• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Where Are The Great Doctors?
0

4 posts in this topic

Recommended Posts

gatita    32

So many times I see posts here advising "get a new doctor" when someone's MD or GI is clearly behind the times. I've said it myself!

 

But now I'm wondering where all these new and better doctors are hiding? In a small town like mine, we don't have many choices.

 

So where are the forward-thinking doctors as far as NCGI and celiac? Are we talking like 3 or 4 in the whole country or something? It seems like the majority of us here have to teach our doctors about gluten instead of vice-versa.

 

(Hey, and are any in Northern California?)

 

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


TNfarmgirl    0

I have the same problem.  I have Gastroenterologist that diagnosed me with Celiac and GERD in Oct.  Basically all I received was a phone call with the biopsy results and told to go gluten-free. I was given 'handouts' to explain celiac disease and that's as far as it went.   They now want another upper scope done to 'see how I'm doing'.  After 4 months is there going to be any noticeable difference?  And then what?  Another handout?  

 

Is there such a thing as a doctor that treats a patient as a whole person?  I go to a Neurologist, Orthopedist, Hematologist and Gynecologist and somewhere in there my GP will put a word in.  However, none of my "body part" physicians seem to be able to link all of my symptoms and some just smirk when I mention that I am a Celiac.  Is an Osteopath a viable option?  I would like someone familiar with celiac disease and the other auto-immune difficulties that are associated with the disease.  I am at the end of my rope and wallet as well.  Any ideas?]" It seems like the majority of us here have to teach our doctors about gluten instead of vice-versa." is right!

Edited by TNfarmgirl

Share this post


Link to post
Share on other sites

Some people have luck with integrative medical groups.

I see a naturapath. I started with one, lasted for a year and then it started getting nutty.

So I looked for a new "whatever". Ended up with another nd that was an RN and teaches at a major university medical/nursing school. Much better to have that background.

I've tried DO's - saw nothing that different from an md.

So, nd's generally treat the whole person but can be nutty as heck. Good news is they generally state their concentration up front and hint at their style - sometimes on a website. You never get that out of MD's. And nd's don't hold an exclusive license on nutty - just read the "what doctors have said (or something like that)" thread on here.

Share this post


Link to post
Share on other sites
TNfarmgirl    0

Guess I need to link up with some Celiacs in my area to ask this question.  I have run into some ND's and either the fees are so expensive or they are slightly off the deep end of the treatment bend.  Just wishing for someone that recognizes celiac disease and its complications.   

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      107,860
    • Total Posts
      938,361
  • Member Statistics

    • Total Members
      65,756
    • Most Online
      3,093

    Newest Member
    poorni
    Joined
  • Popular Now

  • Topics

  • Posts

    • After doing some research, apparently there is a connection between Celiac Disease and sex drive. Here are just a couple of links I found: https://www.youtube.com/watch?v=PnGq_Vz6TuE   http://www.naturalnews.com/037361_sex_bread_gluten.html
    • This article, and the comments below, may be helpful: https://www.celiac.com/articles/21721/1/How-Celiacs-can-Deal-with-Accidental-Gluten-Ingestion/Page1.html
    • Long ignored and dismissed as unscientific and crude, are intestinal worms destined to be the future of autoimmune disease treatments? Hookworms. Intestinal parasites. They sound gross. The thought of having one's gut infected with a parasitic worm generally makes people's skin crawl. Indeed, intestinal worms, like hookworm, have a bad reputation among health experts, and have been the subject of fierce public health campaigns seeking their eradication. However, researchers have also documented the gut healing abilities of parasites like hookworm. View the full article
    • well, we're in sort of similar positions but can l ask what made you go gluten-free 3 years ago?   You've kept the diet for quite some time so where the health problems serious? at the time was seeking testing not an option? For myself, l absolutely tried everything to gain weight after losing January 2017. By April/May l started wondering how on earth l could be eating : regular meals, Boost shakes, fast food and sodas and candy all day, pretty much daily and still be losing. Some of these meals at home were pasta packed which, at the time l really thought goulash and cans of chef Boyardeee would help me gain     And years of headaches, brain fog that l didnt know what to attribute to but never suspected celiac until the weight loss, and legs and feet that hurt constantly (l didnt really know this could be due to gluten but it relived after being gluten free).   l am only about 2 months in, l did take a really basic TTG ia test after getting a response that my GI would test ''at some point'' and not being clear when that was, and very tired of being 97 pounds and scared of losing more!   so l now also have to wait to be tested more extensively, but l have gained some weight  and gave noticed some changes.    Did you have any improvements after going gluten free? If the test l did take had just been a clear ''no'', l dont  know how motivated l would have been to do this. It wasn't a clear yes, either, but designed like a drug or pregnancy test so the weak red line  does signify at least some sensitivity.   Typically the longer you wait, if in fact you are sensitive or even have celiac disease, the harder the challenge may be so l can understand the anxiety. l am planning for about 6 months. l could not handle going back on a gluten containing diet with my current job as well, and especially not during holiday retail season!   l would start very slowly. Is your new job going to be stressful? You might want to get a feel for the environment first and how you're going to deal with it on days when you might be feeling like utter crap >.> A headache that feels like a band around the back of my head and eye pressure was something l dealt with on my bad days before being gluten-free. It's not easy to function and when l did, l wasnt a nice person or very efficient.   You can start slowly, and please font be too concerned about fitting all of your challenge into six weeks, IMO. l wouldnt think of it as just a short term binge. Yes, you want to get it over with, but if you really fall apart and dont think you can even consume gluten daily, maybe try to do what you are able to do and if the time period gets stretched to 8 weeks or maybe more don't panic.   it should be difficult at first and even a shock to your system, but  even though you will likely not feel well the entire time you're challenging to retest, maybe by a few weeks in the symptoms will be slightly less severe and you can find ways to ease them. Any meds that you have taken like nsaids, a steroid, even Flonase helped me but l really dislike the side effects.   If the process in general with doctors and asking about this also gives you anxiety l would really recommend the walkinlabs recommended here. After 6-8 weeks, order (around 300 so plan for it financially). That will be your answer, make sure you have truly waited enough time to be properly tested and order the most extensive tests.    It's not something you want to have to repeat but l know l am not looking forward to it either! You will have your answer though, which, even if negative will be satisfying.
    • I can not add anything else, but I hope you feel better fast!    
  • Upcoming Events