• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

How Long Did You Experience Symptoms? What Are You Dealing With Now?
0

7 posts in this topic

Recommended Posts

How long did you experience symptoms?

 

My answer atleast 30 years, but the more I sit back and consider the more I think it was before then.

 

How long have you been gluten free?

 

Could it be 10 months.?

 

What are you dealing with now:?

 

leaky gut

more severe reactions to gluten mistakes.

bloating

food intolerances

mal absorption

super sensitivity/cross contamination

 

 

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


lisa74    2

How long did you experience symptoms?

2 years

 


How long have you been gluten free?

4 weeks

 

What are you dealing with now:?

amost all of my symptoms have gone away except for joint and muscle pain, occasional numbness, and slight dizziness, but it has all lessened considerably

  • Upvote 1

Share this post


Link to post
Share on other sites
nvsmom    332

How long did you experience symptoms?

Most of my life (39 years).

 

How long have you been gluten free?

Only 8 months.
 

What are you dealing with now:?

Still have some fatigue. "C" is still with me but less. Joint pain is greatly reduced; I am now mostly stiff and weaker than before. I still get back pain but I don't think it's gluten related. My thinking is still not as clear as it once was; I'm not sure how much that will improve. I do react badly to cc or accidental glutening but I alwaus did. I still have dairy issues.

 

I do have other autoimmune issues that aren't fully resolved though, so they could be causing the above symptoms.

 

the things that resolved are the stomach aches, bloating, hypoglycemia, hairloss, migraines, some fatigue, muscle cramps, most of my joint pain, and my skin is improving slightly (less acne).

  • Upvote 1

Share this post


Link to post
Share on other sites

How long did you experience symptoms?

Most of my life (39 years).

 

How long have you been gluten free?

Only 8 months.

 

What are you dealing with now:?

Still have some fatigue. "C" is still with me but less. Joint pain is greatly reduced; I am now mostly stiff and weaker than before. I still get back pain but I don't think it's gluten related. My thinking is still not as clear as it once was; I'm not sure how much that will improve. I do react badly to cc or accidental glutening but I alwaus did. I still have dairy issues.

 

I do have other autoimmune issues that aren't fully resolved though, so they could be causing the above symptoms.

 

the things that resolved are the stomach aches, bloating, hypoglycemia, hairloss, migraines, some fatigue, muscle cramps, most of my joint pain, and my skin is improving slightly (less acne

I am hoping you will get well.

Diana

Share this post


Link to post
Share on other sites

How long did you experience symptoms?

2 years

 

How long have you been gluten free?

4 weeks

 

What are you dealing with now:?

amost all of my symptoms have gone away except for joint and muscle pain, occasional numbness, and slight dizziness, but it has all lessened considerably

That's great news, keep up the good work.

Share this post


Link to post
Share on other sites
Ads by Google:


shorebird    1

How long did you experience symptoms?

 

10+ years

 

How long have you been gluten free?

 

5 years

 

What are you dealing with now:?

 

Symptoms returning after 5 years of gluten-free. Diarrhea, constipation, bloating, gas, abdominal pain. Gallbladder pain seems to be coming back as well.

Share this post


Link to post
Share on other sites
JohanJohan    1

How long did you experience symptoms?

 

Most of my life (30 years). Although i didnt know it was caused by glutened. 95% of symptoms came in the last 5 years.

 

How long have you been gluten free?

 

3 weeks.

 

What are you dealing with now:?

 

Anxiety i didnt have before, vitiligo, leaky gut (probably), understanding where gluten is hiding, understanding what i can eat, other food intolerances i didnt know i had, bloating, stomach pain i didnt have before.

 

 

What has been resolved?

 

I added this question to make it bit more positive to read :)

 

Brain fog gone, drowsiness gone, ridges and white spots on nails are gone, hair better, skin better, irritability gone, much more nice/understanding to people, stress gone (!), couple of kilos gone, arm pit sweat gone (wtf?), feelings of anger gone.

 

Im pretty sure my fatigue is gone too. I only say "pretty sure" cause it feels it will get even better soon. But im actually already happy with my energy levels after 3 weeks off. And few more other things are gone.

  • Upvote 1

Share this post


Link to post
Share on other sites


Ads by Google:


Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      107,896
    • Total Posts
      938,529
  • Member Statistics

    • Total Members
      65,803
    • Most Online
      3,093

    Newest Member
    jbtereknor@gmail.com
    Joined
  • Popular Now

  • Topics

  • Posts

    •   Ironic, We went entirely gluten-free in our home after 2016 for how bad my neurological , joints, mood gets now in addition to my former gi, skin, and other issues . My son shows signs of my early symptoms and voluntarily went off gluten, corn, and milk like me as he did his own food like diary symptom tracking. My daughter continues on gluten outside the home. We warn her of our concern for at times in toddler hood she was constipated and would bloat.  We asked their Dr to test them as I was undergoing my testing and she said no until I had my diagnosis. As we know these things take time and my son went gluten-free . He said after watching mom on my gluten challenge that he will not go back on it .  We await technology further research and we silently watch our soon to be teen girl for we know even if tested negative it can show up one day.  She says I know mom I know. The more Whole Foods here in the home we notice she actually craves gluten / processed foods less and is slowly transitioning as well.  Does your child also naturally eat less gluten and processed as well away from home? I wonder if the taste buds / craving change as the parents diet changes food options.  Thoughts?
    • Funny though, my brother and I were just discussing this. He has celiac and both his son and him are gene positive. Both were TTG/EMA negative but never tested for DGP. My brother had damage on endoscopy. They have not scoped his son. He feels his son is symptomatic but not his daughter.  I have conflicting positive and negative DGP, recent damage on biopsy and negative TTG/EMA. Two years ago my son had negative TTG and DGP. No EMA. I plan to have him gene tested and full antibodies screened again.  My brother has opted to have his children follow a gluten-free diet. I am currently allowing my son a normal diet.  But my own chaos with diagnosis, and my brother's too because he was TTG negative, makes me ultra sensitive to the possibility.  My son's ped doc has a  daughter who was recently diagnosed with celiac.  it was in the family so her mom, my son's doctor, suspected it as soon as she started getting digestive issues and losing weight.  she pretty much told me that she was glad that they didn't put her on a gluten-free diet as a child so she can enjoy eating the things she wanted to Throughout her life.  I have to say I agree to a large extent. There are many diseases that we could get At anytime. we cannot change our lives for that reason alone.  However that being said, my family has both thyroid disease and multiple sclerosis as well.   I know all too well the naive statements and assumptions that doctors can make in the face of science still working to find conclusions.  There are other types of TTG the doctors don't typically test for.  I am well aware of this, and sensitive to it. As a parent, I'm going to allow my son to continue on a normal diet for now, but we are going to pursue testinG  And I'm going to watch it very closely.  
    • It might generate based on traffic searches  or posts etc. My guess. I read them and respond because I wasn't on here as a member in 2012. I only use to visit then. So it's new to me V. happy friday   😋  
    • Just saying her TTg was 0 & her IgA was 27 doesn't tell us anything. Every lab can have different values so we need the reference ranges not just the results. Can you look back at the lab report & get those & post them please? Did they tell you she MUST be eating gluten every single day until all testing is done? Don't make a fatal mistake & take her off of gluten yet.
    • When the doc did the endoscopy, did he take biopsies? How many? From what locations? Get your records!!!! If he didn't take biopsies for celiac disease then he can NOT say you don't have it. 99% of the time, villi damage can not be SEEN by the GI doc during the endoscopy. And yes, the doc has no clue when saying it doesn't matter that you were gluten free for 3 years!
  • Upcoming Events