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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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SensitiveMe

Bloodwork Question

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Can you tell me the name of the basic bloodwork test to determine if someone might have celiac disease. Is it called a Celiac Panel?

I am concerned my younger brother may have celiac disease and so I want to tell him the name of the bloodtest to ask the doctor to do. He is not really having too many problems at this time but I do not want him to eventually go through all the suffering it has caused me. It is my understanding it is hereditary and runs in families. He is lactose intolerant and as a child had quite a few stomach complaints and also seemed to have failure to strive...he did not grow a bit for 8 straight years. He is always taking things now for what he says is indigestion and says it is just because he drinks beer often. He also says he eats a lot of bread. And he has been having a red lumpy rash on his face which does not respond to things the doctor orders for it...mine was on both elbows and I had it for over 20 years and it never responded to anything the doctors ordered and 4 months after I stopped eating wheat it completely disappeared and has never come back.

Do you think I am being overly cautious in wanting him to be tested for celiac disease? Sorry for the wordy post but I would like your opinion as I know I have always been a bit too overprotective of my younger brothers.

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Can you tell me the name of the basic bloodwork test to determine if someone might have celiac disease. Is it called a Celiac Panel?

I am concerned my younger brother may have celiac disease and so I want to tell him the name of the bloodtest to ask the doctor to do. He is not really having too many problems at this time but I do not want him to eventually go through all the suffering it has caused me. It is my understanding it is hereditary and runs in families. He is lactose intolerant and as a child had quite a few stomach complaints and also seemed to have failure to strive...he did not grow a bit for 8 straight years. He is always taking things now for what he says is indigestion and says it is just because he drinks beer often. He also says he eats a lot of bread. And he has been having a red lumpy rash on his face which does not respond to things the doctor orders for it...mine was on both elbows and I had it for over 20 years and it never responded to anything the doctors ordered and 4 months after I stopped eating wheat it completely disappeared and has never come back.

Do you think I am being overly cautious in wanting him to be tested for celiac disease? Sorry for the wordy post but I would like your opinion as I know I have always been a bit too overprotective of my younger brothers.

The list of tests below constitutes what is called the celiac blood panel:

 

Anti-Gliadin (AGA) IgA

Anti-Gliadin (AGA) IgG

Anti-Endomysial (EMA) IgA

Anti-Tissue Transglutaminase (tTG) IgA

Deamidated Gliadin Peptide (DGP) IgA and IgG

Total Serum IgA

 

Sometimes it is hard to get doctors to run all of those, but do your best because they are all important - not every one of them has to be positive.  Make sure they do the last one.

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    • It's good to know it was of use, thanks for letting me know   All the best, Matt
    • Hi Matt,   Thank you very much for a thorough response. Your link seems to cover pretty much all the questions one might have in my current situation. I appreciate it.   Have a wonderful day, Lex
    • I am worried about the cost but I think having that test done would help me rule things out. Either way I need to see a G.I my issues are getting out of control.
    • Thank you for all the information. I am sorry for the late reply to everyone. I have been feeling worse and worse lately. Got the blood test results, it came back negative. Seeing a G.I specialist in three months (too long for me :/) I've been keeping a food diary and realize I feel worse after eating gluten. After the G.I I want to start the diet. I'm going to call him and see if I can get seen sooner. The bloodwork said theres no signs of inflammation and they don't suspect it to be autoimmune but they want me to do the diet anyway. I wish I had answers because my vision is getting worse, cramping, nerve pain and trips to the bathroom are amplifying. Meh. Also I have a vitamin d deficiency so I am taking d3 2000iu with vitamin b12. Thanks for the help! 
    • I'm sorry you are dealing with this. My son deals with food intolerances that are not identified by any biomarker as well. I hear the same response from doctors in that, "if the food makes him feel bad then it's probably best to avoid the food." (Thanks for your insight doc!) His symptoms are not dermatological though. His symptoms are mostly neurological and psychiatric with some bloating and mild digestive issues. He loses his mind quite literally if he digests gluten. Also develops what is known as a stereotypy, involuntary movement of hands. He is otherwise a normal child. We are unable to obtain any kind of diagnosis though.  I know you're avoiding a lot of foods right now, but don't get discouraged. It's just a way of life and you're doing the right thing. Right now we are avoiding foods such as soy, all types of grain, chocolate, dairy and nightshades. I have limited his iodine intake as well. I have personally found that gluten, iodine and soy cause intensely itchy blisters and joint pain for me. Perhaps have you tried cutting back on iodine intake?
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