Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Common Variable Immune Disorder

NorthernElf

Recommended Posts

NorthernElf Enthusiast
NorthernElf
Posted

CVID

 

I have been trying to figure out for 2 years why I hurt, why I am so tired - lots of ups & downs. Sometimes I'm fine, sometimes joints hurt a little (mostly wrists/hands/elbows...then also knees/ankles/feet), sometimes I am in agony. I have seen two different rheumatologists, had an MS scare, had a ton of blood work & astounded my doctor. Within the last year I have had pneumonia confirmed by xray once, been treated for it two more times after that.

 

Last week another round of bloodwork showed low IgG...just completed more bloodwork Friday to measure other Ig levels. Getting a referral to a rare blood disorder clinic. It lookds like CVID because of the joint pain (which bloodwork would confirm if IgA and IgM are low).

 

Finally some answers!

 

Anyway - anyone else heard of this, have this ?

 

Autoimmune....related to celiac ? Doesn't help that I am undiagnosed celiac (ie. don't have a positive test to show on paper)...I have been gluten-free for 11 years after a wicked virus.

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


nvsmom Community Regular
nvsmom
Posted

I had to look it up.

Open Original Shared Link

I don't have it but those symptoms really do sound a fair bit like celiac doesn't it? (I do have a related condition (low platelets) and many of those symptoms myself but I know I am not low in IgA.) I hope you find some answers in this, good luck!

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      121,173
    • Most Online (within 30 mins)
      7,748
    Art34
    Newest Member
    Art34
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Eldene
      Sore muscles

      By Eldene · Posted

      I walk fast for fitness, 4 to 6 km per day. I am also 74 years old. Apart from the Celiac challenge, my lifestyle is healthy. I had a sciatiac nerve pinching under my one foot, with inflamation in my whole shin. It was almost cured, when the other shin started paining and burning. I do stretches, use a natural cooling gel and rest my feet. Can Celiac cause muscle pains/inflamation, or is it just over-excercising?
    • LovintheGFlife
      Trader Joe's grocery prodcuts

      By LovintheGFlife · Posted

      I recently started shopping at a nearby Trader Joe's store. I was surprised at the number and variety of (healthy) gluten-free options sold there. I must admit their low prices are also quite tempting. However, I am curious as to the labeling on all their packages. While none of their products are certified as gluten-free, many are identified as 'GLUTEN FREE' on the packaging. Are these items safe for celiacs? Has anyone tried Trader Joe's products and have there been any adverse reactions?
    • Beverley Ann Johnson
      Gluten challenge

      By Beverley Ann Johnson · Posted

      HI, my doctor suggested one week of consuming gluten before blood tests.  I have been gluten free for 3 years.  Has anyone been through this and will I get exact results after one week of consuming gluten?  I don't even know if I can do this, if I get sick I am not sure if I can continue, any suggestions??  Thanks in advance.  
    • Denise I
      Celiac Disease Dietician

      By Denise I · Posted

      I did reach out to them on April 4th and left a message. I will try calling again. Thank you!
    • trents
      Not Sure What to Think

      By trents · Posted

      PPI's can be a wonderful healing agent when used as prescribed on the label which I believe recommends use of up to 8 weeks. But they are like antibiotics in that they are overprescribed and undermonitored. Docs generally prescribe them and then keep prescribing them because they take care of immediate symptoms so well. Physicians are more into treating symptoms than uncovering causes.
×
×
  • Create New...