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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Where Are The Great Doctors?
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4 posts in this topic

So many times I see posts here advising "get a new doctor" when someone's MD or GI is clearly behind the times. I've said it myself!

 

But now I'm wondering where all these new and better doctors are hiding? In a small town like mine, we don't have many choices.

 

So where are the forward-thinking doctors as far as NCGI and celiac? Are we talking like 3 or 4 in the whole country or something? It seems like the majority of us here have to teach our doctors about gluten instead of vice-versa.

 

(Hey, and are any in Northern California?)

 

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I have the same problem.  I have Gastroenterologist that diagnosed me with Celiac and GERD in Oct.  Basically all I received was a phone call with the biopsy results and told to go gluten-free. I was given 'handouts' to explain celiac disease and that's as far as it went.   They now want another upper scope done to 'see how I'm doing'.  After 4 months is there going to be any noticeable difference?  And then what?  Another handout?  

 

Is there such a thing as a doctor that treats a patient as a whole person?  I go to a Neurologist, Orthopedist, Hematologist and Gynecologist and somewhere in there my GP will put a word in.  However, none of my "body part" physicians seem to be able to link all of my symptoms and some just smirk when I mention that I am a Celiac.  Is an Osteopath a viable option?  I would like someone familiar with celiac disease and the other auto-immune difficulties that are associated with the disease.  I am at the end of my rope and wallet as well.  Any ideas?]" It seems like the majority of us here have to teach our doctors about gluten instead of vice-versa." is right!

Edited by TNfarmgirl
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Some people have luck with integrative medical groups.

I see a naturapath. I started with one, lasted for a year and then it started getting nutty.

So I looked for a new "whatever". Ended up with another nd that was an RN and teaches at a major university medical/nursing school. Much better to have that background.

I've tried DO's - saw nothing that different from an md.

So, nd's generally treat the whole person but can be nutty as heck. Good news is they generally state their concentration up front and hint at their style - sometimes on a website. You never get that out of MD's. And nd's don't hold an exclusive license on nutty - just read the "what doctors have said (or something like that)" thread on here.

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Guess I need to link up with some Celiacs in my area to ask this question.  I have run into some ND's and either the fees are so expensive or they are slightly off the deep end of the treatment bend.  Just wishing for someone that recognizes celiac disease and its complications.   

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