• Join our community!

    Do you have questions about celiac disease or the gluten-free diet?

  • Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
0
pryforma

Blood Test Results Of My 8 Year Old

Rate this topic

Recommended Posts

I finally got a copy of the results of my 8 year old, so here it goes...trying to write exactly how it shows

 

IgE - 116                                               reference range <91 

 

Gliadin, IgA, tTG Ab IgA 

IgA       106                                          reference range 41-368

 

 

Iadin (deamidated ) Ab Pnl , IgA/IgG

DGP Antibodt IgA      25.67                 reference range <20.00

 

 

DGP IgA Reference Range

<20.00         Negative

20.00-30.00 Weak Positive

>30.00         Positive  

 

 

GP Antibody , IgG        44.36          reference range <20.00

 

DGP IgG Reference Range

 

<20.00         Negative

20.00-30.00 Weak Positive

>30.00         Positive  

 

TISSUE TRANGSGLUTAMINASE Ab,  IgA 

tTG Antibody , IgA        98.67          reference range <20.00

 

 

<20.00         Negative

20.00-30.00 Weak Positive

>30.00         Positive 

 

IgE 116

DGP Antobody IgA 25.67

DGP Antobody IgA result    - weak positive

 

DGP Antobody , IgG 44.36

DGP Antobody , IgG - Positive

 

tTg antobody IgA 98.67

tTg antobody IgA result - Positive

 
She was off gluten for 10 days when she had the blood test done 
 
Any opinion?
 
UPDATE ON THE ENDOSCOPY-
 
She had her endoscopy today, before it was done I asked her gi doctor how many "pieces" he was gong to take out for the biopsy, I was worried that it wouldn't be enough so when he said 15 to 20  I was pleased because I knew the chances of missing would be very little...
 
I asked  if  maybe he would be able to tell me anything today, he said that sometimes he can see something , sometimes nothing at all but of course we would talk about after the procedure and  even if he didn't see anything the biopsy would give the results of course.
 
Mind you she was GLUTEN FREE FOR 3 WEEKS then BACK ON GLUTEN FOR 10  DAYS for the biopsy today. When she had her blood test done she was gluten free for 10 days .
 
After the biopsy he came back and said  that pretty certain is  celiac from what he saw which was  lots and lots of redness everywhere, he showed me one picture of a small red lump ( can't remember the name) that was ready to burst so with all the inflammation/redness this is it he said to go gluten free from now on....BUT whatever the results were going to be, she was going to be back on gluten free diet today,  I was not going to wait for the biopsy , regardless of the results I was going to get her back on her diet, she feels so much better no way I was going to put her through more pain just because of the results , she even wants to be back on gluten free and she is the pickiest eater so no doubt she feels really crappy when she eats gluten.
 
A little relieved that we found for sure what is going on with her.
 
Thank you for the replies .I will update with her biopsy.
Edited by pryforma

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


From what i've seen, I'd say, yeah, it may indeed be celiac, especially since that was taken after a short period of being gluten free and still be positive. Are you going to do the biopsy?

Share this post


Link to post
Share on other sites

Has anyone asked about you or your spouse about your medical history?  Do either of you have digestive or other issues.? It can be piece of the puzzle, as well.

  • Upvote 1

Share this post


Link to post
Share on other sites

Yes she is having a biopsy soon.

No my husband and i don't have any problems with gluten .

She  has stomachache , gas, bloated, constipation, very irritable , got worse since last year.

 

 

Anybody else wants to help me out? Would you consider based on this test a diagnosis for celiac?

 

Thanks!

Share this post


Link to post
Share on other sites

Yes.  She has Celiac Disease - in my opinion.

 

With those blood results on gluten light - she needs to be seen by the best celiac gi pediatric specialist you have locally.  

 

Don't remove gluten until you have the endoscopy - not all gi's are equal  when it comes to celiac disease.  No need to overdo the consumption.  One half of a grilled cheese should be fine until the biopsy.  Oh...there is a great article with regard to proper endo procedure...

 

http://www.charlotte-celiac-connection.org/files/Celiac_Disease_How_many_biopsies_for_diagnosis.pdf

 

Mushroom gets credit for this one.

 

Let us know how it goes...and feel free to ask more ?s

Share this post


Link to post
Share on other sites
Ads by Google:


I agree that she is a celiac. Every single celiac test that she was given produced a positive result; not many around here get such a clear cut diagnosis. Regardless of what her biopsy says (could be negative if the doctors miss the damage - it happens) I would make her diet gluten-free.

 

You might want to have the doctors check her nutrient levels as celiacs are often low in some. The B's (B12 seems the most commonly low), D, calcium, ferritin and iron, and potassium are often low.

 

You might want to have the rest of the family checked for celiac as it can run in families. Celiac can be "silent' and present no symptoms so a quick blood test could possibly save someone's health.

 

Best wishes to your 8 year old.

  • Upvote 1

Share this post


Link to post
Share on other sites

I agree that she is a celiac. Every single celiac test that she was given produced a positive result; not many around here get such a clear cut diagnosis. Regardless of what her biopsy says (could be negative if the doctors miss the damage - it happens) I would make her diet gluten-free.

 

You might want to have the doctors check her nutrient levels as celiacs are often low in some. The B's (B12 seems the most commonly low), D, calcium, ferritin and iron, and potassium are often low.

 

You might want to have the rest of the family checked for celiac as it can run in families. Celiac can be "silent' and present no symptoms so a quick blood test could possibly save someone's health.

 

Best wishes to your 8 year old.

Thank you for your reply ,eventually we will all get tested,it was hard to put her back on gluten she got all of her symptoms back , stomachache , paleness , low energy, thank goodness this will be over soon and we will be back on gluten free.

Share this post


Link to post
Share on other sites

an anybody tell me if he will be able to give me any information after the endoscopy like if he saw anything ,.. can he tell me anything after? I know I have to wait for the biopsy but I was just wondering if he will be able to give me any info ..

 

Thank you

Share this post


Link to post
Share on other sites

Generally speaking, unless in the cases where it has gone undiagnosed for a long period of time, there probably won't be visible damage. They do, generally, say if they see something though from my experience.

Share this post


Link to post
Share on other sites

My doctor tells me what he sees -- more like tells my hubby as I am out of it from the sleepy drugs they use.

 

Then there is a written procedure report from doctor -- this is often ready before the written pathology report which takes about a week.

Share this post


Link to post
Share on other sites


Ads by Google:


She very clearly has celiac disease.  Even if the biopsy is negative, she should still go gluten free.  Think of the diet as the "final" test.  Trust your instincts.

 

You may think you and your husband don't have an issue with gluten but you could be surprised.  I tested positive after my son was diagnosed and we started the diet together.  I thought I was just getting old (aches and pains, headaches, brain fog, insomnia, etc.) and all that went away when I went gluten free.

 

If you have other children, they should be tested - regardless of symptoms.  And re-test every 2 years.

 

cara

Share this post


Link to post
Share on other sites

Hi I updated about the endoscopy of my daughter on my first post , but I have a question... is it possible to come back negative the biopsy after what doctor saw on the endoscopy? He said to go off gluten but I didn't like the fact the he said before that of the biopsy is negative she does not have celiac :/ regardless we will be gluten free, just wondering what do you all think ....

 

thank you@!

Share this post


Link to post
Share on other sites

A biopsy being negative does NOT rule out Celiac Disease.  Have you received the results?

 

I do think that once the endoscopy is complete it is time to remove gluten.

 

Hang in there Mom!

Share this post


Link to post
Share on other sites

her biopsy came back and it's positive, thanks everybody for the help!

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      108,923
    • Total Posts
      943,527
  • Member Statistics

    • Total Members
      67,139
    • Most Online
      3,093

    Newest Member
    Kymy02
    Joined
  • Popular Now

  • Topics

  • Posts

    • You don't have Turner's Syndrome do you? My niece was diagnosed with celiac disease which later led to a diagnoses of Turner's. There is evidently some sort of connection between the two. They gave her shots of HGH to help her grow because she too was very short.
    • Kim, I tried with those two doctors you mentioned and didn't have much luck at all. They are from the Ohio Liver and GI group. The local support group isn't local and the webpage hasn't been updated in 4 years and it seems that nobody with celiac disease wants to talk about things that help out here in Cinciny. I actually posted a similar plea for help some time ago laryssabeth. I went to the local dietitian that was recommended named Anita Duck but she was no help at all. It was a total waste of money and time in my opinion. She didn't know about cross contamination, parts per million, the different certification organizations and so on. I live in Bellevue, Ky. The so called "local group" that can't be reached actually is in Centerville area almost an hour from me. You both sound local and I'd love to bounce questions off of both of you on things you've tried, successes and failures. What part of town are you two from?
    • A quick perusal of Dr. Brownstein's website outs him quite quickly as a purveyor of pseudoscience. Though he may be an MD, he appears to have abandoned evidence in favour of selling stuff people don't need by making them afraid, using his authority as a doctor. Like all such individuals, what he says has some basis of truth (eg. hypothyroid disorders are quite common, the average North American has a terrible diet), but he twists it to create fear and take advantage of those who are less scientifically literate. Conspiracy theories abound to be found at: http://www.drbrownstein.com/dr-bs-blog/ Here is a criticism of his work: https://sciencebasedmedicine.org/does-your-antivax-doctor-have-another-agenda/
    • Almost 2 years into my diagnosis after losing about 35-40 pounds I have now added about 60 with clean gluten free eating. I also changed jobs which for me has been much more of a physical change, thus needing more calories I have finally been able to put back some pounds. It is possible, for me the clean diet which helped restore my guts let me finally start absorbing the nutrients I was lacking. 
    • Hi Niza, Try to eat lots of protein.  Meats, peanut butter, avocadoes, things like that.  Try to avoid processed (pre-made) foods like frozen pizza, cereals, pot pies, cookies etc.   There gluten-free versions of many of these foods, but they are best saved for later on like 6 months after going gluten-free. If you are just starting out gluten-free, eat a simple diet of mostly foods you make yourself at home.  Also, try not eat eating any dairy (milk, cheese etc) for a couple months.  Oats are also a thing to avoid eating for a couple months.  You may not have any problem with dairy or oats, but some people do. Welcome to the forum Niza!
  • Upcoming Events