• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Gluten-Free For 3 Months - Now Symptoms Again?
0

9 posts in this topic

I have been gluten-free for 3 months and I started to feel better after about a month and over the last 2 weeks I've started to feel really sick again.  I don't think I am getting cross-contaminated bc I am being really careful.  The rest of my family (husband and 3 kids) all eat gluten but I wash my hands after handling their food.  I am really, really hoping that I am not also sensitive to dairy.  I drink two smoothies a day as part of my diet plan to lose weight (visalus smoothies) and after cutting out so much already I don't want to cut out dairy. :(  How would I know if I have other sensitivities?  Or is it possible that I am getting cross-contaminated somehow?

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Its always possible to get CC'd in a shared home.

 

Are teh smoothies safe?

0

Share this post


Link to post
Share on other sites

Its always possible to get CC'd in a shared home.

 

Are teh smoothies safe?

I just went and read the ingredients.  The package says gluten-free but it does say it's processed on equipment that is used to process wheat products.  Is that a problem?  How do you avoid being CC'd? I am already doing my own toaster and things like peanut butter.  We make sure counters are wiped and things are cooked separately. I'm not going to forced my kids and husband to go gluten-free just because I have to.

0

Share this post


Link to post
Share on other sites

The smoothie ingredients could be getting cross contaminated at the plant. Are you using a shared blender? That could do it too. Also, many people with gluten issues have trouble with casein, whether permanent or temporary. Maybe try no smoothies for a few days, them try some without the possibility of cross contamination.

0

Share this post


Link to post
Share on other sites

It's more likely the lactose in the milk than the casein.  Just as a test, drink a glass of milk, or some ice cream, and see what happens.  If within an hour you find yourself in the bathroom, you can blame the lactose. :)

0

Share this post


Link to post
Share on other sites
Ads by Google:


To find out if you have other sensitivities, you go to a very simple diet until your symptoms resolve.  This would be food in its basic form of meat, chicken, fish, egg, nuts, fruits, vegetables, good fats/oils, and perhaps one simple clean form of grain, such as plain cooked rice.   Then you would add in ONE ingredient at a time, and see what your reaction to it would be.  Where people screw this up is adding more than one thing in, and then they can't tell what the culprit is.  Or they eat out, and get slammed by a bad restaurant meal.  

 

The is a huge learning curve with gluten free diets, as individuals vary to reactions to cross contamination.

 

That being said, if your return of symptoms coincided with starting to drink these soy-protein smoothies that are sweetened artificially with sucralose (aka "Splenda", which can have its own side effects which include those mimicing celiac symptoms http://www.3fatchicks.com/five-health-side-effects-of-splenda-sucralose/  ) 

the answer is, perhaps, to drink something else. 

0

Share this post


Link to post
Share on other sites

No, I've been drinking these smoothies all along, from day 1.  So it probably isn't that.  I don't know why the symptoms have come back.  I do notice that I react to some products that are labelled gluten free like Enjoy Life cookies or certain kinds of crackers and I can't figure out why.  I am going to try eating more natural foods and less gluten free products and see if that helps.  I also told my husband and kids that they need to be way more careful about crumbs and cleaning up after themselves.

0

Share this post


Link to post
Share on other sites




I'm four months along and recently eliminated dairy from my diet. The experts recommend eliminating dairy for six months while the gut is healing. After six months, most can reintroduce dairy without any problems. I believe that I have a lot of sensitivities to food that the symptoms of gluten were covering up. You know when you have a big pain, you don't feel lesser pain? This is how it seems to be going for me.

Good luck on your journey.

Cali (and missing cheese!)

0

Share this post


Link to post
Share on other sites

I personally don't believe cross-contamination is an issue. I think most often it's a reaction to another food and has nothing to do with contamination. If you have Celiac Disease, it's likely that you have secondary allergies to foods other than gluten. I experienced the same thing about a month of being gluten-free and vegan--I realized I was sensitive to all grains in addition to gluten and lactose/casein. I'd suggest trying to eliminate certain food groups for at least 2-3 weeks at a time (the longer the better) and see how it makes you feel. After that, you can try to slowly reintroduce foods to see how you react. It's likely that you're sensitive to either dairy or grains.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      107,330
    • Total Posts
      935,519
  • Member Statistics

    • Total Members
      64,990
    • Most Online
      3,093

    Newest Member
    Monique laroche
    Joined
  • Popular Now

  • Topics

  • Posts

    • Hey guys!  I have been suffering from NCGS for almost a year, and have recently been diagnosed with IBS.  Although I was finally getting used to the gluten free routine, this has been really hard to get used to.  I'm currently having a major flare, so I'm off pretty much all fodmaps (although mainly beans, dairy, nuts, and gluten). Additionally, my stomach can't handle more than a 1/2 cup portion per meal, and even then, I'll occasionally have pain after eating.  Does anybody have simple, fast meals that they could share? As if this isn't restrictive enough, I'm also allergic to eggs, so I'm pretty much living off smoothies, rice, and allergy free chicken sandwiches.  I know this is pretty restrictive, but I thought that if anybody could help, it would be you guys.  Thanks!  Claire 
    • Great advice everyone! So the envirokids gorillla munch by natures path is safe?. As for cinnamon Chex is that ok too? 
    • Alright, so I'm 3 months into being gluten free, And in terms of how I feel, the "best fit" line on the graph would be a very slow incline, which is good, but day to day, I would mark as all over the place. I don't understand. I pretty much do the same things every day, and eat the same things every day at around the same times, even in the same order. I cook all my own food and am super careful about CC. I even have my own pans, cutting boards, even my own sponge for washing my own aforementioned kitchen supplies. What I eat is very limited. I don't even do dairy, grains, or added sugar. (for now) Yesterday I actually felt okay. The brain fog was fairly thin, I felt more based in reality, rather than like I was in the matrix, on drugs, or in a dream. Today I'm back in the matrix again. I can't think, I have anxiety, I'm overly emotional, short fused, angry, and scared of my own shadow. This up and down for no apparent reason stuff seems to be the norm for me. Is this unheard of or somewhat common? It seems like how I feel is completely out of my control, and the disease just does whatever it wants. I know 3 months isn't that long in the usual recovery time frame, but I want to get off this ride. I just need to know if it's normal to be so up and down day to day during the recovery, or if I should give in to my assumed unfounded panic attacks and be worried. As a side note, I'd much rather have the typical gastro issues usually associated with celiac. Blowing chunks and crapping my pants constantly would be way easier for me to deal with than all the neurological problems mine manifested as. Ugh.
    • Ha, Ha!!!!!!  If I wouldn't get in trouble for practicing without a license, I would!     I get it because that is what they did to me for years.  I never had acid reflux but had enough other symptoms that all screamed Celiac but no.........they told me that my severe stomach pain might be acid reflux so take this script and go away. They never even tried to figure it out past the 10 minutes allowed for the appointment. I'll never forget one doctor that I pushed back on and told her I was not there for meds but to find out what was actually wrong and she got so mad she left the room and never came back. All they kept doing was trying to shove pills down my throat.   I am guessing that the procedure is the one where they tighten the sphincter muscle at the entrance to your stomach? I know so many people who had that done because it's become so common to push that if the meds aren't working well. Follow the money........ If acid reflux becomes that bad, then you have to start looking at food, period.
    • Here's a link that discusses Mast Cell Activation Syndrome (histamine intolerance) and recommended tests.  http://www.thepatientceliac.com/tag/mast-cell-activation-syndrome/ This article explains how POTS is related to MCAS. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3545645/#!po=35.0000 "In another clinical situation, Shibao et al. and colleagues studied a small cohort of patients who had evidence of mast cell activation as evidenced by elevated urine levels of N-methylhistamine after flushing episodes and who had orthostatic intolerance (69). Detailed studies revealed a profound hyperadrenergic response to standing characterized by tachycardia and hypertension consistent with postural orthostatic tachycardia syndrome, or POTS. This phenomenon is felt to be due the release of vasoactive mediators such as histamine that act locally on sympathetic nerves; autonomic function was assessed to be normal in these patients. The authors have used methyldopa, an alpha-adrenergic agonist, with some success in these patients along with standard medications to block mast cell mediators. They caution against the use of beta-blockers, which may exacerbate mast cell activation."   Vitamin and mineral deficiencies often occur with Celiac Disease.  Celiac Disease causes malabsorption which results in malnutrition.  It's important to correct nutritional deficiencies after a Celiac Crisis like you endured with your gluten challenge.   Vitamin D is so important!  Vitamin D tells the mast cells to turn off histamine production.   https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4154631/ Vitamins C and E and B6 help, too. https://www.ncbi.nlm.nih.gov/pubmed/21244748 The eight B vitamins are water soluble and need to be replenished every day.  Not enough B vitamins can make one grouchy (or seemingly an alien).  Just watch "Naked and Afraid" on Discovery channel.  The contestants who don't get protein (chock full of B vitamins) get grouchy, depressed, and irritable.  Some contestants have to be removed because their personality changes to the point they become dangerous.  This is a drastic example of vitamin deficiencies that develop over a short period of time, three weeks.  Now imagine having a subclinical deficiency over a long period and a slower health disintegration.   I lost my faith in doctors when my deficiency diseases were not recognized and addressed.  So, I used my food journal and the low histamine diet guidelines to get my inflammation down and my vitamins and minerals up.  Hope this helps.      
  • Upcoming Events