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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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MissyShelle

Crazy Update; Waiting On Tests For My Daughter Now

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Well, got insurance settled and I head to the doctor first thing Monday morning. 

 

However, today has been a rollercoaster. My oldest twin wakes up screaming that her legs hurt. Head to doctor. They do a routine blood panel (but N.P. throws in a few extra tests on a hunch) and we just suspect maybe a low potassium level. Get an urgent call 2 hours later that her hemoglobin is at a 7. So now waiting on the Children's Hospital to call to see if we are being admitted for testing/blood transfusion or just making an appointment. 

 

Her other blood work panels didn't show anemia, so we have to figure out what this is from. Then the doctor asks me "Aren't you being tested for Celiac?" I tell her yes and she said to definitely mention that to the drs when we go to the specialist because that's an important consideration in how they proceed. 

 

So, I sit and wait on a phone call, my daughter is in pain and exhausted. I figure with a hemoglobin of 7, we'd already be at the hospital but I guess there are procedures. 

 

UGH! But isn't a low hemoglobin tied to Celiacs? 

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I don't have a lot of info to provide, since I was only diagnosed on Monday, but I have two small children and feel for you.  Hope you get it figured out soon and your daughter's pain goes away.  Good luck.

Well, got insurance settled and I head to the doctor first thing Monday morning. 

 

However, today has been a rollercoaster. My oldest twin wakes up screaming that her legs hurt. Head to doctor. They do a routine blood panel (but N.P. throws in a few extra tests on a hunch) and we just suspect maybe a low potassium level. Get an urgent call 2 hours later that her hemoglobin is at a 7. So now waiting on the Children's Hospital to call to see if we are being admitted for testing/blood transfusion or just making an appointment. 

 

Her other blood work panels didn't show anemia, so we have to figure out what this is from. Then the doctor asks me "Aren't you being tested for Celiac?" I tell her yes and she said to definitely mention that to the drs when we go to the specialist because that's an important consideration in how they proceed. 

 

So, I sit and wait on a phone call, my daughter is in pain and exhausted. I figure with a hemoglobin of 7, we'd already be at the hospital but I guess there are procedures. 

 

UGH! But isn't a low hemoglobin tied to Celiacs? 

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B12 and iron and folate anemia a are common in Celiac if that is what you are asking. Seems like the doctor knew that, too?

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The thing is, the doctor said her overall blood work looked good, it was just her hemoglobin that was so low. So we are heading to hospital tomorrow for more tests and possible transfusion. Man, it's been a long 2 weeks in my household. 

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