• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Where Are The Great Doctors?
0

4 posts in this topic

So many times I see posts here advising "get a new doctor" when someone's MD or GI is clearly behind the times. I've said it myself!

 

But now I'm wondering where all these new and better doctors are hiding? In a small town like mine, we don't have many choices.

 

So where are the forward-thinking doctors as far as NCGI and celiac? Are we talking like 3 or 4 in the whole country or something? It seems like the majority of us here have to teach our doctors about gluten instead of vice-versa.

 

(Hey, and are any in Northern California?)

 

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


I have the same problem.  I have Gastroenterologist that diagnosed me with Celiac and GERD in Oct.  Basically all I received was a phone call with the biopsy results and told to go gluten-free. I was given 'handouts' to explain celiac disease and that's as far as it went.   They now want another upper scope done to 'see how I'm doing'.  After 4 months is there going to be any noticeable difference?  And then what?  Another handout?  

 

Is there such a thing as a doctor that treats a patient as a whole person?  I go to a Neurologist, Orthopedist, Hematologist and Gynecologist and somewhere in there my GP will put a word in.  However, none of my "body part" physicians seem to be able to link all of my symptoms and some just smirk when I mention that I am a Celiac.  Is an Osteopath a viable option?  I would like someone familiar with celiac disease and the other auto-immune difficulties that are associated with the disease.  I am at the end of my rope and wallet as well.  Any ideas?]" It seems like the majority of us here have to teach our doctors about gluten instead of vice-versa." is right!

Edited by TNfarmgirl
0

Share this post


Link to post
Share on other sites

Some people have luck with integrative medical groups.

I see a naturapath. I started with one, lasted for a year and then it started getting nutty.

So I looked for a new "whatever". Ended up with another nd that was an RN and teaches at a major university medical/nursing school. Much better to have that background.

I've tried DO's - saw nothing that different from an md.

So, nd's generally treat the whole person but can be nutty as heck. Good news is they generally state their concentration up front and hint at their style - sometimes on a website. You never get that out of MD's. And nd's don't hold an exclusive license on nutty - just read the "what doctors have said (or something like that)" thread on here.

0

Share this post


Link to post
Share on other sites

Guess I need to link up with some Celiacs in my area to ask this question.  I have run into some ND's and either the fees are so expensive or they are slightly off the deep end of the treatment bend.  Just wishing for someone that recognizes celiac disease and its complications.   

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,426
    • Total Posts
      930,492
  • Member Statistics

    • Total Members
      63,848
    • Most Online
      3,093

    Newest Member
    glutenfreekiddo
    Joined
  • Popular Now

  • Topics

  • Posts

    • So I think my daughter is reacting to Dairy?  I only really removed it 100% from her diet for a few weeks and then SLOWLY let her have some because of how difficult it was to find substitutes she liked and she was still reeling with the emotions of being restricted from so many foods.  The smell amts of dairy we allowed had no adverse effect on her (so we thought) and her improvements were still so profound and immense we felt confident that dairy was not an issue. Cue the Cheerios.  We allowed her "oats" again and Cheerios require milk and within a week BOOM all her symptoms were back - difficulty swallowing, hearing issues, dh rash on her scalp, tired, confused. Naturally I accused the oats of being the devil! So that was a week ago that I figured out that oats were evil and have easily eliminated them as Cheerios were the only source. Well here I am and she is NOT getting better.  In fact...she is now having extreme SPD symptoms again.  Things are too loud.  Smells are too strong. Her clothes feel weird, her bedding feels weird.  This all overlapped with the onset of a pretty bad head cold so I tried to be patient.  But a full week later...I think it's the dairy? I have an apt with a Naturopath to test for food sensitivities and I am wondering about having the Dr test her scalp rash? Any thoughts?  Do we assume it's dairy or could a cold on top of an oat cross contamination still be causing problems?
    • Next time just take a box of rat poisoning and extract ONE granule.  Toss it into his food (while he is watching) and give it a good stir.  Hand the food over and see if he is willing to eat it.
    • Gertrude.....just a few comments after reading your posts..........no other disease but Celiac disease will cause a positive on the EMA test.  I have never heard of a false positive on that either.  It is a test that is done by hand and not by a machine because of the way it has to be done, so having a false positive is almost impossible.  Your doctor should have known that.  Many people trip just 1 or 2 tests on the panel and they have Celiac Disease.  With autoimmune testing, you can test 2 different people with Celiac Disease and they can have wildly different test results.  Couple those with a positive gene test and the likelihood of it being Celiac is almost 100%.  The fact that the doc didn't find villus atrophy just means the damage is not extensive enough for them to find.......yet.  I am sure they would prefer you to keep eating gluten until that happens but you do not want to do that.  So.........after you have been gluten-free for awhile, have them run the Celiac panel again to see if your EMA goes to normal, which it should if you eat very gluten free. With positive gene results, positives on your Celiac antibody testing, and positive dietary response, that is a diagnosis!
    • That's great, Gertrude! I'm glad your doctors sound more competent than mine. And that you're starting to feel better.  I haven't had any abdominal or joint pain in the last few days, and I feel like I have more energy for sure. I've been feeling a little off/dizzy but that might be from gluten withdrawal.  Good luck with everything! 
    • By the way, I got my biopsy pathology report and the doctor took 2 biopsies, not the recommended 4-6. It says no "significant villous blunting not seen." I don't know if I should laugh or cry---so frustrating.   
  • Upcoming Events