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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Transportation Issues After Egd...ideas Needed
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this post is the opposite of my screen name, but it's just been a day...

 

this post makes me sad even writing it  :(   I am finally scheduled for an EGD on March 6th in which I'll be put to sleep. All of my friends that I would feel comfortable asking to take me home after the procedure are working or are unable to do it so...I'm out of options.  My parents live over 2 hours away, and because they don't think it's an emergency...my Dad even asked if I really needed to get it done :angry:, they said they can't take off spur of the moment to come help.  

 

Maybe I'm being selfish, but I've waited a long time already, and to finally feel like I'm getting somewhere just to not have anyone able to pick me up from the procedure makes me feel terrible and alone.  Moving the EGD would move my follow-up appointment even later, and as of right now it's already scheduled for April 11th.  I've read stuff about calling the hospital and seeing if they have any programs that provide transportation.  has anybody done this?  any other suggestions?  

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Call the Gi/ op surgery that is doing your procedure and see if they have suggestions. You might also try social work at the hospital. Or a taxi. After anesthesia, you aren't supposed to drive for 24 hours.

Do you belong to a church? Sometimes they have people to help.

That's sad that your parents don't think it's important.

A day or two before, make some nice chicken and rice or something easy to re- heat and eat. When you get home, just go straight back to sleep for a couple of hours. You will feel better when you wake.

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How frustrating for you!

 

I know my hospital won't let you take a taxi, which I think is ridiculous. I agree with the suggestions to ask the hospital/clinic staff....

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Thought of something else.

Do you have a local Celiac support group?  Maybe someone would pick you up.

I think your best bet is to ask the GIs office, the outpatient section and the volunteer dept ( if its a hospital). You could even call the fire station and offer to pay an off duty fire fighter for a ride. The ones here do things like that for free for kids and elderly.

A house sitting service?

If you live in the Kansas City area, I would take you.

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Did you have positive blood work? If you did you have the option of just saying no to the endo as there is the possibility of a false negative with  them anyway. If your blood tests were positive you need the diet no matter what the endo results. If you do go for the endo keep in mind you don't need to wait for the results before you go gluten free. You should go gluten free after the endo is done. Your response to the diet is the best test there is anyway.

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I am sad too.  I do hope that it will work out for you.  I used to be in a volunteer organization that would give such rides.  It was local in Central MN.  A hospital should know of such an agency if it exists where you are.  A friend of mine has a medical driving business.  You can pay such a business to drive you.  My friend comes and goes from hospitals frequently in their business.

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thank you for all of your ideas and replies!!  just having those replies and ideas to go on made me feel so much better :) this was a long week, but everything has worked out.  I was looking into volunteer organizations and car services, but thankfully my Mom has come around and will be making the drive down to take me.  I've only been sedated once, when I got my wisdom teeth out, and I got sick afterwards.  now just hoping to get some more answers from the EGD!  

 

Call the Gi/ op surgery that is doing your procedure and see if they have suggestions. You might also try social work at the hospital. Or a taxi. After anesthesia, you aren't supposed to drive for 24 hours.

Do you belong to a church? Sometimes they have people to help.

That's sad that your parents don't think it's important.

A day or two before, make some nice chicken and rice or something easy to re- heat and eat. When you get home, just go straight back to sleep for a couple of hours. You will feel better when you wake.

I will definitely make something easy on the stomach ahead of time.  great idea!

 

Did you have positive blood work? If you did you have the option of just saying no to the endo as there is the possibility of a false negative with  them anyway. If your blood tests were positive you need the diet no matter what the endo results. If you do go for the endo keep in mind you don't need to wait for the results before you go gluten free. You should go gluten free after the endo is done. Your response to the diet is the best test there is anyway.

 

I had two celiac panels done with the following tests ordered:

DGP igA and igG

ttg igA and igG

EMA

 

Everything was negative, except a strong positive on the DGP igG on both panels drawn.

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I am so glad your mom has made herself available to help you!  That is a great comfort!

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Best of luck to you.  My son, who ended up having a positive biopsy, only tested positive on his IgG test - everything else was normal.  Glad you are continuing testing.

 

At our hospital, you can only take a cab home if you have another responsible adult with you.  I was completely loopy after mine - it would have been impossible for me to give the cab driver directions or get safely into my house by myself.  It makes sense that you wouldn't want to trust this to a stranger.

 

Cara

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back from my EGD, and now resting for the day :)   GI doctor took 8 biopsies, and I found out I have GERD and a hiatal hernia.  I will find out what my biopsy results are in a few weeks.  

 

Transportation wise...everything worked out , and now hoping that my Mom gets back safely to Pennsylvania before it starts snowing heavily again.  Meanwhile here in Delaware it's rainy with snow on its way tonight!

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