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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

Blood Test Results Of My 8 Year Old
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I finally got a copy of the results of my 8 year old, so here it goes...trying to write exactly how it shows

 

IgE - 116                                               reference range <91 

 

Gliadin, IgA, tTG Ab IgA 

IgA       106                                          reference range 41-368

 

 

Iadin (deamidated ) Ab Pnl , IgA/IgG

DGP Antibodt IgA      25.67                 reference range <20.00

 

 

DGP IgA Reference Range

<20.00         Negative

20.00-30.00 Weak Positive

>30.00         Positive  

 

 

GP Antibody , IgG        44.36          reference range <20.00

 

DGP IgG Reference Range

 

<20.00         Negative

20.00-30.00 Weak Positive

>30.00         Positive  

 

TISSUE TRANGSGLUTAMINASE Ab,  IgA 

tTG Antibody , IgA        98.67          reference range <20.00

 

 

<20.00         Negative

20.00-30.00 Weak Positive

>30.00         Positive 

 

IgE 116

DGP Antobody IgA 25.67

DGP Antobody IgA result    - weak positive

 

DGP Antobody , IgG 44.36

DGP Antobody , IgG - Positive

 

tTg antobody IgA 98.67

tTg antobody IgA result - Positive

 
She was off gluten for 10 days when she had the blood test done 
 
Any opinion?
 
UPDATE ON THE ENDOSCOPY-
 
She had her endoscopy today, before it was done I asked her gi doctor how many "pieces" he was gong to take out for the biopsy, I was worried that it wouldn't be enough so when he said 15 to 20  I was pleased because I knew the chances of missing would be very little...
 
I asked  if  maybe he would be able to tell me anything today, he said that sometimes he can see something , sometimes nothing at all but of course we would talk about after the procedure and  even if he didn't see anything the biopsy would give the results of course.
 
Mind you she was GLUTEN FREE FOR 3 WEEKS then BACK ON GLUTEN FOR 10  DAYS for the biopsy today. When she had her blood test done she was gluten free for 10 days .
 
After the biopsy he came back and said  that pretty certain is  celiac from what he saw which was  lots and lots of redness everywhere, he showed me one picture of a small red lump ( can't remember the name) that was ready to burst so with all the inflammation/redness this is it he said to go gluten free from now on....BUT whatever the results were going to be, she was going to be back on gluten free diet today,  I was not going to wait for the biopsy , regardless of the results I was going to get her back on her diet, she feels so much better no way I was going to put her through more pain just because of the results , she even wants to be back on gluten free and she is the pickiest eater so no doubt she feels really crappy when she eats gluten.
 
A little relieved that we found for sure what is going on with her.
 
Thank you for the replies .I will update with her biopsy.
Edited by pryforma

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From what i've seen, I'd say, yeah, it may indeed be celiac, especially since that was taken after a short period of being gluten free and still be positive. Are you going to do the biopsy?

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Has anyone asked about you or your spouse about your medical history?  Do either of you have digestive or other issues.? It can be piece of the puzzle, as well.

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Yes she is having a biopsy soon.

No my husband and i don't have any problems with gluten .

She  has stomachache , gas, bloated, constipation, very irritable , got worse since last year.

 

 

Anybody else wants to help me out? Would you consider based on this test a diagnosis for celiac?

 

Thanks!

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Yes.  She has Celiac Disease - in my opinion.

 

With those blood results on gluten light - she needs to be seen by the best celiac gi pediatric specialist you have locally.  

 

Don't remove gluten until you have the endoscopy - not all gi's are equal  when it comes to celiac disease.  No need to overdo the consumption.  One half of a grilled cheese should be fine until the biopsy.  Oh...there is a great article with regard to proper endo procedure...

 

http://www.charlotte-celiac-connection.org/files/Celiac_Disease_How_many_biopsies_for_diagnosis.pdf

 

Mushroom gets credit for this one.

 

Let us know how it goes...and feel free to ask more ?s

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I agree that she is a celiac. Every single celiac test that she was given produced a positive result; not many around here get such a clear cut diagnosis. Regardless of what her biopsy says (could be negative if the doctors miss the damage - it happens) I would make her diet gluten-free.

 

You might want to have the doctors check her nutrient levels as celiacs are often low in some. The B's (B12 seems the most commonly low), D, calcium, ferritin and iron, and potassium are often low.

 

You might want to have the rest of the family checked for celiac as it can run in families. Celiac can be "silent' and present no symptoms so a quick blood test could possibly save someone's health.

 

Best wishes to your 8 year old.

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I agree that she is a celiac. Every single celiac test that she was given produced a positive result; not many around here get such a clear cut diagnosis. Regardless of what her biopsy says (could be negative if the doctors miss the damage - it happens) I would make her diet gluten-free.

 

You might want to have the doctors check her nutrient levels as celiacs are often low in some. The B's (B12 seems the most commonly low), D, calcium, ferritin and iron, and potassium are often low.

 

You might want to have the rest of the family checked for celiac as it can run in families. Celiac can be "silent' and present no symptoms so a quick blood test could possibly save someone's health.

 

Best wishes to your 8 year old.

Thank you for your reply ,eventually we will all get tested,it was hard to put her back on gluten she got all of her symptoms back , stomachache , paleness , low energy, thank goodness this will be over soon and we will be back on gluten free.

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an anybody tell me if he will be able to give me any information after the endoscopy like if he saw anything ,.. can he tell me anything after? I know I have to wait for the biopsy but I was just wondering if he will be able to give me any info ..

 

Thank you

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Generally speaking, unless in the cases where it has gone undiagnosed for a long period of time, there probably won't be visible damage. They do, generally, say if they see something though from my experience.

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My doctor tells me what he sees -- more like tells my hubby as I am out of it from the sleepy drugs they use.

 

Then there is a written procedure report from doctor -- this is often ready before the written pathology report which takes about a week.

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She very clearly has celiac disease.  Even if the biopsy is negative, she should still go gluten free.  Think of the diet as the "final" test.  Trust your instincts.

 

You may think you and your husband don't have an issue with gluten but you could be surprised.  I tested positive after my son was diagnosed and we started the diet together.  I thought I was just getting old (aches and pains, headaches, brain fog, insomnia, etc.) and all that went away when I went gluten free.

 

If you have other children, they should be tested - regardless of symptoms.  And re-test every 2 years.

 

cara

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Hi I updated about the endoscopy of my daughter on my first post , but I have a question... is it possible to come back negative the biopsy after what doctor saw on the endoscopy? He said to go off gluten but I didn't like the fact the he said before that of the biopsy is negative she does not have celiac :/ regardless we will be gluten free, just wondering what do you all think ....

 

thank you@!

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A biopsy being negative does NOT rule out Celiac Disease.  Have you received the results?

 

I do think that once the endoscopy is complete it is time to remove gluten.

 

Hang in there Mom!

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