• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Failure To Thrive
0

8 posts in this topic

Recommended Posts

Chefwife8    0

My almost 2 year old was recently diagnosed with FFT seeing a GI in April I am waiting on test results for myself. He weighs 20 pounds and is 33 inches he still breast feeds and trying to get him to eat anything is like pulling teeth. He chews the food then spits it out or flat out refuses. He has had 4 crowns on his front teeth and needs more fillings on his molars. 4 of my other kids have the same teeth issues I also have a 13 year old who was diagnosed with abdominal migraines. When we go to the Gi what should we expect? Sorry if this is jumbled I hate seeing dr and getting no real answers been dealing with my Heath issues for yeas and all the dr are clueless. Hopefully my little one will get some answers

Anyone else have a FFT child that was diagnosed with Celiacs?

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


formygirl    4

My DD wasn't FTT, but she was tiny, and that combined with chronic diarrhea is what led to her being tested.  At the GI, she basically just reviewed the results and recommended endoscopy to confirm.  She also recommended seeing a dietician, which we did, but it was a waste of time and money, as she basically said we could google stuff.  thanks lady.  anyway, she had the endoscopy two weeks later, and although it all appeared "normal," biopsies confirmed celiacs.  that was about 7 weeks ago, and she has been doing well on the gluten-free diet -- even gained  pound!    

 

good luck with everything.  i hope you get some answers so your little one can feel better.

Share this post


Link to post
Share on other sites
nicolebeth    1

If it makes you feel any better, our GI told me that the extended breastfeeding was the best thing I could have done for my son (not FTT; he fell off his curve, and kept dropping between ages 3 and 7).

 

Good luck to you! I hope he's feeling better soon, and you figure everything out!

Share this post


Link to post
Share on other sites
Nikoletta    0

My almost 2 year old was recently diagnosed with FFT seeing a GI in April I am waiting on test results for myself. He weighs 20 pounds and is 33 inches he still breast feeds and trying to get him to eat anything is like pulling teeth.

Hi,

Sorry I can't be of any help, just wanted to say: I'm in almost exactly the same boat. My child is the same age, also 20 pounds (9 kg) and less than 33 inches (80 cms) given the label "failure to thrive", still breastfeeds and trying to get her to eat anything is as difficult as you say. She also has big dental problems, though I have avoided the dentist I can see her teeth rapidly wearing away. She will eat some things (pistachio nuts or pumpkin seeds for example) but I'm don't think these things are helping her mineral absorption for her teeth!  I know that breastfeeding her has helped her in loads of ways (she never comes down with any colds or flu), and perhaps she has some digestive disorder with which the breastmilk is helping her,  but I do seriously wonder if she would simply be a stronger child without dental problems now, if she weren't breastfeeding.  Please let us know how you get on. Sorry again that I can't shed an ounce of light.

Share this post


Link to post
Share on other sites
nicolebeth    1

Hi,

Sorry I can't be of any help, just wanted to say: I'm in almost exactly the same boat. My child is the same age, also 20 pounds (9 kg) and less than 33 inches (80 cms) given the label "failure to thrive", still breastfeeds and trying to get her to eat anything is as difficult as you say. She also has big dental problems, though I have avoided the dentist I can see her teeth rapidly wearing away. She will eat some things (pistachio nuts or pumpkin seeds for example) but I'm don't think these things are helping her mineral absorption for her teeth!  I know that breastfeeding her has helped her in loads of ways (she never comes down with any colds or flu), and perhaps she has some digestive disorder with which the breastmilk is helping her,  but I do seriously wonder if she would simply be a stronger child without dental problems now, if she weren't breastfeeding.  Please let us know how you get on. Sorry again that I can't shed an ounce of light.

 

As I mentioned above, my son's GI doc said the breastfeeding was the best thing I could have done for my son. Some kids are susceptible to dental caries; it has nothing to do with breastfeeding. Some tout grassfed butter as something children with this issue should eat (that would also be high in fat, which is good). Have you investigated celiac or non-celiac gluten intolerance for your daughter as well? Or allergies? I think what you've done for your child has been great. She may have had even more issues without the breastfeeding. Maybe nut butters? Avocado? Greek yogurt (with honey?)

 

Best of luck! I hope everything is resolved soon.

Share this post


Link to post
Share on other sites
Ads by Google:


Chefwife8    0

My son has had 4 pulpectomoies and of course the dentist blames the breast feeding. I come from a long line of digestive issues in my family most of my bro/sis has some sort of tummy issue as do my kids I have been to the hospital with at least 3 of them in horrible tummy pain only to find out they were extremely constipated we also have food allergies and horrible eczema. I am not only trying to figure out his issues, but also my own. Which has been a ok g process with no answers yet and it's been over 2 years.

We got his CBC back and his blood work was good that was the blood work is pediatrician ordered I am sure the GI will do more i am scared they will want to do a feeding tube. Just hoping to get some answers and get everyone healthy

Share this post


Link to post
Share on other sites
nicolebeth    1

My son has had 4 pulpectomoies and of course the dentist blames the breast feeding. I come from a long line of digestive issues in my family most of my bro/sis has some sort of tummy issue as do my kids I have been to the hospital with at least 3 of them in horrible tummy pain only to find out they were extremely constipated we also have food allergies and horrible eczema. I am not only trying to figure out his issues, but also my own. Which has been a ok g process with no answers yet and it's been over 2 years.

We got his CBC back and his blood work was good that was the blood work is pediatrician ordered I am sure the GI will do more i am scared they will want to do a feeding tube. Just hoping to get some answers and get everyone healthy

 

I really hope your son doesn't need a feeding tube! I hope they can figure things out before then. This must be such a stressful time. I hope that by figuring out your own issues, it helps with your kids.

 

Dentists do blame breastfeeding, it's true. They sometimes conflate nighttime nursing with nighttime formula-feeding. I would trust kellymom over any dentist (and have when I was told my daughter would get cavities for nursing at night--she never did). http://kellymom.com/health/baby-health/tooth-decay/ This article mentioned nutrients/vitamins/minerals. I would guess that the FTT and the cavities result from a nutritional deficiency (like from celiac or fructose intolerance or something). Does your son nurse a lot? Is it possible to nurse him more during this time? It sounds counter-intuitive, but perhaps going back to those days would help with calorie-ingestion at least (while potentially avoiding what might be causing the problems). Are you cutting out foods, too? Have you tried eating the basics only? (Turkey, lamb, cucumber, carrots, white rice--or something like that--those are the least allergenic foods--if I remember correctly. Obviously, it doesn't work if you're a vegetarian.)

 

Has anyone checked him for celiac yet? I guess it means keeping him having some gluten until you have that blood work drawn.

 

Good luck!

Share this post


Link to post
Share on other sites


Ads by Google:


Nikoletta    0

As I mentioned above, my son's GI doc said the breastfeeding was the best thing I could have done for my son. Some kids are susceptible to dental caries; it has nothing to do with breastfeeding. Some tout grassfed butter as something children with this issue should eat (that would also be high in fat, which is good). Have you investigated celiac or non-celiac gluten intolerance for your daughter as well? Or allergies? I think what you've done for your child has been great. She may have had even more issues without the breastfeeding. Maybe nut butters? Avocado? Greek yogurt (with honey?)

 

Best of luck! I hope everything is resolved soon.

Yes, I went to see a new pediatrician and she said that you were right that breastfeeding was the best thing for my child and I should keep going for the moment anyway. We are looking into gluten intolerance as a possibility but first we are trying to rule out a milk-protein intolerance as the cause (she was also consuming some cow's and sheep's milk products). To be honest she has some GI issues but nothing severe (although this could also be mitigated by breastfeeding) so sometimes I wonder if I am putting her through trial diets and testing etc. for nothing. The truth is though that she hardly eats anything and she is not growing/putting on weight as she should so I suppose it's worth checking it out. We'll see.

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      107,889
    • Total Posts
      938,503
  • Member Statistics

    • Total Members
      65,797
    • Most Online
      3,093

    Newest Member
    sanfras43@gmail.com
    Joined
  • Popular Now

  • Topics

  • Posts

    • https://www.celiac.com/gluten-free/topic/91878-newbie-info-101/ ^Newbie 101 section PS you are diagnosed celiac right? Sorry but a standard question as you should get the diagnosis out of the way before going gluten-free.
      https://www.celiac.com/gluten-free/topic/117090-gluten-free-food-alternatives-list/ ^ Have a nice list of food alternatives, including condiments. NOTE we suggest a whole foods only diet starting off to boost healing. Also we suggest dropping anything with oats or dairy for the first few months. Oats some celiacs react to regardless of gluten-free or not, Dairy is broken down by enzymes produced by the tips of your villi, if your celiac these are normally damaged and cause digestion issues or intolerance to dairy.
    • Hi to any & all who read my post, and an advanced thank you to those who reply,        My post may be kind of robust & lengthily, but please read until the end if you are able. To give a sort of "back story" here, I'll explain my situation in a nutshell. In November of 2014 I was diagnosed with a gluten intolerance by my allergist after recurrent, severe mouth ulcers and a bodily rash. I had a blood allergy panel, but NOT a Celiac specific panel, which ruled out other food allergies completely - corn, pea, chickpea, chicken, tomato, egg, milk, etc. My allergist suggested a gluten-free diet, which I adopted & have been adhering to since then. Recently, I've been acutely sick since August of 2016, so we're talking a year plus now. My symptoms began with a burning abdominal sensation, pain after eating, premature and uncomfortable full feeling, bloating, etc. My internist referred me to my current GI doctor where I was diagnosed with GERD (chronic acid reflux) , and prescribed Omeprazole, which I still take daily. My next appointment in February had me still feeling awful & my GI doctor decided to perform an upper endoscopy, which I did in March. He was looking for ulcers, evidence of bleeding or infectious disease, and Celiac. Mind you, I had informed him that I've been eating strictly gluten free for almost three years now. He claimed this really didn't matter? This has left me wondering. Anyway, the results came up empty, but I was found to have evidence of gastritis. Then came the rest of my symptoms - frequent diarrhea, bloody diarrhea, extremely greasy stools, stools that float, mucus in stools, unable to "wait" to use the bathroom (I.e. Urgency), alternations of diarrhea and constipation, weight loss, low grade fever, EXTREME fatigue, poor concentration, memory loss, cognitive decline, and my mouth sores have reared their ugly head once again. After I first went gluten-free, the ulcers probably cleared up for a good year at least, which was heaven on earth for me. Now, they're back with a ruthless vengeance. As we speak, I've barely recovered from one for a day or so, and I'm down with two more. You can't even make this stuff up. After I addressed these new symptoms with my GI, he was concerned I may have had Crohn's Disease or Colitis, so he performed a colonoscopy, which ruled out both conditions through gross observation & biopsy samples. Since colonoscopies can only read so much of your colon & terminal small intestine, I then had a  PillCam to see the rest. The only results he could suggest was that I have a "slow bowel transit," so I was diagnosed with Irritable Bowel Syndrome. The umbrella term for all intestinal and abdominal suffering with no definitive cause.        Summary of my bible here is that I'm still suffering greatly. The intestinal issues are really giving me poor quality of life, and these pervasive mouth ulcers are more than I can bare anymore with the pain, inability to eat, weight loss, etc. it's all a sick and harrowing cycle that I am caught in the middle of. In saying this, I'm almost curious that I could have Celiac disease that was horribly missed. If I had already been gluten free & a biopsy was taken it would appear as though I'm a healthy individual, no? I was informed you had to be eating a strict gluten FILLED diet prior to ANY testing. ALL of my testing was performed after I already went gluten free, which could have altered results horribly.   I'm almost crazy enough to think that if this is the case, I'm going to eat gluten just so I can be re-tested because I can't go on like this anymore.    Can anyone please clarify and/or suggest something?
    • Interesting the Teflon was the substrate /material the gluten "stuck to" with a higher ppm of cc a synthetic man made versus an organic material iron . Based on her writing further exploration is not likely to get funding but perhaps from this preliminary finding if repeated celiacs in shared households should avoid teflon products.  My husbands bachelor pots and pans were a great set of stainless steel. Our wedding set of dishes mostly have broken.  I purged all pre diagnosis wood , plastic, and and old or very used ceramic and with my son and I both affected the household went completely gluten free.  I wish the budding scientist much success, but hope she followed her own data and ditched all teflon.    
    • Yikes!   Yes!  I will correct.  Thank you. I am so used to being GLUTEN FREE!
    • Maybe you should consider a bone marrow biopsy.   Your hematologist might be on to something.  At least it would rule out several things.  Based on this link, it could be related to SIBO or another AI issue.   http://www.medicinenet.com/neutropenia/article.htm Another possibility is Mast Cell Activation Syndrome or Mastocytosis.  That could explain the WBC, low BP, fatigue, etc.   A bone marrow biopsy is used to diagnose mastocytosis.    https://www.celiac.com/gluten-free/blogs/entry/1931-mast-cell-activation-syndrome-madness/ https://tmsforacure.org/overview/
  • Upcoming Events