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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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Sore Lymph Nodes?

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This is my first post to this community, as I was diagnosed only two and a half months ago with celiac disease, confirmed by all of the recommended tests. I was a mess at the time--anemia, weight loss, you name it--but since starting a gluten-free diet, I've been making progress with some bumps along the way. Then, seemingly out of nowhere, I got sore lymph nodes. First in my groin for a few days, then in my neck (but the pain in the groin ended). The swelling and pain aren't bad, but are enough to make me notice them. No fever, chills, loss of appetite, or anything else that suggests something bad. I'm wondering if it's a reaction to going gluten free? My body normalizing itself? Does this sound familiar? I'd rather not freak myself out with all of the potential diseases they could signal.

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The lymph node system is like a sewer system.  They take all of the diseased, infection, toxins etc. And carry them out of your system safely.   Some of the major ares of hard working nodes are under the jaw, groin, arm pits and a hugh one in the center of your chest toward the back.  Inflammation and pain is a sigh that the particular node is working extra hard to break nasty stuff down.  

 

If a particular node stays inflamed and there is alot of pain you may need to see a doctor at some point.  A swollen node is a good indicator that your body is fighting something off, immune related, so it is telling you to take it easy for a bit.

 

Good luck, 

 

Colleen 

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funny you should mention this......i used to get that in the same exact areas.  i am not diagnosed by a dr as having celiac (negative blood results), but i believe that i definitely have some sort of intolerance as my symptoms indicate gluten/wheat intolerance.  in any case, after changing my diet, i no longer get the swollen lymph nodes.  i did have my dr check me and i was fine.  you should do the same just to be on the safe side.  otherwise maybe it will get better soon after being gluten free for some time.  good luck to you.

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If those nodes stay swollen you want to get blood tests for starters and look for any anomalies. I've got swollen nodes and one especailly large one the size of an egg (on average and sometimes the size of a baseball) in my neck. If you ever see any enlarged lymph node in your neck that doesn't respond well to an anti biotic trial you want to get a needle biopsy on it straight away. If you did for example have hodgkins (doubt it) you wont have any classic symptoms until it's spread quite far, you don't usually get itching and night sweats until there's a tumour in your chest so big that you start coughing because your lungs don't fit in there any more.. One swollen node is very very early stuff and that's when you want to catch it. Because I have a condition that looks similar and tests similar so I've been through all the testing for Hodgkins (twice) and negative both times but they are some scary tests. In some regards being a badly damaged Celiac is a much harder condition to recover from than Hodgkins but the point is. Lymph nodes don't enlarge for no reason but it is possible if you have a damaged gut to be simply inflammation from that and I expect that will be the case with you. I'm always looking to see if anyone in the street has a large node they haven't noticed but don't see them.. I do however often see people with hashimotos walking around or on TV I wonder how many of them don't know.

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This is my first post to this community, as I was diagnosed only two and a half months ago with celiac disease, confirmed by all of the recommended tests. I was a mess at the time--anemia, weight loss, you name it--but since starting a gluten-free diet, I've been making progress with some bumps along the way. Then, seemingly out of nowhere, I got sore lymph nodes. First in my groin for a few days, then in my neck (but the pain in the groin ended). The swelling and pain aren't bad, but are enough to make me notice them. No fever, chills, loss of appetite, or anything else that suggests something bad. I'm wondering if it's a reaction to going gluten free? My body normalizing itself? Does this sound familiar? I'd rather not freak myself out with all of the potential diseases they could signal.

Hello

Just wanted to reply to you as you described exactly what I went through 3-4 months ago.

I freaked out too, worried, scared myself stupid on google, but all the time knew deep down inside it was probably my body overloaded with toxins and just trying to flush the rubbish out! My symptoms lasted a few weeks and slowly disappeared over another week... Then gone!

The body is a wonderful thing really. Honestly I have has some of the strangest symptoms ever and most of them after being gluten free??!!, but I think I am very body aware! Every little pinch I feel!

Hope you're feeling better.

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