• Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

Just Starting Out, How Careful Do You Need To Be?
0

Rate this topic

11 posts in this topic

Recommended Posts

My 8-year-old daughter was just diagnosed with celiac disease, and I'm overwhelmed (which I'm sure is very common). How careful should I be? Do we need to keep food separate, use different utensils, avoid French fries that may have been contaminated in a fryer, etc?

She doesn't really have symptoms, so I don't think it will be super obvious when we accidentally give her gluten. But is a basic diet good to start with, or do I need to start checking her lip gloss ingredients?

It just kind of hit me last night - we web to Applebee's for 99 cent kids night, and there was nothing on the kid's menu that wasn't full of bread and/or breaded. It was like a kid's gluten free for all.

I know I need to learn where it is safe to eat and where it isn't , but how careful do I need to be in other areas?

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


"Do we need to keep food separate, use different utensils, avoid French fries that may have been contaminated in a fryer, etc?"

Pretty much. Most dishes can be cleaned thoroughly enough though, but then you have to use a separate or clean cloth for them. Things like scratched frying pans or baking sheets that get that brownish coating on them though aren't safe. Neither are mesh colanders or anything wooden. Unless it's a glass cutting board that won't be safe for her either.

 

Most restaurants aren't safe to eat, don't even try right now.

 

She absolutely shouldn't be wearing lip gloss that has gluten. The ingredient list might not mention gluten but that doesn't mean it will be safe. Scents often have gluten, and they'll just say 'perfume' or whatever. Easiest thing is to only get lip gloss that advertises as gluten free. (I'm personally not a fan of going through ingredients for most foods anyways, "may contain traces of" is entirely voluntary on labels. Fresh food is the only guaranteed safe food.)

 

Make sure she washes her hands before eating anything. Get gluten free soap.

Share this post


Link to post
Share on other sites

Yes you do have to be extremely careful. In my case my entire family eats anything and I have to be the careful one which is overwhelming for me since I am the mother who makes everthing for everyone else! I am constantly washing my hands, cleaning utensils,  running out of clean dish towels etc... I have never ran my dishwasher so much in my life!

 

I would recommend making simple meals for now while you're all adjusting especially her instead of buying up all the gluten free versions of breads, crackers, cookies... for an 8 year old she may want all that stuff but it can be costly. I make a lot of dinners with sides of potatoes or rice so that it satisfys everyone and I don't have to be as careful while preparing the dinner since its all gluten free.

 

Best of luck to you! :D 

Share this post


Link to post
Share on other sites

Oh my gosh, gluten free soap? It looks like diet is only part of it then. She loves lip balm and Chapstick (I shouldn't have said "gloss", she's only 8 so it's not like she's wearing makeup. So I'm gathering that basically anything that could potentially get n her mouth could cause problems, right?

Her dr is a self-proclaimed "celiac expert" but he only mentioned diet, not soap or anything else!

Share this post


Link to post
Share on other sites

Oh my gosh, gluten free soap? It looks like diet is only part of it then. She loves lip balm and Chapstick (I shouldn't have said "gloss", she's only 8 so it's not like she's wearing makeup. So I'm gathering that basically anything that could potentially get n her mouth could cause problems, right?

Her dr is a self-proclaimed "celiac expert" but he only mentioned diet, not soap or anything else!

Most soap is gluten free. Maybe some specialty soaps that have wheat germ oil. Might want to skip the oats in soap or lotion. I use Chapstick. They used to say they were gluten-free but last I looked they didn't. They didn't change the ingredients, they just don't test for gluten so they don't want to say that.

Share this post


Link to post
Share on other sites
Ads by Google:


It depends really on how bad she is.  I am not super careful myself, in the way that when I cook I am sure that there is occasional cross contamination.  While, my symptoms are miserable night sweats, severe fatigue, bloating, nausea  etc. The occasion cross contamination does not affect me, however that is different from individual to individual.

Share this post


Link to post
Share on other sites

But yes my soap, shampoo, makeup everything is gluten and dairy free...but like I said there always that occasional oops moment (and yet I seem to be okay), but I wouldn't reccommend the risk

Share this post


Link to post
Share on other sites


Ads by Google:


I think it would be really important for her to also know to not eat anyone else's food at school or daycare or wherever. I don't have kids myself, but 8 seems just old enough that she can really grasp the seriousness of eating something bad for her, and for you to teach her what foods she can and can't eat.

 

Yes, I have found out that many soaps are gluten free, pretty much any soap company I've contacted says gluten free. Most companies are pretty good at giving you gluten info and are prepared for the question, and will have up-to-date info about their products also, unlike the internet. Hand and dish are the ones that I would say are pretty necessary to be gluten free, others not so much. Oats seem to be in lot of lotions for some reason.

 

I was thinking of lip smackers, I wore that stuff as a kid. and it smells like candy, and invariably I always tasted the candy-smelling lipstuff to see if it tasted as good as it smelled.

Share this post


Link to post
Share on other sites

Definitely check all the lotions and toothpaste as well - Colgate regular paste is gluten free...not sure if this applies to her or not but Play-Doh also contains gluten (I was surprised when I found that out too) and is made from wheat flour - so if she plays with it, then you'd need to remove that as well.  (I'm a child therapist and can no longer use Play-Doh in therapy with my clients)  There are recipes online for you to make your own gluten free version.  Also double check any medications that she takes - some medications use gluten as a filler for the pill, just check with the pharmacist each time she gets a medication (whether prescription or OTC).  They may need to call the manufacturer to confirm.  I know it seems overwhelming now but you'll get used to it!!    

Share this post


Link to post
Share on other sites

Thanks for all of the info. I can already tell this is going to be a challenge. Last night at dinner at a restaurant (after I'd researched what she could eat) my husband handed her a breaded mozarella stick and she ate it before I could stop her. My husband and friends were saying, "Oh, it's  a process, we'll get used to it."

 

But after the dr told me to look at it like it was poisoning her, I don't think it should be a process, I think we should just get rid of it all now and never let her have it again! I think the hardest part will be teaching her and the rest of the family to watch for gluten.

Share this post


Link to post
Share on other sites


Ads by Google:


If you have a smartphone (Iphone or Android) they have these really great gluten free apps that help you with researching ingredients or places to eat.  I use Gluten Free Registry (its free) and you put in your current location (or location that you wish to dine in) and it will pull up all the places in the area with gluten free menus, plus reviews of how other's experiences were with the restaurant.  It has helped me avoid some pretty shady places!  But its also come in handy - after bowling with friends they wanted to find a place to go eat, so I just took out my phone and within 5 minutes I found a local steakhouse within 10 mins of the bowling alley that had a certified gluten free menu.  It turned out great!  I hope this helps!

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      108,140
    • Total Posts
      939,878
  • Member Statistics

    • Total Members
      66,129
    • Most Online
      3,093

    Newest Member
    Serah
    Joined
  • Popular Now

  • Topics

  • Posts

    • Yes after the scope is done go ahead and get her on the diet. You may see improvement even before the results are back.
    • My daughter is having her scope on Tue he said it could still be normal as her bloods even though positive they weren't highly positive. But due to the fact of her on going fatigue even with iron supplements her positive gene test and her dad being a type one diabetic he thinks it's best that he does the scope. Should I start gluten free trial straight after the scope as we can't get back in for results for two weeks and I feel her fatigue is getting worse and we were thinking of trialing gluten free even if scope is negative any thoughts
    • Positive biopsy and blood work?  It sure sounds like your doctor made the right diagnosis.   Let me tell you my story.  Diagnosed after going for a routine colonoscopy because I am over 50.  GI saw my chart and noted that I was anemic.  I have a genetic anemia and I was iron deficient as well.  I lived like that my entire life.  But my wise GI ordered a celiac blood panel and it was considered mildly positive.  So, he ordered an endoscopy to my colonoscopy.   I had been dairy free since I was young.  Was told that I had an allergy.  I had not any GI issues with gluten.   I was an avid baker.  I had nut issues and also mushroom, garlic/onion, and egg intolerances.  I had some pretty severe allergies to medications (anaphylactic) and some seasonal allergies along cats and horses.   I was shocked.  My husband had been gluten free for 12 years prior to my diagnosis.  There is no way both of us would have gluten issues.  But...the tests did not lie.  My iron deficiency anemia resolved within months of my going gluten free.  Two months into the diagnosis, I fractured my back doing NOTHING!  I have osteoporosis as a results of having celiac disease.   Grief is completely understandable.  Denial is a part of grieving.  But the proof will be in follow-up blood tests and how you feel.   So, now I can eat nuts (not almonds), eggs (two a day every single)  and dairy.  Yes, ice cream!  I have yet to get back garlic and mushrooms, but I can live with that.   I have Hashimoto’s too.  .  Once you have one autoimmune disorder, you can develop more.  The gluten-free diet may help, not only your celiac disease, but your UC issues as well.   Try the diet.  I think you will be pleasantly surprised!  
    • Hi Sofie! Listen to KarenG.   We both had iron deficiency anemia when we were diagnosed.  Plus, I have Thalassemia which is a genetic anemia on top of the iron deficiency anemia.   Dumping iron into your system is not the solution.  You need to be seriously gluten free.  You are probably unknowingly damaging other parts of your body....like your bones.  Two months after my diagnosis, I fractured my back doing NOTHING!  Think you are just not getting enough oxygen to your brain?  Think again!  It is probably related to celiac disease.  Celiac disease is systemic.  It is not just about villi damage.   But why am I telling a college student this?   You should be researching your autoimmune illness and ensuring that you do not develop Cancer (rare) or another autoimmune disorder like lupus, diabetes, thyroiditis, MS, Crohn’s, or one of the almost 100 other Autoimmune disorders (common).    Get your antibodies down.  Your mild anemia is the least of your problems.  Raising  your ferritin level may help a little, but healing from celiac disease will help you a lot more!    
    • Let my start by giving a brief summary of what I’ve been diagnosed with. Just over the past year I’ve been diagnosed with Celiac, EOE, lactose intolerance, soy allergy, tree nut allergy. Most recently diagnosed with Ulcerative Colitis. The Colitis came 8 months after having found out I had celiac. I have never had problems with gluten in my life. Dairy was something I had to eliminate because of the excrutiating stomach pains I would get from it. But I can have gluten any day and not have a problem.  I was diagnosed with a biopsy and followed by bloodwork. But who’s to say that dairy wasn’t the cause? I just feel like the GI was very quick to jump on the diagnoses without fully understanding my medical history, prescriptions I’ve took in the past ie long term antibiotic use, accutance, and 7 years of constant NSAID use.
  • Upcoming Events