Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Sore Lymph Nodes?


PRG

Recommended Posts

PRG Newbie

This is my first post to this community, as I was diagnosed only two and a half months ago with celiac disease, confirmed by all of the recommended tests. I was a mess at the time--anemia, weight loss, you name it--but since starting a gluten-free diet, I've been making progress with some bumps along the way. Then, seemingly out of nowhere, I got sore lymph nodes. First in my groin for a few days, then in my neck (but the pain in the groin ended). The swelling and pain aren't bad, but are enough to make me notice them. No fever, chills, loss of appetite, or anything else that suggests something bad. I'm wondering if it's a reaction to going gluten free? My body normalizing itself? Does this sound familiar? I'd rather not freak myself out with all of the potential diseases they could signal.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GF Lover Rising Star

The lymph node system is like a sewer system.  They take all of the diseased, infection, toxins etc. And carry them out of your system safely.   Some of the major ares of hard working nodes are under the jaw, groin, arm pits and a hugh one in the center of your chest toward the back.  Inflammation and pain is a sigh that the particular node is working extra hard to break nasty stuff down.  

 

If a particular node stays inflamed and there is alot of pain you may need to see a doctor at some point.  A swollen node is a good indicator that your body is fighting something off, immune related, so it is telling you to take it easy for a bit.

 

Good luck, 

 

Colleen 

Link to comment
Share on other sites
anonymous-123 Rookie

funny you should mention this......i used to get that in the same exact areas.  i am not diagnosed by a dr as having celiac (negative blood results), but i believe that i definitely have some sort of intolerance as my symptoms indicate gluten/wheat intolerance.  in any case, after changing my diet, i no longer get the swollen lymph nodes.  i did have my dr check me and i was fine.  you should do the same just to be on the safe side.  otherwise maybe it will get better soon after being gluten free for some time.  good luck to you.

Link to comment
Share on other sites
  • 2 weeks later...
foam Apprentice

If those nodes stay swollen you want to get blood tests for starters and look for any anomalies. I've got swollen nodes and one especailly large one the size of an egg (on average and sometimes the size of a baseball) in my neck. If you ever see any enlarged lymph node in your neck that doesn't respond well to an anti biotic trial you want to get a needle biopsy on it straight away. If you did for example have hodgkins (doubt it) you wont have any classic symptoms until it's spread quite far, you don't usually get itching and night sweats until there's a tumour in your chest so big that you start coughing because your lungs don't fit in there any more.. One swollen node is very very early stuff and that's when you want to catch it. Because I have a condition that looks similar and tests similar so I've been through all the testing for Hodgkins (twice) and negative both times but they are some scary tests. In some regards being a badly damaged Celiac is a much harder condition to recover from than Hodgkins but the point is. Lymph nodes don't enlarge for no reason but it is possible if you have a damaged gut to be simply inflammation from that and I expect that will be the case with you. I'm always looking to see if anyone in the street has a large node they haven't noticed but don't see them.. I do however often see people with hashimotos walking around or on TV I wonder how many of them don't know.

Link to comment
Share on other sites
designerstubble Enthusiast

This is my first post to this community, as I was diagnosed only two and a half months ago with celiac disease, confirmed by all of the recommended tests. I was a mess at the time--anemia, weight loss, you name it--but since starting a gluten-free diet, I've been making progress with some bumps along the way. Then, seemingly out of nowhere, I got sore lymph nodes. First in my groin for a few days, then in my neck (but the pain in the groin ended). The swelling and pain aren't bad, but are enough to make me notice them. No fever, chills, loss of appetite, or anything else that suggests something bad. I'm wondering if it's a reaction to going gluten free? My body normalizing itself? Does this sound familiar? I'd rather not freak myself out with all of the potential diseases they could signal.

Hello

Just wanted to reply to you as you described exactly what I went through 3-4 months ago.

I freaked out too, worried, scared myself stupid on google, but all the time knew deep down inside it was probably my body overloaded with toxins and just trying to flush the rubbish out! My symptoms lasted a few weeks and slowly disappeared over another week... Then gone!

The body is a wonderful thing really. Honestly I have has some of the strangest symptoms ever and most of them after being gluten free??!!, but I think I am very body aware! Every little pinch I feel!

Hope you're feeling better.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,071
    • Most Online (within 30 mins)
      7,748

    Jannette
    Newest Member
    Jannette
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Fluka66
      Thank you again for your reply and comments which I have read carefully as I appreciate any input at this stage. I'm tending to listen to what my body wants me to do, having been in agony for many years any respite has been welcome and avoiding all wheat and lactose has thankfully brought this.  When in pain before I was seen by a number of gynacologists as I had 22 fibroids and had an operation 13 years ago to shrink them . However the pain remained and intensified to the point over the years where I began passing out. I was in and out of a&e during covid when waiting rooms where empty. My present diet is the only thing that's given me any hope for the future. As I say I had never heard of celiac disease before starting so I guess had this not come up in a conversation I would just have carried on. It was the swollen lymph node that sent me to a boots pharmacist who immediately sent me to a&e where a Dr asked questions prescribed antibiotics and then back to my GP. I'm now waiting for my hospital appointment . Hope this answers your question. I found out more about the disease because I googled something I wouldn't normally do, it did shed light on the disease but I also read some things that this disease can do. On good days I actually hope I haven't got this but on further investigation my mother's side of the family all Celtic have had various problems 're stomach pain my poor grandmother cried in pain as did her sister whilst two of her brother's survived WW2 but died from ulcers put down to stress of fighting.  Wishing you well with your recovery.  Many thanks  
    • knitty kitty
      Welcome to the forum, @Nacina, What supplements is your son taking?
    • knitty kitty
      @BluegrassCeliac, I'm agreeing.  It's a good thing taking magnesium. And B vitamins. Magnesium and Thiamine work together.  If you supplement the B vitamins which include Thiamine, but don't have sufficient magnesium, Thiamine won't work well.  If you take Magnesium, but not Thiamine, magnesium won't work as well by itself. Hydrochlorothiazide HCTZ is a sulfonamide drug, a sulfa drug.  So are proton pump inhibitors PPIs, and SSRIs. High dose Thiamine is used to resolve cytokine storms.  High dose Thiamine was used in patients having cytokine storms in Covid infections.  Magnesium supplementation also improves cytokine storms, and was also used during Covid. How's your Vitamin D? References: Thiamine and magnesium deficiencies: keys to disease https://pubmed.ncbi.nlm.nih.gov/25542071/ Hiding in Plain Sight: Modern Thiamine Deficiency https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8533683/ The Effect of a High-Dose Vitamin B Multivitamin Supplement on the Relationship between Brain Metabolism and Blood Biomarkers of Oxidative Stress: A Randomized Control Trial https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6316433/ High‐dose Vitamin B6 supplementation reduces anxiety and strengthens visual surround suppression https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9787829/ Repurposing Treatment of Wernicke-Korsakoff Syndrome for Th-17 Cell Immune Storm Syndrome and Neurological Symptoms in COVID-19: Thiamine Efficacy and Safety, In-Vitro Evidence and Pharmacokinetic Profile https://pubmed.ncbi.nlm.nih.gov/33737877/ Higher Intake of Dietary Magnesium Is Inversely Associated With COVID-19 Severity and Symptoms in Hospitalized Patients: A Cross-Sectional Study https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9132593/ Magnesium and Vitamin D Deficiency as a Potential Cause of Immune Dysfunction, Cytokine Storm and Disseminated Intravascular Coagulation in covid-19 patients https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7861592/ Sulfonamide Hypersensitivity https://pubmed.ncbi.nlm.nih.gov/31495421/
    • BluegrassCeliac
      Hi,   Not saying Thiamine (B1) couldn't be an issue as well, but Mg was definitely the cause of my problems. It's the only thing that worked. I supplemented with B vitamins, but that didn't change anything, in fact they made me sick. Mg stopped all my muscle pain (HCTZ) within a few months and fixed all the intestinal problems HCTZ caused as well. Mom has an allergy to some sulfa drugs (IgG Celiac too), but I don't think I've ever taken them. Mg boosted my energy as well. It solved a lot of problems. I take 1000mg MgO a day with no problems. I boost absorption with Vitamin D. Some people can't take MgO,  like mom, she takes Mg Glycinate. It's one of those things that someone has try and find the right form for themselves. Everyone's different. Mg deficiency can cause anxiety and is a treatment for it. A pharmacist gave me a list of drugs years ago that cause Mg deficiency: PPIs, H2 bockers, HCTZ, some beta blockers (metoprolol which I've taken -- horrible side effects), some anti-anxiety meds too were on it. I posted because I saw he was an IgG celiac. He's the first one I've seen in 20 years, other than my family. We're rare. All the celiacs I've met are IgA. Finding healthcare is a nightmare. Just trying to help. B  
    • Scott Adams
      It sounds like you've been through a lot with your son's health journey, and it's understandable that you're seeking answers and solutions. Given the complexity of his symptoms and medical history, it might be beneficial to explore a few avenues: Encourage your son to keep a detailed journal of his symptoms, including when they occur, their severity, any triggers or patterns, and how they impact his daily life. This information can be valuable during medical consultations and may help identify correlations or trends. Consider seeking opinions from specialized medical centers or academic hospitals that have multidisciplinary teams specializing in gastrointestinal disorders, especially those related to Celiac disease and Eosinophilic Esophagitis (EOE). These centers often have experts who deal with complex cases and can offer a comprehensive evaluation. Since you've already explored alternative medicine with a nutrition response doctor and a gut detox diet, you may want to consider consulting a functional medicine practitioner. They take a holistic approach to health, looking at underlying causes and imbalances that may contribute to symptoms. Given his low vitamin D levels and other nutritional markers, a thorough nutritional assessment by a registered dietitian or nutritionist specializing in gastrointestinal health could provide insights into any deficiencies or dietary adjustments that might help alleviate symptoms. In addition to routine tests, consider asking about more specialized tests that may not be part of standard screenings. These could include comprehensive stool analyses, food intolerance testing, allergy panels, or advanced imaging studies to assess gut health.
×
×
  • Create New...