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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Felt A Bit Crappy This Week!
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jhol    0

ive been doing really well with the diet,

 

but this week felt a bit off- a bit dizzy, lethargic, not "with it" cant quite put my finger on whats wrong. so here,s all the things ive done differently.

i made soup again but this time i put peppers in plus a few chilli flakes and paprika.

i swapped my hazelnut milk for rice milk coz it had less " added extras"

ive been eating eggs - not a lover of them so dont eat them much -probably had  about 4 this week.

ive been eating these peanut butter puffs(crisps - like wotsits) really nice but said made on a line "that could have been used for gluten "

 

on tues i had the soup for dinner at work and then had one of those wiggly lines in eyes migranes ( i very rarely have these but with no pain )  this time i had a mild headache with it, have felt a bit crappy ever since. had it again for dinner today and had mild headache again.

 

the rash on my palms which has cleared up considerably, has started to harden up again and has started to peel/flake again.

 

not sure what im asking coz ive obviously got to sort this out myself- but if you can shed some light on this it would be appreciated. thanks

 

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mushroom    1,205

That is a shopping list of possible causes.

 

Peppers, paprika, chile  = nightshade family; lots of us have problems with nightshades.

If the rice milk was Rice Dream, many have problems with that because it is filtered with barley, although supposedly no residuals.

Eggs are one of the biggie allergens, although no natural association with gluten.

You could be a "supersensitive" who can't eat things made on shared lines.

 

All you can do is cut all those categories out and try them individually.  (Incidentally, the nightshade family includes potatoes, tomatoes and eggplant.)

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I would suggest going back to how you were eating before and then just change only one thing per week.  It can take that long for a reaction to show up.  It takes patience, but it is better than being in the situation that you are in now where there are several possibilities and you don't know which one it is.  Believe me, I am familiar with that situation myself.  Be paitient, and I hope that you can figure it out.

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jhol    0

thanks,

 

got a feeling it was the peppers in the soup. got some left so i,ll try it again and see if i get the headache again. it wasnt rice dream so the rice milk should be ok. and as for the eggs, since i dont like them much i probably shouldnt be eating them anyway :)

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foam    16

Peanuts should be left in the ground where they belong ! I got pretty sick last time I ate some with rice crackers a few months ago. From your list I'll blame the peanuts and or peppers. 

If eggs are no problem eat tons of them, its the most nutrition you are going to get with a leaky gut.

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jhol    0

That is a shopping list of possible causes.

 

Peppers, paprika, chile  = nightshade family; lots of us have problems with nightshades.

If the rice milk was Rice Dream, many have problems with that because it is filtered with barley, although supposedly no residuals.

Eggs are one of the biggie allergens, although no natural association with gluten.

You could be a "supersensitive" who can't eat things made on shared lines.

 

All you can do is cut all those categories out and try them individually.  (Incidentally, the nightshade family includes potatoes, tomatoes and eggplant.)

hi mushroom,

 

hope this doesnt sound like a really stupid question-( i just need to see the answer in black and white)  but can you be a supersensitive when you havent been diagnosed with celiac? im really struggling with this non diagnosis thing and i know that your answer is gonna be yes- i just cant get my head round it. i was doing ok last week but i did basically live off homemade soup !! im veggie, no diary and gluten - so if im sensitive to nightshades, what the hell am i gonna eat :wacko: what do i put on my gluten free pasta, no jacket potatoes,no beans in tomato sauce!!! tomato,s are in all curry sauces, in fact most things contain tomato,s in some form!

i keep going from ok to having a proper stress out.

second stupid question- can you have a problem with one nightshade and not the others? coz i dont seem to have a problem with potatoes- or at least i havent noticed it yet.

im gonna try peppers again this week to test them. ive not had eggs this week and went back to the hazelnut milk, no peanut puffs.

i must admit i have noticed my joints feel a bit stiff this week and face rash seems very red and flakey.

 

thanks for replying- hope this doesnt sound too mixed up :)  

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Greebo115    9

hi mushroom,

hope this doesnt sound like a really stupid question-( i just need to see the answer in black and white) but can you be a supersensitive when you havent been diagnosed with celiac? im really struggling with this non diagnosis thing and i know that your answer is gonna be yes- i just cant get my head round it. i was doing ok last week but i did basically live off homemade soup !! im veggie, no diary and gluten - so if im sensitive to nightshades, what the hell am i gonna eat :wacko: what do i put on my gluten free pasta, no jacket potatoes,no beans in tomato sauce!!! tomato,s are in all curry sauces, in fact most things contain tomato,s in some form!

i keep going from ok to having a proper stress out.

second stupid question- can you have a problem with one nightshade and not the others? coz i dont seem to have a problem with potatoes- or at least i havent noticed it yet.

im gonna try peppers again this week to test them. ive not had eggs this week and went back to the hazelnut milk, no peanut puffs.

i must admit i have noticed my joints feel a bit stiff this week and face rash seems very red and flakey.

thanks for replying- hope this doesnt sound too mixed up :)

Hi jhol,

I'm in the UK too....also undiagnosed - I've given up on the NHS here...it's a very long story (which I may post in another thread one day), but I've self diagnosed Celiac - been living gluten-free since before last Christmas.

After the initial, fantastic, wonderful response to going gluten-free, I too started to notice further intolerances. So, now I'm:

Gluten free, grain free, nightshade free, dairy free, soy free, legume free (except, I've just been able to add back home prepared haricot beans - yay!).

I can empathise with the "WHAT THE HECK IS LEFT TO EAT?" feelings....I keep swinging between that and "it's all cool, there's plenty left to eat, and I feel so much better!". Today, I feel positive, so, I have a couple of foodie suggestions....

Soups are great - they get lots of nutrients into you - I've been making thick, blended (using a stick blender) soups. If you blend them, there's no need to add any thickeners. You can add any combination of veggies, beans, nuts, herbs, spices etc, whatever you can eat. and it's easily digested.

I'd love to be able to eat gluten-free pasta.....yum yum....but alas, not for me at the moment, but you could add some olive oil and salt and pepper, maybe some "fake cheese", or gluten-free pesto sauce. Or make a sauce by cooking some vegetables, blending them and pouring over - if you use lots of carrots in the mix, you can even fool yourself that it is tomato sauce, lol. Oh my, I could go on all day about things to put on pasta, lol.

I was hoping that I only had a reaction to potatoes (it was really obvious once the gluten was gone), but I initially cut out all the nightshades. Then tested them one by one.....potatoes is the worst for me, but after testing all the rest, I realise that I react to them all, just to a lesser extent - ho hum, hopefully it's not forever...it's early days yet. I think all you can do is test them yourself....

At first, (and because it was Christmas), I went and bought lots of processed gluten-free goodies.......wow, they really disagreed with me! I'm still not sure if it was because of all the intolerances I had yet to identify, or if I was sensitive to the low levels of gluten that is allowed into the processed gluten free foods here - I'm quite disturbed at the things you can find in the "gluten free" processed foods - just the other day I found "gluten free wheat bran" listed on an item!

Eventually I came to the conclusion that "if it comes in a packet with an ingredient list, it will make me ill", so now, I am eating only​ whole foods (plus a small host of gluten-free supplements including digestive enzymes) - so I'm finding that if I eat like a super-sensitive celiac, then I feel great. I suppose we all just have to do what works for us. Does the classification really matter?

Ok, so now I'm off to go daydream about other things I could eat on gluten-free pasta......one day, lol.

Edited by Greebo115

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jhol    0

Hi jhol,

I'm in the UK too....also undiagnosed - I've given up on the NHS here...it's a very long story (which I may post in another thread one day), but I've self diagnosed Celiac - been living gluten-free since before last Christmas.

 

After the initial, fantastic, wonderful response to going gluten-free, I too started to notice further intolerances. So, now I'm:

Gluten free, grain free, nightshade free, dairy free, soy free, legume free (except, I've just been able to add back home prepared haricot beans - yay!).

 

I can empathise with the "WHAT THE HECK IS LEFT TO EAT?" feelings....I keep swinging between that and "it's all cool, there's plenty left to eat, and I feel so much better!". Today, I feel positive, so, I have a couple of foodie suggestions....

Soups are great - they get lots of nutrients into you - I've been making thick, blended (using a stick blender) soups. If you blend them, there's no need to add any thickeners. You can add any combination of veggies, beans, nuts, herbs, spices etc, whatever you can eat. and it's easily digested.

 

I'd love to be able to eat gluten-free pasta.....yum yum....but alas, not for me at the moment, but you could add some olive oil and salt and pepper, maybe some "fake cheese", or gluten-free pesto sauce. Or make a sauce by cooking some vegetables, blending them and pouring over - if you use lots of carrots in the mix, you can even fool yourself that it is tomato sauce, lol. Oh my, I could go one all day about things to put on pasta, lol.

 

I was hoping that I only had a reaction to potatoes (it was really obvious once the gluten was gone), but I initially cut out all the nightshades. Then tested them one by one.....potatoes is the worst for me, but after testing all the rest, I realise that I react to them all, just to a lesser extent - ho hum, hopefully it's not forever...it's early days yet. I think all you can do is test them yourself....

 

At first, (and because it was Christmas), I went and bought lots of processed gluten-free goodies.......wow, they really disagreed with me! I'm still not sure if it was because of all the intolerances I had yet to identify, or if I was sensitive to the low levels of gluten that is allowed into the processed gluten free foods here - I'm quite disturbed at the things you can find in the "gluten free" processed foods - just the other day I found "gluten free wheat bran" listed on an item!

 

Eventually I came to the conclusion that "if it comes in a packet with an ingredient list, it will make me ill", so now, I am eating only​ whole foods (plus a small host of gluten-free supplements including digestive enzymes) - so I'm finding that if I eat like a super-sensitive celiac, then I feel great. I suppose we all just have to do what works for us. Does the classification really matter?

 

Ok, so now I'm off to go daydream about other things I could eat on gluten-free pasta......one day, lol.

hi greebo,

 

thanks for answering- just havin a bit of a strop this morning lol. im ok now. i dont eat much gluten free products just a bit of pasta and bread - not into cakes and biscuits. i dont like the fact that they are full of stuff that i dont know what it is - if that made sense. i have bought some of the gluten free pesto sauce so must try that and i,ll try the veggies poured over it. think im just gonna have to keep a food diary to keep a track of all these problem foods. i keep putting it off but it looks like im just gonna have to do some cooking and baking .

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Hiya

I am in the UK too :) I have been on whole foods since January too, and on an elimination diet. Just popped by to mention Doves Farm brown rice pasta. I have just managed to reintroduce it, yeah! I couldn't handle any of the pasta with corn/maize. Apologies if I missed a bit where you said you can't have rice...

BTW, I managed to get a non celiac gluten intolerance diagnosis, after negative blood and biopsy, then gene tests. I did a gluten challenge, and only lasted 3 weeks. My GI diagnosed me on that response, and a positive response to the gluten-free diet, and my medical history. I don't get food on prescription, but I wouldn't eat that stuff if you paid me. The NHS is tough to crack, it seems, and very dependent on who you happen to see.

I have a similar list of other intolerances, and am reintroducing one food a week. Tomorrow is potato, so fingers crossed. If that doesn't work I will.try eliminating the other nightshades.

Good luck with it all :)

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jhol    0

Hiya

I am in the UK too :) I have been on whole foods since January too, and on an elimination diet. Just popped by to mention Doves Farm brown rice pasta. I have just managed to reintroduce it, yeah! I couldn't handle any of the pasta with corn/maize. Apologies if I missed a bit where you said you can't have rice...

BTW, I managed to get a non celiac gluten intolerance diagnosis, after negative blood and biopsy, then gene tests. I did a gluten challenge, and only lasted 3 weeks. My GI diagnosed me on that response, and a positive response to the gluten-free diet, and my medical history. I don't get food on prescription, but I wouldn't eat that stuff if you paid me. The NHS is tough to crack, it seems, and very dependent on who you happen to see.

I have a similar list of other intolerances, and am reintroducing one food a week. Tomorrow is potato, so fingers crossed. If that doesn't work I will.try eliminating the other nightshades.

Good luck with it all :)

 

im currently debating whether to do a gluten challenge- a bit worried though, i need a few days off together from work- just in case.

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