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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

They Are Refusing To Test For This Based On My Ana, What Do I Do?
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6 posts in this topic

They say my ANA is fine so they aren't going to do the test. 

 

Meanwhile I'm sitting here, looking like death warmed over, having a lot of issues now. If you were to look at me I look like skin and bones. I've been sick for 3 days now, barely been able to get food in me. I need this test done. If I go to the ER at this point they won't run the test cause they'll just tell me to follow up with my GI doc or something, the GI doc I haven't been able to get ahold of for 5 days. I don't think that's going to change. 

 

How do I convince them to do this test? I did ask if they ran the specific test for it and they said no, cause due to my other tests they are saying I don't have it. 

 

I guess they could be right but a blood test will be faster at this point than waiting almost a week to get the GI scopes I will not make it a week with how I am. I am tempted to just go off all gluten and forget all of it since none of them are cooperating with me anyway. 

 

What's the big deal here? Why won't they test me? 

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I wish we could answer those questions for you. I already replied to your other thread so I won't repeat myself too much. But if you don't need an official diagnosis, going gluten free now without testing is a viable option.

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Honestly at this point if they won't test you can either A. Find a new doctor or B. Do a gluten free trial...

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Can you go to a wlak in clinic or see a family doctor to request the test?

 

Biocard sells home tests for ttg IgA but it would take some time to get to you.

 

Hang in there.

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What were your other tests?  Are you certain you have had a complete antibody profile for Celiac Disease?  Nutrient testing?

 

Sorry..I'm not sure I read your post correctly -- are you wanting an endoscopy or more blood tests?

 

Hang in there - diagnosis of Celiac Disease is often very frustrating and unfortunately may necessitate a change of doctors.

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They say my ANA is fine so they aren't going to do the test. 

 

Are you saying they won't test for celiac because your ANA is fine?  This is a nonsense if so.  ANA does not test for celiac.  While it is a general autoimmune screen, it is designed to detect connective tissue AI disorders like SLE, RA, Sjogren's, etc.  It tells you nothing about celiac disease.

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