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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Three Months gluten-free, Cramping Again
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1 post in this topic

Hello everybody

 

I'm lactose-intolerant (milk free since last June) and have been a confirmed celiac since the beginning of January but I stopped eating gluten on December 3rd. Generally speaking I've been much better especially in terms of energy, mental clarity, but I did have some bad days. However in the last three weeks I've had bad symptoms again pretty much all the time: light diarroeha followed by glutening symptoms (all the old ones, including anxiety, extreme fatigue etc), and in the last two days also stomach cramping.

 

Now, the "glutening" episodes I blamed on:

 

"a fried artichoke in a restaurant: stupid me

" a dish of pasta in the oven made with de-lactosate mozzarella and a white sauce made with de-lactosed milk: I'm too sensitive for this stuff in large quantities

"and a mysterious glutening in the following days, either because of a candied ginger piece (coming from Thailand, may have been the culprit) or on some "madeleine" Gluten Free by a commercial baker, supposedly with no milk but produced in a plant using milk products. So, either gluten, or milk...

 

Then three days ago I was feeling better (although not WELL) and I tried another madeleine at night: yesterday I woke up with diarroha and I've been cramping since. My colon is spasming just like it used to do before I realised I was lactose intolerant.

 

Frankly, I'm fed up. Meanwhile I've been to an acupuncturist which might help generally my wellbeing but is not going to cure being celiac, I know that and he knows that.

 

I'm not exactly having diarroha - just a very frequent stimulus to "go" and small, light, frail stools. (God, sorry to be so graphic). On the other hand this last episode is not a glutening: I'm alert and apart from the cramps I feel fairly well; still medium tired, but basically OK.

 

I'm doing a whole battery of new tests this coming week for diabetes, tyroid antibodies and some more: I don't think it's any of these but better clear them out..

 

Possibly a series of assault on my poor guts are making me pay a price. Possibly I'm intolerant to something else, and I have started a food diary.

 

Possibly there are some sources of gluten contamination around and I'm much more sensitive than I thought. How the hell did I manage to actually EAT gluten up until December without ending in the ER, I wonder?

 

Now I ask for advice... What do you think?

-Can eating something that possibly came into contact with milk make me have spasm for two full days?

- Should I replace all my pans and pots, some of which are fairly scratched? I live alone and nobody else has been cooking with my stuff which has all been properly dishwashed...

- I've been checking my shampoos and soaps and it is not always easy to understand whether they DO have dangerous stuff in, although I've been checking the ingredients on the net.

- Can a gluten free industrial cake be dangerous? Ingredients include glycerol, rapeseed oil, some weird things for leavening... and of course the plant uses milk.

 

Doctors, as usual, are not particularly useful, apart from observing that "it's to soon to wonder whether you might be one of the few unfortunate people who are refractary to diet", which is not very consoling...

 

thanks you guys

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