me with that again and I just want to fix the real problems.

Is there a way I can get everything balanced without going back to the doctors!  I have never been big into medicine so if I can avoid that I would like to.

Thanks

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


nvsmom    332

I've heard of some people's thyroid issues resolving them selves on the gluten-free diet, or after their adrenal fatigue was treated, but I'm assuming this occurs before the thyroid is too badly damaged. If you can stop the autoantibody attack on your thyroid, you could (maybe) have your hypo/hyper swings resolve themselves; it's not unheard of... but I don't think it's the norm. Most people seem to need T4 and sometimes T3 hormone supplementation.

 

I'm sorry I can't help. I'm fairly new into the world of thyroid problems (6 months) and I haven't got my own issues under control yet even with a gluten-free diet, but I suspect my thyroid has been under attack for over 15 years so it might be too damaged. Hopefully others will offer advice.

 

Good luck.

Share this post


Link to post
Share on other sites

No. What you need is prescription thyroid meds. You must find a new doctor.

You need free t3/t4 tests to see how your hormones are doing, and even if those are normalish you deserve a trial on thyroid meds. You have several symptoms including depression serious enough your doctor thought meds were warranted, a family history and thyroid antibodies.

That lump in your throat needs checking.

You are exhibiting symptoms of adrenal fatigue and hormone imbalance. Those go with Hashimotos disease. The heavy periods are probably excess/unopposed estrogen. You could treat that using an OTC natural progesterone cream and dr. John Lee's guidelines.

Get a new doctor. This one is not treating your health problems appropriately.

Share this post


Link to post
Share on other sites
cahill    189

No. What you need is prescription thyroid meds. You must find a new doctor.

You need free t3/t4 tests to see how your hormones are doing, and even if those are normalish you deserve a trial on thyroid meds. You have several symptoms including depression serious enough your doctor thought meds were warranted, a family history and thyroid antibodies.

That lump in your throat needs checking.

You are exhibiting symptoms of adrenal fatigue and hormone imbalance. Those go with Hashimotos disease. The heavy periods are probably excess/unopposed estrogen. You could treat that using an OTC natural progesterone cream and dr. John Lee's guidelines.

Get a new doctor. This one is not treating your health problems appropriately.

 

 

 

 

I agree with pricklypear1971  get a second opinion. Most GP's do not have enough of an understanding  of thyroid  issues to be of much help.

I also do not like to take medications  and will avoid meds if at all possible ,,BUT ( for me )  my thyroid  meds are necessary .

Share this post


Link to post
Share on other sites

I get that fullness in my throat when my Hashi's is flaring. It aches, too. My doc said it's because my thyroid is enlarged and pushing on my trachea. You need t3 and t4 testing. I would be willing to bet you have Hashi's and need supplementation. I had every one of your symptoms before I went on thyroid meds.

Share this post


Link to post
Share on other sites
Ads by Google:


R_Force    0

This may not help you, but shows the relationship between Celiac and thyroid disease in my son's case at least. He was diagnosed with Hashimoto's thyroid disease, but his thyroid levels were all over the place and they couldn't find a dosage of medicine that worked. After several months of trying, the doctor decided to test for Celiac. He had no other syptoms other than acid reflux. He tested positive to Celiac. Shortly after going gluten free, his thyroid settled down and he has been on the same level of thyroid medicine ever since (about 3 yrs).

Share this post


Link to post
Share on other sites
scenicgurl    0

It took me 4 months of testing and telling my doctor that something was wrong before they figured out I had hypothyroidism. I had no idea what it was so didn't know to look for it. All I knew was I was always tired, constantly thristy no matter how much water I drank, and even though we started the testing during the hottest summer in 5 years, I was always shivering and wearing a sweatshirt. Even with the diagnose it still took about a year to get my dose right on my medication. I can honestly say though that once I went on it I felt so much better. The days I take it too late or forget the refill on time I feel a change in my body immediately.

Unforunatly, when I went gluten free 4 years later too much damage had already been done to allow me to go off my medication. However, the combination of the two allows me to feel normal.

Believe me, I know taking meds sucks, but in the end it's all about making the best for you and taking care of your body. Your don't get to cash in for a replacement or an upgrade if this one breaks.

Share this post


Link to post
Share on other sites


Ads by Google:


No. What you need is prescription thyroid meds. You must find a new doctor.

You need free t3/t4 tests to see how your hormones are doing, and even if those are normalish you deserve a trial on thyroid meds. You have several symptoms including depression serious enough your doctor thought meds were warranted, a family history and thyroid antibodies.

That lump in your throat needs checking.

You are exhibiting symptoms of adrenal fatigue and hormone imbalance. Those go with Hashimotos disease. The heavy periods are probably excess/unopposed estrogen. You could treat that using an OTC natural progesterone cream and dr. John Lee's guidelines.

Get a new doctor. This one is not treating your health problems appropriately.

 

What s/he says. Your hyper symptoms may be thyreotoxic crises - if it is an autoimmune disease, the antibodies attacking the thyroid will destroy it thus causing excess hormones to leak out. Ladies and gentlemen, after the leaky gut syndrome, let me introduce the leaky thyroid syndrome!

 

Ask for FREE T3 and FREE T4. T3 and T4 only are useless and no endo uses them anymore. Also - ask for a full antibody panel. Anti-thyreoperoxidase, anti-thyreoglobulin, and anti-TSH receptor. You also need an ultrasound of your thyroid.

 

Keep in mind that a serious end will tell you that thyroid disorders are not straightforward. In my case, I have both Hashi's and Grave's antibodies. This results in a long-term thyroiditis. Right now I am recovering from a long-ish hyper phase. Funnily, I gained TONS of weight when hypER. I have had my period for the last couple of months, and I was 18 months in menopause (I am 30).

 

Change doc, for your own safety. When I first developed hyperthyroidism they almost let me die. My BMI went lower than 13 and I was living off cookies and cakes and body-building supplements and other fattening c*** to keep the weight on. They told me I had an eating disorder and gave me sleeping pills for my insomnia. <_<

 

If my ballet teacher hadn't freaked out and told me that not even people who starve themselves lose weight at that rate, I probably would not be here to tell the story. I was in such bad shape when new doctors saw me that they weren't sure I would survive for another month. According to my nurse and GP I was perfectly ok. :angry: 

 

They still make it impossible for me to be adequately tested, and last time my FT3 and FT4 were over the roof. I am at this absurd conjuncture in life were I have to get tested when I go back to Europe :o , because they won't do it in here - and I am a student, so I don't have great finances to circumvent the protocol.

 

Hugs.

Share this post


Link to post
Share on other sites
quincy    9

I recently was referred to an endocrinologist by my celiac doc because my hip is borderline osteoporosis now. 

My results from labcorp are:

 

TSH: 3.25

PTH: 17

Calcium 9.5

24 hour urine calcium: 560 mg (>300 is high).

 

The endo put me on 12.5 mgs of hydrochlorothiazide which is supposed to help the kidney keep calcium in.  I have never had a kidney stone that I am aware of though my brothers and grandfather had them.

 

My symptoms include poor sleep, awaking in the middle of the night to panic attack-like symptoms: racing heart, tingling in hands, panic and confusion. I get these attacks often.

My recent celiac panel has come back negative, so I don't think I am getting any cc from gluten.

 

my chiropractor says I should have a scan of my parathyroid just in case I have nodules, but all my numbers are normal

 

anyone have any thoughts?  Is the PTH on the low side and the TSH too high?

 

thanks all

Share this post


Link to post
Share on other sites
Lady Eowyn    14

Hi Quincy

Personally I would say that your TSH is too high and would recommend the full thyroid tests as above (at least T4 T3 and antibodies).

I would certainly be ill with that TSH. Having said that, and as others have mentioned, TSH is a poor indicator for thyroid and should not be relied upon, especially when taken on it's own.

 

I also believe that the thyroid plays a major role in the management of calcium so it follows that low thyroid (which your TSH suggests) can cause problems with calcium. 

Sorry, don't know anything about the PTH but would get your thyroid evaluated further as a priority.

Share this post


Link to post
Share on other sites


Ads by Google:


quincy    9

Hi Lady Eowyn,

 

thank you for the advice. There was a time when I took this supplement for the thyroid and my TSH went down to 2.25, but I have continued to take this supplement (it's called thyroid synergy) but my number has crept back up over the last few years back to 3.25

 

I feel alot better than before when my Vitamin D and ferritin were very low, but since those numbers are now in a very healthy range, I don't feel the fatigue and depression I used to have. I still get cold hands and feet alot though.

 

I have been to several doctors who don't think there is anything wrong with my thyroid with the number at 3.25. But I still have odd symptoms related to sleep disorders of waking at night with my heart racing, panic, nervousness, and I still have a touch of depression and anxiety at diff times. I don't know if those sleep symptoms are related to thyroid.

 

I don't know what else to do when endocrinologists tell me there is nothing wrong with the thyroid.  I had T3 and rT3 and T4 checked and they fell within the normal ranges as well. so maybe thats just what my TSH is supposed to be?

Share this post


Link to post
Share on other sites
cahill    189

I don't know what else to do when endocrinologists tell me there is nothing wrong with the thyroid.  I had T3 and rT3 and T4 checked and they fell within the normal ranges as well. so maybe thats just what my TSH is supposed to be?

find a different endocrinologist , one that will treat you not JUST read the numbers, one that will actually listen to what you and your body are saying . Every one is different , your' normal' is not the same as my 'normal'.

Share this post


Link to post
Share on other sites

Yay! I finally found a place where I can get answers! You all are the BEST.

 

I just got my blood tests back and have a TSH of 4.09 and my cortisol is 34 ...peak being 19

My great grandmother and grandmother are hypothyroid and my symptoms are pretty textbook.

 

Can you still be diagnosed Hypothyroid with a  normal T3, T4? I am scared that I will keep getting told I'm normal and to "De-stress." I've known that something was wrong with my body for years...but I can't seem to get any answers, I feel like I finally have one! I see quite a few posts about endocrinologists, is that the Dr. I should see for a suspected thyroid issue?

 

Thank you!!

Share this post


Link to post
Share on other sites
cahill    189

Yay! I finally found a place where I can get answers! You all are the BEST.

 

I just got my blood tests back and have a TSH of 4.09 and my cortisol is 34 ...peak being 19

My great grandmother and grandmother are hypothyroid and my symptoms are pretty textbook.

 

Can you still be diagnosed Hypothyroid with a  normal T3, T4? I am scared that I will keep getting told I'm normal and to "De-stress." I've known that something was wrong with my body for years...but I can't seem to get any answers, I feel like I finally have one! I see quite a few posts about endocrinologists, is that the Dr. I should see for a suspected thyroid issue?

 

Thank you!!

 

 

Yes , most GP's do not have enough understanding about thyroid issues to be helpful. Finding an excellent endocrinologist is important  anyone with thyroid issues .

My last PCP actually said to me that I need anti anxiety meds and that I " just need to calm down". I fired her.!! My diagnoses( ALL OF THEM)  came after I went to my new doc and started seeing my endocrinologist . 

Share this post


Link to post
Share on other sites
nvsmom    332

Yay! I finally found a place where I can get answers! You all are the BEST.

 

I just got my blood tests back and have a TSH of 4.09 and my cortisol is 34 ...peak being 19

My great grandmother and grandmother are hypothyroid and my symptoms are pretty textbook.

 

Can you still be diagnosed Hypothyroid with a  normal T3, T4? I am scared that I will keep getting told I'm normal and to "De-stress." I've known that something was wrong with my body for years...but I can't seem to get any answers, I feel like I finally have one! I see quite a few posts about endocrinologists, is that the Dr. I should see for a suspected thyroid issue?

 

Thank you!!

My FT4 an FT3 were at the bottom 20% of my lab's normal range when I was first diagnosed hypo because of a TSH of 14 or so. I am now, 8 months later, on 125 mcg. Synthroid and my TSH at 3 something and my Free T's have moved up to the bottom 30% of my lab's normal reference range.

My free T's have always been "normal" as has my TPO Ab. Only my TSH and symptoms have been abnormal... And when I had hypo symptoms and a TSH between a 4 and 7 a few years ago, they called it all normal then. Hrmph!

Share this post


Link to post
Share on other sites


Ads by Google:


My FT4 an FT3 were at the bottom 20% of my lab's normal range when I was first diagnosed hypo because of a TSH of 14 or so. I am now, 8 months later, on 125 mcg. Synthroid and my TSH at 3 something and my Free T's have moved up to the bottom 30% of my lab's normal reference range.

My free T's have always been "normal" as has my TPO Ab. Only my TSH and symptoms have been abnormal... And when I had hypo symptoms and a TSH between a 4 and 7 a few years ago, they called it all normal then. Hrmph!

nvsmom,

 

Thank you that makes me feel better! Did you feel better on the synthoid? Regain any energy?

 

I have already given up gluten and the headaches and GI are better....but the fatigue and numbness are so constant I'm losing my marbles! I don't like taking medication if I don't have to...but if it makes a difference in the fatigue and numbness then I am ALL IN! It is devastating to my work (I own a fitness studio and teach 6 days a week) and I need an answer.

Share this post


Link to post
Share on other sites
nvsmom    332

My fatigue hasn't really improved yet, no. I think I have something else causing it though, and my thyroid mess are not ideal yet.

Synthroid has helped my constipation, my hair thinning and my skin is a bit less dry.... It is a slow one treat.

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      107,913
    • Total Posts
      938,655
  • Member Statistics

    • Total Members
      65,838
    • Most Online
      3,093

    Newest Member
    Teresa Love
    Joined
  • Popular Now

  • Topics

  • Posts

    • Take the opportunity to get healthy!    Nuts, seeds, fruits, take these as snacks on your drive. I personally love almonds and pumpkin seeds. Or bananas and blueberries. Or if you need protein there's lots of gluten free protein bars at gas stations. I like to pack hard boiled eggs too.  One thing I do for long trips is I make sort of a granola/protein bar at home and take it with me.    1 cup oats 3 eggs two spoonfuls of peanut butter some cinnamon and a banana.   mash it all together and bake it like a cake for about 20 minutes. Chop em up into little bars and bag em for your trip. just get creative and try new things! 
    • I totally understand.    Ive noticed the same thing when I started really ramping up my fitness program.    To start, cut out the 30 day challenges. If your serious about fitness, you will incorporate it as a normal entity of life. We already have compromised immune systems so putting sudden outbursts (or challenges) of stress on it will only make you more susceptible to pathogens and ultimately, get you sick.    Take a week, only stretch, light cardio, very light strength training, and lots of rest. Next week, add a little more. Show your body that you can handle it, but do it push it by any means. This new training regime is forever, it's your lifestyle. Take it easy, and play it smart. Slowly add more intense training over time... slowly. Get to a point where you feel your nutrition and fitness needs are being satisfied, and you're productively making differences.   i personally work out 3-4 days a week. But if I go too hard, I get sick. Then I get frustrated that I can't exercise, I work out anyway, and get even more sick. It's just not smart. So I stopped that. I have respect for my immune system and its limits. I took it very slow, and increased my intensity over time. Now I'm at that golden point in my life where everything is balanced. Progress (in terms of personal aesthetics for myself and my interests) is slow, but it's progress. And it's a hell of a lot better than the go hard and get sick cycle.   Best of luck to you friend! I'm sure you will find your way! Learn your body. Know that you are strong, you are powerful, you just have to play it smart. 
    • Yes^, usually if you tell them about celiac, they know. Almost all nurses know what celiac is. If not, tell them what you can and can't consume. There is no such thing as gluten in IV. They always have fruits and juices at hospitals, you can ask for those. Staff in an ER, will always be very kind and helpful, as long as you are kind and respectful to them. I've noticed nurses are just about the best people in the world if you let them know how serious you are about something. As for medications, ask the physician or doctor what the medication is. See if it's diluted with anything. If either of you are unsure, look up the medication online before you take it. You can almost always find an answer. Besides, nowadays it's extremely rare to find gluten in prescribed medication because of how strict pharmaceutical companies have become on allergies and intolerances. 
    • A ketogenic diet is good if you are trying to lose weight, lower insulin levels, fight diabetes, lower blood sugar, etc. . But I'm 20 years old, 5'9 165lbs, that's not healthy for me. I am extremely active and need carbohydrates. In fact I definitely need more because I am lower than 12% body fat for sure. Also, if I remember, ketoacidocis is practically what the ketogenic diet induces, which isn't a normal body function. it's practically tricking your body to think it's starving, which for some, is a good thing. Not for all. It's like taking cold showers, they're good because they can boost and improve muscle recovery, but it does so by putting stress on your nervous system. Our bodies can handle being put into shock, they can bring out helpful chemicals in our bodies, yet they're not necessarily healthy. Yet, if you truly believe this is improving the way you live then who am I to tell you it's wrong.      And yes, I am still playing the game of trying to find the golden number of hours on sleep. I read about sleep cycles and I'm going to try to make it either 6 or 7.5 on the dot.    Nightsky, what carbs would I eat? Am I allowed any type of rice if I'm grain free? I eat lots of potatoes but sometimes I feel it's too much. I cook all the time and eat about 90% whole foods  with the exception of peanut butter and ground beef. 
    • I pretty much do all of that with the exception of parchment paper. I tried telling them about the loose flower and they look at me like I'm being some controlling a**hole. I'm too poor to afford extra paper towels and parchment paper. I can't seem to get them to understand how serious it is. I don't want to ruin everyone's day because of my disease. I can't use the ice machine because they put their hands in it, and when I tell them to be careful they forget. They've used my pans and silverware so I just end up giving them my pans and buying new ones. I am just going to accept that the next x-amount of years are just going to suck and there's nothing I can do. I just feel like I am being treated unfairly by the world. I  steal from grocery stores because I feel like they're robbing me with extremely expensive prices on food that I can eat. I have no shame whatsoever taking things when I can.  It sucks and there's just about nothing I can do. I am going to accept it, work hard in school and finally have my own gluten free household.  Im starting to get sick of free food being everywhere, and I can't have anything. My work always buys everyone lunch or dinner. And I can never eat anything because there's no safe local restaurants. I don't care about eating the food, I have no desire to eat gluten food at all, I just feel like everyone around me gets paid extra (in food because we're poor college students) and I'm left out, starving, eating canned tuna and canned beans. Can I at least get a raise since I can't eat the food?? And don't get me started on the socials. Last time, my work had Olive Garden, and everyone was running around with breadsticks trying to shake my hand. Probably washed my hands about a hundred times and still got sick that night.   PS I just kissed a girl the other night who definitely drank a beer so I'm dying from that as of now. (She lied about drinking beer). I know, I'm a mess.    So like I said you are all very kind and helpful, I will take your advice and do my best to minimize my ingestion of gluten (I feel like I'm starting to become neurotic because of it). And I will continue to accept the suck, with the dream of one day being completely isolated from everyone where I can live in gluten free peace. I'm just physically not meant to be a normal human being.  
  • Upcoming Events