Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Race For Fix To Celiac Disease Underway In Boston - Boston Globe


Scott Adams

Recommended Posts

Scott Adams Grand Master

Open Original Shared Link

Open Original Shared Link

Boston Globe

An autoimmune disease triggered by gluten proteins in wheat, barley, and rye, celiac disease affects some 3 million Americans. Untreated, it can destroy digestive tract tissue and can lead to anemia, osteoporosis, infertility, neurological dysfunction ...

Open Original Shared Link

Open Original Shared Link

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Takala Enthusiast

Unfortunately the Boston Globe website will not let me return to the full page access when I tried to, after checking to see if anyone left any comments under that story.  :angry:   There is not yet a cached version I can get to from a search engine. <_<

 

The title is awful.  This has nothing to do with making bread any different, or "safe," it is about creating a pharmaceutical product.

  

More unfortunately, Dr. Anderson, the vaccine developer, in the story is quoted as claiming a gluten free diet is less nutritious than a regular one.  At the same time he says patients "struggle" with gluten free diet....  these disease researchers who are "hooked on wheat" do us NO favors when they criticize the only true, effective treatment that is available for celiac disease at the current time, a real gluten free diet, and the only effective treatment that will be available for the MANY MORE millions of gluten intolerants who will not be getting a celiac diagnosis.  If they were advocating right now in the present for better gluten free food labeling standards, (and that doesn't mean telling us processed codex wheat starch at 20ppm is "celiac safe," :angry: )  and better manufacturing processes to avoid gluten cross contamination in American foods, they could be positively effecting and making healthier a high number of sick people. 

 

Assuming that the United States is too far gone to be able to guarantee genetic purity in foods in a future that includes a lot of imports, so we must now invent pills and vaccines for potentially just a third of the population to be able to eat the grain products of the future, is truly mind- boggling.  Couple this mindthink that a pill or vaccine can fix cross contamination, with the ongoing attacks on organic agriculture AND the necessity of gluten free for some, by segments of the so- called "science community" in cahoots with the GMO lobby, and it is a real tribute to the total lack of common sense when it comes to the practical application of "progress."   We don't even have the luxury of FDA rules that Pharmaceutical MEDICATIONS must disclose allergens or gluten -  how messed up is THAT ?  :ph34r:

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,212
    • Most Online (within 30 mins)
      7,748

    DaniellePaxton
    Newest Member
    DaniellePaxton
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      I think sometimes the pain described here can be a result of a sort of 'perfect storm' of contributing factors.  Recently I had an appalling bout of lower back pain, lower burning gut pain and what felt like cramps.  I then started to think about what could have caused it and I realised it was several things that had set it off: I'd been carrying heavy luggage (back strain); I had been sitting down in a car for too long and wearing a tight belt (I have pudendal nerve issues and sacroiliac issues and this exacerbates the pain), and I had bloating and burning pain in my colon caused by eating too much soy, latte and caffeine, I guess putting further pressure in the lower abdomen.  I had this same pain prior to my diagnosis and a couple of years post-diagnosis, I'd quite forgotten how unpleasant it was. 
    • cristiana
      HI @Kirbyqueen That's great news your insurance will be kicking in soon.  Sorry to see that you have been dealing with this for six months now, but I do hope you have managed to find some relief with some of the suggestions in the meantime. Perhaps come back and let us know what the doctor says. Cristiana
    • Scott Adams
      I agree, and hopefully your doctor will contact you soon about the next step, which will likely be an endoscopy to confirm your diagnosis. Do you have celiac disease symptoms? 
    • Kirbyqueen
      Still dealing with this rash on my legs. I've eliminated ringworm (through use of topical ointments). And I also know it's not shingles, as I've never had chickenpox before and I'm still fairly young. Through a lot of online research, I'm leaning more towards dermatitis herpetiformis, eczema, or psoriasis. I've actually got a doctor's appointment in May (finally got some insurance) and I'm going to bring it up then. I'm feeling really hopeful and excited to maybe be getting some relief soon.   Big thanks to everyone for the suggestions and positive thoughts!
    • trents
      You have three celiac disease specific antibody tests that are positive: Endomysial  Antibody IGA (aka, EMA), tTG-IGA, and tTG_IGG. Furthermore, your Immunoglobulin A at 55 is low, meaning you are IGA deficient. This one is not an antibody test for celaic disease per se but a measure of "total IGA" levels and if low (yours is low) it can suppress the individual antibody scores and even cause false negatives. So, yes, it definitely looks like you have celiac disease.   Do not yet begin a gluten free diet as your physician may refer you to a GI doc for an endoscopy/biopsy of the small bowel lining for confirmation of the antibody testing. This may help:   
×
×
  • Create New...