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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

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Have any of you tried this and has it helped? I have read such conflicting information about it. I feel that it would be very difficult for me to follow but at this point I'm willing to try anything. I know that I am gluten free and free of cross contamination. I am not having any of the brain fog symptoms or other symptoms that I get and my antibody levels are almost at zero. However, I am struggling so much with continued bloating, gas, horrible heartburn, stomach pains, and constipation that lasts 7-10 days before one miserable long morning of it all finally coming out. Over and over. These symptoms have all been getting worse over the past 6 months (been gluten free for almost two years) and I wonder if its just my really poor processed food diet and cleaning it up a bit will help or if I need to do something really drastic like the SCD diet. Any thoughts?

 

* A side note, I have spent the past two years eliminating and testing other intolerances. I eliminated eggs which I absolutely cannot have. I eliminated peanuts but it now seems that the symptoms I thought were being caused by peanuts are back full force even though I have avoided them like the plague. I don't seem to have any different reaction whether I eat dairy or not but the only dairy I eat is cheddar cheese. I have been fully tested for food allergies and have no reactions to any. I believe I eat too much sugar. I am underweight and struggling daily with my self image and self esteem because I feel that I will never be able to gain weight and I fear giving up the few things that I feel are KEEPING some weight on me (gluten free pastas, soda, candy, potatoes). 

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Thankfully neither corn nor soy seem to cause a problem for me. I believe that sugar is a problem and it seems to be the addiction that is hardest for me to kick. 

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Have you tried eliminating candy, or other sources of artificial color and flavour? I don't do well with skittles or nestle kwik, but I did alright with organic candy canes.

Does psyllium fibre help at all?

 

It's possible you have SIBO or a parasite or crohn's or probably a million other isses. I'd consult a doctor, sugar free or not.

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I mostly follow SCD, and since going grain-free I have felt better than ever before.  As far as sugar goes, I use honey, coconut palm sugar, and coconut palm nectar as sweeteners.  After cutting out all of the processed gluten-free foods and making my own grain-free recipes, I have noticed a dramatic change (and I still enjoy things like pancakes, donuts, scones, muffins, desserts)!  Best of luck to you!

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SCD worked miracles for me, but I would slowly cut out different things, one at a time. I'd start with sugar, then soy, corn, other grains, nuts, peanuts and other legumes... All of those are (mostly) illegal on the diet. Unfortunately, I found the diet and strictly adhered to it immediately. I may very well be able to tolerate many of the "illegal" SCD ingredients, but I'll never know because I'm too afraid to upset the great feeling I have right now. I do know, however (After a couple oopses) that sugar is one of the main culprits. Since carbohydrates are complex sugars, my logic is that grains would be just as troublesome for me.

 

Or you can just do what I did if you're too busy to feel sick all the day, cause 'ain't nobody got time for dat.  :P

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SCD is a very good starting point imho and work it to suit yourself later, but it'll be very very close for anyone with leaky gut

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