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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Apitherapy
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A show on TV initiated a conversation tonight with my husband about apitherapy, or treatment with bee products. Without really realizing what it was called, I was already doing this. I didn't think about it at the time that I talked about my allergies, but last fall I started using local honey instead of buying it at the store. I can't say that my allergies are better because I'm gluten free or because of my use of local honey, but they're better. I'll take it.

 

This brings me to the next, and possibly crazy idea. Bee sting therapy. I don't know what is causing the pain in my leg, or that has now started in my arm. I don't know how long it'll be to a diagnosis. I don't know if it is AI or something else, if it is CRPS as I highly suspect then it is AI. Bee sting therapy is generally recommended for AI conditions, when at all. I'm desperate. Sure the doctor prescribed me something but I doubt that it will help significantly or that I will tolerate its few side effects well. (I try to remain hopeful though.)

 

I am also aware that bee venom is poison, which is why it is called venom. Duh. Most prescription meds are also poison (to some extent) and doctors are shoving those at me like they're going out of style. It simply becomes, as with a prescription, a matter of do the possible benefits outweigh the risks? I understand the death risk, and will ask my doctor to prescribe an epi pen should I choose to do this, regardless of the fact that I have not previously been allergic. (My mother carries an epi pen for bees and my brother is allergic, though not life-threateningly. No other relatives I have are allergic.) I know it will be uncomfortable, but I'm at the point where I am crying myself to sleep in pain despite my OTC pain relievers and my natural relief methods.

 

Has anyone else used this therapy for any reason? What sort of experiences did you have? I'm not wanting to walk into this blind, and it'll take a lot more research for me to do it, but I'm looking for what experiences anyone else may have had too. It also mentions on several of the sites I was reading that one of the effects is that it can sort of suppress the immune system, I was wondering how effective it could be as a therapy immediately if used for a glutening also. Since the problem is an out of whack immune system. (I know the idea is completely off the wall, but hey, what isn't at this point?)

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I never tried it, however; I have  a friend that has a book about it.  Some people believe it helps. I am not ready to go pet the bees in my beehive!

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My sister in law, who had severe MS, tried bee sting therapy on her legs, but alas it did not help at all and was quite painful.

 

I can't consider it because after I got stung once by a bee swarm (19 stings total!) I'm now highly allergic. My personal feeling is don't mess with bees. As you say, it's called venom for a reason.

 

There's no scientific basis for my opinion, by the way, just my hard-earned two cents. :)

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I think it's a fascinating idea. I've never personally been stung by anything, it

might have happened when I was too young to remember, but not in my memory

anyway. I would hesitate for me personally because I so rarely get glutened, and

when I do my symptoms are now quite manageable. I mean I'm miserable, but

I don't deal with the kind of pain you and some other people do. I'd say it warrants

a good hard look at least!

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I suppose at this point all I can do is connect with a local apitherapist and talk to my doctor about getting an epi-pen. I've talked to and read stories of true believers, and of absolute dissenters. People it has helped, and people who have tried it to no avail, even those who have tried it and had an unexpected allergic reaction although those were rare.

 

Seriously, what is the worst that could happen? I have an allergic reaction, spend an afternoon in the ER and have to start carrying an epi-pen with me which puts me better off than I am now walking around without one if I'm that allergic to bees. I could inflict all sorts of pain, and get no relief. What the hell is a little more pain at this point? Or it could help, without me ending up opiate dependent yet.

 

In the end, what are a significant number of modern medical breakthroughs? Good hard looks at old fold remedies to see how the work. This has been done for 1000s of years. There has got to be something to it right?

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