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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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Mom509

High Ttg Levels But No Symptoms In 3.5 Year Old

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Hi all,

I will also post this in the "supersensitive" section, but could use some help brainstorming, my daughter was diagnosed in 2009 (she was 14 months old) and is now 3.5 years old. In that time, her ttg levels have only once come below the highest level (and even then it was only down to 135). The odd part is that she does not seem to have any symptoms since going gluten free. She has normal bowel movements, non vomiting, not complaining of stomach pain, is growing normally, and has "a terrific looking vitamin panel" according to her GI. We have checked all sources of cross contamination at home and school, have a gluten-free house, gluten-free babysitter (when she is here), never eat out and I make all of her foods. They are suggesting she try a no-processed foods diet next, but I'm wondering if any of you have any other ideas. Im willing to do what i need to do, but it is also getting hard to get my picky eater to eat much of anything!! Is she super sensitive without symptoms? Is there something about the test that is less valid in such a young kid? Any ideas are welcome!!!

Thanks for any help!

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Hi all,

I will also post this in the "supersensitive" section, but could use some help brainstorming, my daughter was diagnosed in 2009 (she was 14 months old) and is now 3.5 years old. In that time, her ttg levels have only once come below the highest level (and even then it was only down to 135). The odd part is that she does not seem to have any symptoms since going gluten free. She has normal bowel movements, non vomiting, not complaining of stomach pain, is growing normally, and has "a terrific looking vitamin panel" according to her GI. We have checked all sources of cross contamination at home and school, have a gluten-free house, gluten-free babysitter (when she is here), never eat out and I make all of her foods. They are suggesting she try a no-processed foods diet next, but I'm wondering if any of you have any other ideas. Im willing to do what i need to do, but it is also getting hard to get my picky eater to eat much of anything!! Is she super sensitive without symptoms? Is there something about the test that is less valid in such a young kid? Any ideas are welcome!!!

Thanks for any help!

Which TtG is elevated, IgA or IgG?  Have the doctors considered inflammatory conditions outside of celiac?  Sometimes TtG is reflective of things NOT celiac...it can be elevated in thyroid and liver conditions for example, as well as diseases like Crohn's. 

 

Have you tried eliminating dairy?  Soy? 

 

I would definitely think about going on a GAPS or SCD type diet...dropping processed foods and dropping grains/sugars altogether might be worth a try.

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Thanks for the follow up- both are elevated, but it's the iga he's worried about. Every blood test they screen her thyroid and liver function, we glucose levels for diabetes and they are all normal. Dropping grains is probably the next step, but even the nutritionist and GI seem a bit unsure of what going on given her otherwise healthy presentation!

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