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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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kittty

What Causes Sinus/tmj Pain?

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I have a follow-up appointment with my doctor in a few weeks. She doesn't know much about celiac, so every time I see her I bring a few little factoids that I've picked up (mainly from this site) and some articles from Medline. At first I thought she would be offended by this, but she actually appreciates it. The fact that she's willing to learn and listen to me makes her a better doc than any of the previous ones.

 

Before cutting out gluten I had intense sinus pain and TMJ. She sent me for CAT scans, which can back negative. I also had my wisdom teeth removed in case that would help, and it didn't. She's a bit dubious about the sinus pain/TMJ link to celiac, but aside from explaining to her that other people have the same symptoms, I'm not sure exactly why.

 

Does anyone know the technical reason why celiac causes these kinds of facial pain?

 

Thanks!

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I don't know the "technical" reason but my dentist(s) and orthodontist told me my lower jaw is arthritic, and kept growing past the time it should, relative to the fixed upper jaw, so it is pressing outwards on the teeth in the upper jaw, and that is also why I can't open my mouth quite as far as a normal person.  I know when my adult teeth came in it was way too crowded in there, and before they tried to fix this with the braces, I had to have both the wisdom teeth and 4 smaller bicuspids removed, then they tried to change the shape of my upper palate first (as an adult).  I read somewhere that hormones and growth rate can be effected by lack of nutrition and that affects when different body parts mature, so a lot of people can have teeth crowding, and smaller jaws, I wish I had bookmarked that.  Things that are not aligned perfectly tend to get a lot of pressure on them, also, I suspect it can affect saliva production to get glutened, but haven't read any studies on this. 

 

Sinuses, I don't know the technical explanation either, but everyone knows certain foods make them "snottier" than normal.  If I want to make my nose run, all I have to do is eat the wrong thing and go outside when it's cooler and exercise.   :rolleyes: It turns into a multiple kleenex event.   When I was younger, I could not figure out why most other people's noses did not do this.  I remember taking PE classes  outdoors, and always having to use tissues.  Now, my nose sort of behaves itself, if I'm eating properly, allowing for there is still a lot of pollen at certain times of year.    Perhaps the excess snot produced is more vulnerable to getting infections overall, if there is an ongoing auto immune attack, coinciding with decreased moisture being produced, and changes in temperature.  Wonder if being low in certain vitamins or minerals contributes...   Infected, trapped snot in sinuses = headache.  Mouth? Again, I know I have dry mouth because the dentists tell me this, even tho the not very cognizant rheumies I have seen try to tell me this is "not" sjogrens, to which I think "talk to the dental hand"  and get back with me. :P  :wacko:   Also had a nurse explain to me that with my drier than normal mucous membranes, I should never mess around with a chest cold but be seen soon, also, I should try not to take antihistamines for it if I could stand it, as that also would tend to make it worse getting the proper drainage, and they wanted me to cough "productively,"  and it would be better to get the nose running to get rid of it sooner.  

 

I get much less sick, gluten free, knock on wood.  

 

You could try searching around Pub Med, I found one study from 2002 where the researchers tried putting gliadin directly into the noses of the patients to see what would happen,  :wacko:  and there was an inflammatory response from the nasal mucosa.  While this isn't exactly what you wanted, because we normally don't snort gluten, but eat it accidentally, it is sort of funny that somebody, somewhere, thought of trying it to see what would happen, since we've had some strong discussions about topical applications of gluten in toiletries and cosmetics in the past on this board.  http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1906320/

 

If the gut being inflamed can cause snot nose, then we have the answer.  And here you go:  Chronic sinonasal disease in patients with inflammatory bowel disease:

http://www.ncbi.nlm.nih.gov/pubmed/12751702

48% of patients with chronic gut problems have sinus problems, too.  Aha!

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Hi Kitty

 

I also have trouble with my sinuses, with pressure high in my sinus cavities and pressure/pain in my left ear. It also seems to cause mild vertigo-like symtoms (lightheaded, feeling like the room is tilting slightly), and I have constant tinnitus in that ear. A couple years ago it was really bad and I was SURE there was something up with my inner ear. Got all kinds of tests done, MRI, balance, the whole bit, and no inner ear problems showed up. The ENT told me to see a neurologist (ie: you're crazy). So I looked at my diet.

I found out that for sinus/inner ear problems, salt and dairy can be problems. So I cut down to minimal salt. That helped a lot actually, and then cut back on (and eventually cut out) dairy. MUCH better. It improved even more after I cut out soy. If I eat anything very salty, or have more than a tiny bit of dairy, or any soy, or get glutened, it comes back. Pressure in my cheeks/sinus headache, and it almost feels like liquid is draining out of my ear even though it's not. So weird!

 

This is a long way of saying YES! It could definitely be a gluten thing. The technical reason, I have no idea, but everything's connected.

 

Takala, I had no idea tight teeth was a celiac thing! Because that is definitely me. I thought after the wisdom teeth came out everything would slide into place all nice. No such luck there. But it doesn't seem to be causing pain or problems (aside from being a pain in the ass to floss), but that could be a sign that I've had celiac a lot longer than I thought!

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Sinus can be related to dairy.  I had chronic sinus pain and shoulder/hip pain along my right hand side until I cut out the dairy.  I also have an IgG positive test to casein in dairy so it's definitely the culprit.  Other things like soya, eggs, white fish etc can cause similar reactions.  Apparently all to do with the bonds in the sections of the gut lining... ours are leaky.

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