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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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jmrogers31

6 Year Old About To Be Tested

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My six year old is going to be tested with a blood sample this week for Celiac.  I was wondering what your thoughts were because her symptoms don't seem celiac related but gluten free seemed to help them.  She had a rash all over her stomach, legs, bottom, back, and forearms.  It isn't the celiac rash and the doctor described it as discoid eczema.  She wets the bed almost every night at age six and has extreme anxiety.  We started a gluten free diet about 3 months ago because I was gluten free and figured what could it hurt?  Well, the rash started to clear up within a few weeks after she has had it for months.  She stopped wetting the bed after about a month gluten free and she used to have a lot of issues at school including shouting matches with other kids, issues with paying attention, to almost panic attacks to dramatic improvement in behavior that the teacher is really stunned by.  Well, we took her to an allergy specialist for the rash and she wants a blood test which means 4 to 6 weeks of gluten again.  It has been a month now and the bed wetting is back, the rash is back, and the anxiety is starting to come back.  We decided we don't really care what the results say, she is back gluten free after this.  My question is, are these symptoms normal for kids?  Bed wetting, eczema, anxiety, attention issues?  She really doesn't have any GI issues at all. 

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My then 2 yr old had what we were told was excema, no creams fixed it, gluten free did. Her behavior was odd, she was scared of the stairs one day! That stopped gluten free. We're still,working on the bed wetting, but 2 1/2 yrs of chronic constipation have made it hard. I've read a lot of people on here mentioning anxiety as a symptom. Our youngest didn't have any GI issues beyond mild constipation, but she cried all day long, had bizarre rashes, gluten free she is happier. The eldest was tested at 3 for celiac disease but came up negative, but she had the genes. We went gluten free anyway. Her little sister was aneamic, that was enough for us. If she is obviously better gluten free, go with your gut and go gluten free after the testing.

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After three months being gluten free, 4 weeks back on gluten might not be enough to get accurate blood tests.  Just know that a positive result means she probably has it but a negative result means the didn't detect it - not that she doesn't have it.  (Does that make sense?)   Don't let a negative result sway you into allowing gluten back into her diet.  

 

My son (diagnosed at age 5) had ZERO GI symptoms.  All we saw was a drastic change in behavior.

 

My symptoms included anxiety . . . .which went away pretty quickly after being gluten free.

 

Trust your instincts - you are doing everything right.

 

Cara

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