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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Scalloping And Redness Seen During Endoscopy, Moderate Positive Ttg--Has Anyone's Child Had This And Gotten Negative Biopsy Results?
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12 posts in this topic

I guess the title of this thread says it all, lol. I am not very good at waiting for results, and our follow up test is almost a month away :(

Just wondering what the likelihood of getting a negative biopsy result is in a 6 year old with this bloodwork along with visible changes during the endoscopy?

He has been gluten free since Wednesday, just curious of your experiences....

Thanks :)

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I guess the title of this thread says it all, lol. I am not very good at waiting for results, and our follow up test is almost a month away :(

Just wondering what the likelihood of getting a negative biopsy result is in a 6 year old with this bloodwork along with visible changes during the endoscopy?

He has been gluten free since Wednesday, just curious of your experiences....

Thanks :)

 

 

I think if the damage is bad enough that they can see it, the biopsies will have to be positive for Celiac.  The villa are the first to be damaged and that is microscopic damage. 

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I'm guessing that you will get a positive result back.  The damage would need to be pretty extensive for it to be visible.  If for some reason it does come back negative, don't assume he doesn't have celiac.  A positive blood test is a positive blood test.

 

Is he feeling better gluten free?  Sometimes it gets worse before it gets better.

 

Cara

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Thank you for your responses :)

He has been gluten free since Wednesday and I can already see a difference in him. He has more colour in his cheeks, his face sees fuller, he has been eating a lot more, and the scale has gone up 3 pounds!! Since Wednesday!! I KNOW that he has Celiac Disease, I guess I am just so worried about not having a definitive diagnosis that I am graping for other people's experiences.....

Having to wait a whole month for results is going to make me crazy!!

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A month is crazy -- try calling the doctor's office after a week -- my path is usually back within that time period.  Make sure you ask for written copies of both the doctor's procedure report and the pathology report!

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Argh.. the Dr said she should have the results approx 2 weeks from the scope.... I will call her then!

As for the time being.... I am slowly going crazy, 1, 2, 3, 4, 5, 6 switch!

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Argh.. the Dr said she should have the results approx 2 weeks from the scope.... I will call her then!

As for the time being.... I am slowly going crazy, 1, 2, 3, 4, 5, 6 switch!

 

Mine were about 3 days.  The docs office isn't processing them well!

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Waiting, waiting, waiting, lol. I called the Dr's office last Friday and left a message for someone to call me back. A nurse called me back on Monday and apparently the Dr is on vacation until next Tuesday. She told me to call next Tuesday and she would probably give me the results over the phone.

Things are going well here otherwise though. I just watched my son eat 3 slices of gluten free pizza when it has always been a struggle for him to eat one slice of normal pizza without curling up in a ball afterwards! And no more complaining about belly aches after eating! The dark circle seem to have faded from below his eyes somewhat, and his cheeks have colour in them again. 2 weeks and 1 day gluten free and already such a change in his physical ailments and appearance! Such a great feeling when we have spent the past two years watching him waste away and become so pale and ashen.....

I just hope to goodness that the biopsy results come back positive so that we have 100% proof.... I am the worrying kind, and negative results wouldn't convince me to change his diet, but I would always worry that there was something else wrong that the Dr missed. Send some good vibe out into the universe for us if you get the chance if you can! Xo!

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Results are in and he tested......POSITIVE!!!! So happy to have an answer now!!! I am not excited that he has Celiac Disease, but it could be a lot worse. Counting our blessings! Thank you for all of your support through the testing process, and putting up with my craziness! Xoxo! You guys are wonderful!! Thank you!!!

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Results are in and he tested......POSITIVE!!!! So happy to have an answer now!!! I am not excited that he has Celiac Disease, but it could be a lot worse. Counting our blessings! Thank you for all of your support through the testing process, and putting up with my craziness! Xoxo! You guys are wonderful!! Thank you!!!

 

This is reason to be happy!   Testing is such a pain.

 

Even better news is the improvement you have already seen.

 

I am over-the-moon happy for your family :D

 

Let us know if you have any questions.

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I can totally understand you being happy and excited about him having a positive test result.  It means you can start getting him healthy.  In the first few months you will be BOMBARDED with people giving you advice about his diet ("my neighbor cured herself by eating a little bit of wheat every day . . ").  Get ready to just smile and nod while you know better.  I was also very surprised by the skeptics who simply didn't believe that wheat could make him sick and that I was just trying to control everything by controlling his diet.  People are weird.

 

Be sure to get the whole family tested - I found out I was positive after my son was diagnosed.  

 

Cara

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