• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

I Get To Gluten Myself - Endo Next Friday
0

10 posts in this topic

Hello,

 

Well, it's been over 2 months that I have gone gluten-free and I have no complains with the diet - I can't believe how crappy I used to eat so I'm happy I eat more fruits, veggies and hardly any processed garbage anymore.  I know I have accidentally glutened myself a few times because my stomach problems start up again and normally last for 2 days - usually happens at work when I can't turn down a cookie or I put the wrong salad dressing on my lunch.

 

Although I feel much better, I'm still losing weight (down to 94 lbs now) and one thing didn't go away - I have burning/pressure in my upper stomach and sometimes as the day goes by it can get worse.  Only thing that makes me feel better is to drink a New Planet Beer or a hard cider - bubbly, which will make me burp.  But it comes back and sometimes I have a problem at night going to bed with that pressure.

 

I went to see the Gastro today to talk to her about and she scheduled the endo for next Friday. She pressed on my stomach and down my my intestines it didn't hurt like it used to but my upper stomach sort of hurt when she pressed on it - not stabbing pain, but pressure.  I am to gluten up again until next Friday (not looking forward to that but I'll do what I gotta do).  She is going to check for H-Pylori - what is that? And she wants to check for ulcers/hernia?  Plus I'll get a biopsy done for the celiac.

 

I just hope I get somewhere with all this.  Anyone ever have H-Pylori or an ulcer?

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Over what time period have you lost the 94 lbs? I asked because I've put on an additional 150lbs in the past 5 years...despite revision to WLS and healthier eating...wondering if the key is going gluten free waiting for tests etc to go....

0

Share this post


Link to post
Share on other sites

I didn't lose 94 pounds but I went from 106 to 94 in a year's timeframe....still eating like a pig until gluten free a couple of months ago.  I've always been thin, late bloomer as a child and had the symptoms for years.  Felt better a few years ago and then bam, back again.

0

Share this post


Link to post
Share on other sites

I didn't lose 94 pounds but I went from 106 to 94 in a year's timeframe....still eating like a pig until gluten free a couple of months ago.  I've always been thin, late bloomer as a child and had the symptoms for years.  Felt better a few years ago and then bam, back again.

Ah sorry I see I misread. I know it can be frustrating at either end of the spectrum. Feeling better is what is important, I hope you get some answers. I'm scheduled to see a GI April 1st. I saw one 5 years ago I just went for GI symptoms no idea other issues might all be related...as he was telling me what he was going to test for he said he would do a blood test to rule out Celiac but he didn't suspect it as most are under not over weight, and he said it was neg, I have no idea what all tests were run, etc...I need to get a copy to see...he just deemed me IBS and sent me on my way. 

0

Share this post


Link to post
Share on other sites

Yup...was dx'd years ago with IBS....I think there is more to it. I have read so many posts about people being overweight with celiac so it still could be your problem. Are you feeling batter if you go gluten free? Helped me big time but now I am glutening on beer and chocolate chip cookies :-) God help me

0

Share this post


Link to post
Share on other sites
Ads by Google:


Do you chew gum? That can cause a lot of excess stored air into your system which can create feelings of pressure. But if bubbly stuff helps, maybe expanding your options outside of alcohol might also alleviate issues? I am a huge lover of ginger beer (ginger ale is to weak tasting) for a caffeine-free, nonalcoholic bubbly drink, and the ginger can help with stomach issues.  

Enjoy the cookies!

0

Share this post


Link to post
Share on other sites

Yup...was dx'd years ago with IBS....I think there is more to it. I have read so many posts about people being overweight with celiac so it still could be your problem. Are you feeling batter if you go gluten free? Helped me big time but now I am glutening on beer and chocolate chip cookies :-) God help me

I just made the connection last Wednesday, have appt April 1 and given my first blood test supposedly were negative I'm not trying to go gluten free until after testing. It's kinda hard mentally because I do cook and eat fresh foods, when I lived in FL I belonged to an organic fruit and veg buying club, but I do still eat whole wheat bread, pasta, "healthy" carbs and fiber you know fiber for the IBS...grrrr. So it's hard to continue to eat thinking I might just be poisoning myself but then knowing to get the answer I need to keep my normal eating for now.

0

Share this post


Link to post
Share on other sites




Yep ginger ale too but my 1 beer is right after work. I do chew gum at work and am trying to cut back.

Well to most people everyday food is normal and we are "special". Just glad they have gluten free breads and pastas!

Stinks that we have to gluten again for tests. I wasn't going to but since they want to check for h-pylori then might as well do it and get it over with.

0

Share this post


Link to post
Share on other sites

Smylinacha,

 

I just went through this. Spent the past 4 months having the same symptoms you are experiencing - pressure in chest, burning, waking from sleep, etc...  I had my endoscopy a little over a month ago.  It ended up being Eosinophilic Esophagitis (EE).  Basically, I had an allergy to something (probably gluten, as I've been eating gluten for 10 years now, after a suspected misdiagnosis of Celiac which turns out may have actually been there all along (results come in this Friday)), either in the environment or in food, and it has developed and irritated my esophagus over time to the point where I developed strictures at the bottom of the esophagus, and ridges like a ruffles potato chip on my esophagus from the reaction, which in turn makes my esophagus hard and not flexible.

 

So when you eat, your esophagus is not bringing the food directly into your stomach as it should. Rather, it irritates your esophagus further and some of the food sits on the ledge of the stricture at the bottom of your throat entry-point into your stomach, waiting to "fall in."  This sensation mimics a heart attack due to the pressure it causes.  The treatment is a steroidal inhaler like people take for asthma, but instead of inhaling, you puff and swallow, to heal the reaction in your throat. It takes about a week, but then you will feel back to 90%. The treatment lasts for 6 weeks, twice daily, four puffs total. If this doesn't help, then the next step is to perform another endoscopy and stretch the stricture, removing the "ledge" that has formed at the bottom of the throat.

 

Also, H. Pylori is a bacteria that half the population has, but 80% are asymptomatic. However, 20% experience symptoms from the bacteria's cylindrical shape possessing the ability to grind through the stomach lining, causing ulcers, bloody/coffe-ground-like vomit, blood stools, and a myriad of other gastrointestinal issues.  Treatment is a hard course of strong antibiotics for about two weeks.

0

Share this post


Link to post
Share on other sites

SSorry you have EE. But at least there is a medication for it. Not sure what this is as it isn't painful but just pressure. Not as bad today and don't know why. Gluten day 5 and my stomach isn't as bad as I thought but I have all the other symptoms which I will post. As form the h-pylori, no bloody vomit or stools. Keep us posted on your results on Friday and thanks form the reply as I will do some research on EE :-)

0

Share this post


Link to post
Share on other sites




Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      107,341
    • Total Posts
      935,591
  • Member Statistics

    • Total Members
      65,004
    • Most Online
      3,093

    Newest Member
    susa
    Joined
  • Popular Now

  • Topics

  • Posts

    •     http://www.takepart.com/article/2014/08/11/coffee-adulterated https://www.thetimes.co.uk/article/how-was-your-morning-coffee-did-it-taste-like-mud-v6rfdmrrr92 http://grist.org/food/coffee-taste-like-dirt-thats-because-it-might-be/ " Using liquid chromatography, which identifies the individual chemical components of a mixture, the Brazilian scientists found wheat, soy bean, brown sugar, barley, corn, and rice commonly interspersed with the grounded coffee they tested. Large amounts of wood and dirt were also prevalent, an issue not only for purists who prefer to drink their coffee black, but for those with potential allergies to the unknown additives. As TIME reports, the scientists are identifying the rogue coffee with increasing accuracy:" http://www.bodyandsoul.com.au/health/health-news/is-there-wheat-hidden-in-your-coffee/news-story/a3d53a7c36b76156f08d89eab6a396b3   -----   I have also read other references to coffee upsetting those with celiac.   Personally I have a family history of officially diagnosed celiac even though I have never been diagnosed myself..then again Ive never been properly tested. My drs just keep saying the following symptoms are anxiety and wont refer me to a gastroenterologist for:   Loss of bowel control, pale coloured stools, severe bloating, passing undigested food, ataxia, vertigo, migraine headaches, feeling feverish, repeated ulcers on my tongue and in my mouth, feeling generally ill and sleep issues (mostly falling asleep when I dont want to but rarely insomnia).   Because they insist its anxiety as routine blood tests are normal they wont refer me to a gut dr. They did do a blood test for celiac once on my request but it came back negative. This does not phase me when it comes to my suspicians that gluten is an issue for me because:   1 I was on a gluten free diet at the time, hence why i was well enough to crawl to the gps office. 2 I have a family history of celiac 3 MY symptoms are alleviated by a gluten free, dairy free, oat free, corn free diet..and lately, coffee free it seems. Coffee has indeed become a problem for me recently. 4 I could not tolerate gluten based baby foods as an infant. I was admitted to hospital as a baby for being underweight because I was vomitting all my food up. They put me on gluten free formula and i was fine, stopped being sick and gained weight. I could have grown out of it but considering the symtpoms i get on a gluten based diet, i really doubt it.   -----   When it comes to the coffee, food manufacturers will do most anything to make profits if they think they can get away with it. We live in a world where money is most important and if they do get caught...they can always claim they have no idea how the barley got in there!    
    • If you have had a sleep study and been diagnosed, you have sleep apnea. It's definitely different than waking up to go to the bathroom. Are you using your cpap every night for The entire night. Naps too? SA can actually cause death so it's very Important for you to use it every time you sleep. Do you follow up with your doctor yearly? Sorry to sound like the SA police, but I know someone who died from it. He wasn't using his cpap anymore, thought it was uncomfortable.     What Is Sleep Apnea?   Sleep apnea (AP-ne-ah) is a common disorder in which you have one or more pauses in breathing or shallow breaths while you sleep. Breathing pauses can last from a few seconds to minutes. They may occur 30 times or more an hour. Typically, normal breathing then starts again, sometimes with a loud snort or choking sound. Sleep apnea usually is a chronic (ongoing) condition that disrupts your sleep. When your breathing pauses or becomes shallow, you’ll often move out of deep sleep and into light sleep.
    • Summer sausage, rope sausage or link sausage? what were the ingredients? Msg makes me dizzy.
    • I found it confusing as to whether this was gluten or free not.  However, I've not had gluten in two weeks now and had Hillshire Farms beef sausage this morning and my head is literally spinning.  I'm going to assume I shouldn't have eaten it.  It was good......but will avoid it from now on.
    • I've suffered with this for a very long time and never knew it was part of celiac. At age 13 I had the very first episode that I can recall.  Much later in life I had the bad peristalsis that accompanies celiac and would suffer for up to an hour after the initial symptoms began accompanying the D.  Mine would courteously wait until later in the mornings as I would get up at 4AM to get ready for work, and then it would burst upon the scene at about 7:30 AM with a vengeance.  Finally, 17 years ago, I did a search on my computer for causes for D and learned it could be caused by wheat, or celiac most likely.  Afterward I visited my MD who poopoo'd the idea that an adult could possibly have have celiac, her words "That's a children's disease".  She then sent me to gastro for a Sigmo, and it was then labeled IBS.   The symptoms continued until I got all the glutens out of my diet and then there was mostly quiet in my gut.  Then 10 years ago she sent me back to gastro to have a look at why it kept happening, had both upper & lower GI and the old Doc could not confirm anything as by then there was healing. Had it been caught back when I was 13, sure the food choices would have been plain foods instead of the cool pies and cookies offered at home, but better health. BUT, yes Night D does accompany celiac disease.
  • Upcoming Events