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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

Fibro & Celiac
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I was diagnosed with fibro a couple of years before my surprise celiac diagnosis. After trying both Cymbalta and Lyrica and having neither help, I gave up on the idea of ever feeling better. Much to my surprise, the longer I have been gluten free (just over a year now) the less all over pain I have. It hasn't gone away, and because I also have CRPS it can be difficult for me at times to gauge pain in the rest of my body, but I can say that outside of the times that I am glutened it is rare for the pain in the rest of my body to bother me. It isn't that I don't have any, it is that it is so small compared to how it used to be that it is hardly worth noticing.

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Mmmmmm very interesting,your post has made me very happy indeed :) thank you so much!! Question if I may ask, what's that other item you suffer from?

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I was diagnosed with Fibromyalgia seven months after my Celiac Dx.  I had horrid reaction to the first fibro drug I was given - Savella -- not surprising as I have been given a host of meds over the years for my autoimmune symptoms -- all failed miserably.  I did have some success by supplementing targeted amino acids - sadly this was short-lived and the relapse was the worst flare of my entire life.

 

I am now doing very well on my VERY limited diet -- last year this time I was the "human amoeba" and needed hubby to carry me to the bathroom.  Today I am vertical and slowly regaining a very fulfilling life.  I hope meds help you more than they did me or my daughter -- but if they fail -- take a look at other foods - may help and can't hurt.

 

ps...my daughter was dx'd with fibro at 13...she turns 30 soon and while still battles many AI issues daily - her fibro has improved gluten-free and returned when one of her lupus meds changed and had hidden gluten in it.

Edited by GottaSki

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I was the opposite - I had been gluten (and dairy) free for years before dealing with fibromyalgia.  Based on what's happened leading up to it and through it and since then, though, I strongly suspect that it was - amongst other things that simply made me prone to it - an incredibly stressful job that lead to the problem.

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I'm not officially fibro yet ,my doc isn't convinced yet.At 37 male and fit prior to my injury he isn't leaning towards fibro just yet.Given my symptoms are some tender points the main problem is muscle rigid ness for example when I flex and let go my muscles are like molasses going back to their original position.No real pain unless I over do it .Plus I have a constant post nasal drip and swollen sinuses.When I get a system wide flare my sinuses hurt the most,I get really itchy ears,pain in muscles and anxious .Not really fatigued or anything ,and all my symptons take days to get over.I equated this to everytime I get glutened by accident or my own stupidity.While I'm off gluten I still get aches and pains so my doctor is testing me Thursday for Lyme disease,systemic candida ,histamine intolerence and I'm gonna ask for adrenal saliva test depending on $$$ .I believe that my problem is in my gut and gluten had a lot to do with it.I took gluten out and I don't need tums or Zantac anymore ,now I need to know what else is causing my sinus/muscle issues.

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Complex Regional Pain Syndrome

Mmmmmm very interesting,your post has made me very happy indeed :) thank you so much!! Question if I may ask, what's that other item you suffer from?

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I was dx with Fibro in 1999 while in the Navy after an injury. Though I have a new Celiac dx, I have done low carb and gluten free many times in the past few years and each time the Fibro did get a lot better.

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Mmmmmm very interesting,your post has made me very happy indeed :) thank you so much!! Question if I may ask, what's that other item you suffer from?

 

I was slow in getting back, but it got nailed for me. Yes, it is CRPS. Sort of makes fibro pale in comparison for me, but I still wouldn't wish fibro on anyone. Good luck with the gluten free helping you.

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    • No, not really. I had done my homework, so I reduced all grains substancially to give my guts a chance to heal. I increased all vegetables substancially and am basically going high fat, low carb.  That is why I had a few hicups along the way, my diet was too high in FODMAPs (nuts, fruit, avocados) but I made the necessary adjustments.  I think my hairloss is finally slowing down, but my skin is getting worse, pimply on chest and neck.
    • You might want to see about getting the blood test done again and getting a full celiac panel. You have to be consuming gluten daily for 12 weeks before the test. At least half a slice of bread a day. And keep eating gluten til you get the endoscope. The endoscope with biopsy is the golden standard as some people do not show up on the blood test.

      You mentioned itchiness and redness, look up DH and tell me if it looks like. If you have DH then you HAVE celiac. They test it by taking a skin biopsy from a clear spot next to one of the lesions and testing it.

      I have seen some others with this disease distend where they look pregnant when they get glutened. I have some distention but never that bad, just a obvious bump that pressing out. 
    • Juca hun.....you just responded and tried talking to a person that has been gone for 12 years....please check the date
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