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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

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Had anyone on this site have both fibro & celiac and once going gluten free got rid of their fibro???

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I was diagnosed with fibro a couple of years before my surprise celiac diagnosis. After trying both Cymbalta and Lyrica and having neither help, I gave up on the idea of ever feeling better. Much to my surprise, the longer I have been gluten free (just over a year now) the less all over pain I have. It hasn't gone away, and because I also have CRPS it can be difficult for me at times to gauge pain in the rest of my body, but I can say that outside of the times that I am glutened it is rare for the pain in the rest of my body to bother me. It isn't that I don't have any, it is that it is so small compared to how it used to be that it is hardly worth noticing.

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Mmmmmm very interesting,your post has made me very happy indeed :) thank you so much!! Question if I may ask, what's that other item you suffer from?

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I was diagnosed with Fibromyalgia seven months after my Celiac Dx.  I had horrid reaction to the first fibro drug I was given - Savella -- not surprising as I have been given a host of meds over the years for my autoimmune symptoms -- all failed miserably.  I did have some success by supplementing targeted amino acids - sadly this was short-lived and the relapse was the worst flare of my entire life.

 

I am now doing very well on my VERY limited diet -- last year this time I was the "human amoeba" and needed hubby to carry me to the bathroom.  Today I am vertical and slowly regaining a very fulfilling life.  I hope meds help you more than they did me or my daughter -- but if they fail -- take a look at other foods - may help and can't hurt.

 

ps...my daughter was dx'd with fibro at 13...she turns 30 soon and while still battles many AI issues daily - her fibro has improved gluten-free and returned when one of her lupus meds changed and had hidden gluten in it.

Edited by GottaSki

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I was the opposite - I had been gluten (and dairy) free for years before dealing with fibromyalgia.  Based on what's happened leading up to it and through it and since then, though, I strongly suspect that it was - amongst other things that simply made me prone to it - an incredibly stressful job that lead to the problem.

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I'm not officially fibro yet ,my doc isn't convinced yet.At 37 male and fit prior to my injury he isn't leaning towards fibro just yet.Given my symptoms are some tender points the main problem is muscle rigid ness for example when I flex and let go my muscles are like molasses going back to their original position.No real pain unless I over do it .Plus I have a constant post nasal drip and swollen sinuses.When I get a system wide flare my sinuses hurt the most,I get really itchy ears,pain in muscles and anxious .Not really fatigued or anything ,and all my symptons take days to get over.I equated this to everytime I get glutened by accident or my own stupidity.While I'm off gluten I still get aches and pains so my doctor is testing me Thursday for Lyme disease,systemic candida ,histamine intolerence and I'm gonna ask for adrenal saliva test depending on $$$ .I believe that my problem is in my gut and gluten had a lot to do with it.I took gluten out and I don't need tums or Zantac anymore ,now I need to know what else is causing my sinus/muscle issues.

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Complex Regional Pain Syndrome

Mmmmmm very interesting,your post has made me very happy indeed :) thank you so much!! Question if I may ask, what's that other item you suffer from?

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I was dx with Fibro in 1999 while in the Navy after an injury. Though I have a new Celiac dx, I have done low carb and gluten free many times in the past few years and each time the Fibro did get a lot better.

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Mmmmmm very interesting,your post has made me very happy indeed :) thank you so much!! Question if I may ask, what's that other item you suffer from?

 

I was slow in getting back, but it got nailed for me. Yes, it is CRPS. Sort of makes fibro pale in comparison for me, but I still wouldn't wish fibro on anyone. Good luck with the gluten free helping you.

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    • Lex_, Again I am afraid Ennis_Tx is right here. Ennis_tx eats right and is eating all the right things and still has to take/supplement with Magnesium. The magnesium is a clue?  We need magnesium to make energy. I like to say as chlorophyll is to photosynthesis for the plant so is Magnesium for/to the Animal(s). Meaning we will run down without it. It is said "we waste away without enough Magnesium" Dr. Carolyn Dean wrote the book "The Magnesium Miracle" because people genuinely feel terrific when they take it. they are able to make energy again and function properly but the question remains  why? are we low in it the first place if we need it so much. Iron plays the same role in the blood/respiration but people still get IDA. It turns out low stomach acid limits our ability to absorb Magnesium and Iron. see this link about the role of gastric acid in Iron absorption. https://www.ncbi.nlm.nih.gov/pubmed/7286584/ How do we know this.  . . well it is has been studied and proven. look no further than the FDA box warning on PPI's entitled "FDA Drug Safety Communication: Low magnesium levels can be associated with long-term use of Proton Pump Inhibitor drugs (PPIs)" https://www.fda.gov/drugs/drugsafety/ucm245011.htm now this takes about 6 months of use to become low in magnesium but being low in stomach acid limits our ability to absorb Magnesium and why many people have to take it at 2x to 3x the RDA to get the desired effect. In fact the FDA says only stopping PPI's will reverses this condition.  Obviously  taking higher amount of Magnesium can help alleviate some of these symptom's but only raising the stomach acid will completely alleviate the condition. quoting "Although both patients' hypomagnesemia partially resolved with intravenous replacement, in both cases discontinuation of PPI treatment was necessary to stop ongoing symptoms and to stop magnesium loss." Hypomagnesimia is critically low Magnesiums akin to IDA. here is a thread about IDA and why this is so . . .  low stomach acid leads to low Iron levels. I think it will help explain why Celiac's often have to take Magnesium to help with their chronic fatigue symptom's. I hope this is helpful but when I helped my stomach acid levels my Magnesium begin to be better absorbed from the food I was eating. Nuts are good Magnesium sources especially Cashews and Almonds. So is chocolate hence Ennix_tx cocoa nibs etc. . . ***** this is not medical advice but I know taking Magnesium Citrate helped my energy levels. posterboy by the grace of God, 2 Timothy 2: 7 “Consider what I say; and the Lord give thee understanding in all things”        
    • Lots of people are diagnosed after 50 according to this https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3227015/  
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    • Nobody posted anything on my profile that I'm aware of but it wouldn't let me get into it. My email got hacked though right around the same time so I just figured it was connected. I'm not exactly Y2K ready. This is the first computer I ever bought and I still have a flip phone. Maybe it's not connected. Don't really know. 
    • Ouch I am sorry . I know how painful bone,  joint, muscle pain can last weeks for me . Hopefully you'll be able to clear it quickly if otherwise you have been healthy this season. As others suggested some TLC , vitamins, mineral to assist may help. I find accupuncture helpful too or massage. As for a gluten-free pizza I can no longer have them due to additional intolerances to milk. I in past days found sabatassos gluten free pizza carried at my local Costco pretty yummy if you can find it.
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