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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Here's My "i Glutened Myself Through Sheer Stupidity" Story...
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7 posts in this topic

To make any newbies feel better about something they might have done to themselves. I've been gluten free for about two years now. You'd think I would know better. So, we have a soup dinner at my church every month. Three people bring soup (small church), plus we have some desserts and drinks. Simple. We only started this a few months ago. I've been bringing my own dinner. This past Sunday one of the soups was clam chowder, which is one of my favorites. Here's the conversation:

 

Me: Susie [fake name] could you tell me what's in your clam chowder?

Susie: Clams, potatoes, milk, onions, salt, pepper.

Me: No broth?

Susie: No, no broth.

Me: Anything else that could possibly have wheat in it?

Susie: No, I made it totally from scratch, those are the only ingredients.

 

So I had a bowl. Later that evening before we went home Susie came up to me and said "oh, I just remembered, I put some flour in there to thicken it. Will that be a problem?"

Me: :blink: and <_< and :angry: and :ph34r:

 

Of course I was sick on Monday. (I get the intestinal stuff, plus a really bad migraine.)

 

I'm mad at her but mostly mad at myself. She gets 1% of the mad, I get 99%. sigh. I should know better! I DO know better. Never again. Next month I've signed up to make soup. :)

 

 

 

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To make any newbies feel better about something they might have done to themselves. I've been gluten free for about two years now. You'd think I would know better. So, we have a soup dinner at my church every month. Three people bring soup (small church), plus we have some desserts and drinks. Simple. We only started this a few months ago. I've been bringing my own dinner. This past Sunday one of the soups was clam chowder, which is one of my favorites. Here's the conversation:

 

Me: Susie [fake name] could you tell me what's in your clam chowder?

Susie: Clams, potatoes, milk, onions, salt, pepper.

Me: No broth?

Susie: No, no broth.

Me: Anything else that could possibly have wheat in it?

Susie: No, I made it totally from scratch, those are the only ingredients.

 

So I had a bowl. Later that evening before we went home Susie came up to me and said "oh, I just remembered, I put some flour in there to thicken it. Will that be a problem?"

Me: :blink: and <_< and :angry: and :ph34r:

 

Of course I was sick on Monday. (I get the intestinal stuff, plus a really bad migraine.)

 

I'm mad at her but mostly mad at myself. She gets 1% of the mad, I get 99%. sigh. I should know better! I DO know better. Never again. Next month I've signed up to make soup. :)

Sounds more like someone else glutening you, than you glutening yourself.  This is the kind of thing that has almost entirely prevented me from going out to eat.  People do not seem to realise what gluten actually is.  I went to a restaurant that knew I was coeliac and was offered cous-cous as an alternative starter until I pointed out that cous-cous was made from wheat.  Fortunately we know the chef and he came out of the kitchen to tell me what I could have. 

 

Good luck with next month's meal! (At least you know you can have the soup ;-)  )

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To make any newbies feel better about something they might have done to themselves. I've been gluten free for about two years now. You'd think I would know better. So, we have a soup dinner at my church every month. Three people bring soup (small church), plus we have some desserts and drinks. Simple. We only started this a few months ago. I've been bringing my own dinner. This past Sunday one of the soups was clam chowder, which is one of my favorites. Here's the conversation:

 

Me: Susie [fake name] could you tell me what's in your clam chowder?

Susie: Clams, potatoes, milk, onions, salt, pepper.

Me: No broth?

Susie: No, no broth.

Me: Anything else that could possibly have wheat in it?

Susie: No, I made it totally from scratch, those are the only ingredients.

 

So I had a bowl. Later that evening before we went home Susie came up to me and said "oh, I just remembered, I put some flour in there to thicken it. Will that be a problem?"

Me: :blink: and <_< and :angry: and :ph34r:

 

Of course I was sick on Monday. (I get the intestinal stuff, plus a really bad migraine.)

 

I'm mad at her but mostly mad at myself. She gets 1% of the mad, I get 99%. sigh. I should know better! I DO know better. Never again. Next month I've signed up to make soup. :)

Oh man!! That totally stinks, I bet she felt bad!

 

The week I got diagnosed I had a class at church and they offered dinner. My pastor's wife told me that the lady that cooked the meal made it entirely gluten free just for me. I felt bad but told her I'd have to pass. This lady made the meal in her home and their family isn't gluten free. I felt like a total jerk and really wanted to eat it just to be nice but couldn't risk CC. It was a sticky situation! :unsure:

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Oh man!! That totally stinks, I bet she felt bad!

The week I got diagnosed I had a class at church and they offered dinner. My pastor's wife told me that the lady that cooked the meal made it entirely gluten free just for me. I felt bad but told her I'd have to pass. This lady made the meal in her home and their family isn't gluten free. I felt like a total jerk and really wanted to eat it just to be nice but couldn't risk CC. It was a sticky situation! :unsure:

That IS a difficult thing, when people mean well and to be safe you just have to say no. Sometimes it would be safe, other times no. But there's no way for YOU to know.

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I hear you on that..my mother in law cooks for us every Monday. She is really truing to stick to gluten free. She made stew the other night, said no gluten in it but I was sick hours after eating it. I got sick on her food last week too.

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Oh man, what a sad story! And I've done the same thing too many times... Don't beat up on yourself for having a "normal" moment, you're going through enough misery!

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In order to eat anyone else's cooking, I feel like I have to interrogate them at gunpoint to get a full list of ingredients (now with soy and dairy on my no list, this is extra important).

I've had more than a few stupid glutening moments. Most recent was this xmas. My stepbrother cooked a turducken (overkill) for dinner and I asked him, is it ok for us celiacs (ie: me and my mom). sure, he says. (I should have pulled out the big guns at that moment)

instead, while happily chewing away on my chicken/duck and tasting the familiar but alarming texture of breadiness, I ask, Um, is there stuffing in this? Uh, yeah, of course. 

Thanks a lot bro.

Thankfully my mom was smart and took the very outside of the turkey. I don't think she's quite as sensitive as me though.

The glutening didn't really kick in for a few days, but man was I sick! No fun at all.

So really, 40% mad at him, 60% mad at myself for being stupid enough to believe him. Never again!

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