• Join our community!

    Do you have questions about celiac disease or the gluten-free diet?

  • Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

Rate this topic

Recommended Posts

The good news it that my anti-transglutaminatose antibodies have gone down. They were at 78 in December when I went Gluten Free, now they are at 17.5: still over the 16 which marks the upper level of sensibility, but way down.

 

The other good news is that I have finally understood - I think - that I have to eat CAREFULLY. Which does ot only mean gluten-free and no lactose, but eat LITTLE, chew WELL, do not eat right before going to sleep. And keep to BASIC simple food. And for now, no spicy foods, no alcohol. Chicken, some meat, some fish, rice, some veggies, lots of fresh fruit (oranges, apples, ananas...), eggs, some gluten-free ham, home made gluten-free bread and muffins, sometimes quinoa, mais and gluten-free pasta. I have to resort to some processed food (crackers and the like) when I travel, otherwise I try not to. (These are just the recommendations we read in these forums for all newbies, I know, but everyone has to learn the hard way, I suppose...)

 

I still have very bad days, but I have understood it is not only gluten. Eating too much, drinking alcohol and/or eating spicy foods means that I feel like crap the day after even if I had no gluten at all, and I get back to the big D. My bowels are still too frail to absorb any kind of traumatic food. I'm also trying to follow my instincts and go for the things that make my water mouth (the exceptions are cheeses and creams which I still would like to eat but cannot - for now, hopefully).

 

I also keep a food diary related to symptoms, extremely useful.

 

My energy levels are generally much better. Still not what I would like them to be, but definitely better..

 

 

 

 

 

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


One of the few good things about celiac disease is that it teaches us to eat mindfully :) . that eating is not something that is done by just stuffing something in one's mouth and passing it down the esophagus while watching TV AND reading a book.  That you have come to this realization, that we are what we eat, that food is designed to nourish the body and we have to give OUR bodies the food they need rather than whatever is closest or everybody else is eating, is one of celiac disease's free gifts.   And then the better you feel the more aware you become.  It is all good.  Congratulations on this milestone :)

Share this post


Link to post
Share on other sites

Thank you Mushroom. Very wise words:-)

I've been travelling for two days in France and I'll be travelling again in April for two weeks. This means bringing crackers and stuff to keep up... buying lots of apples... and basically, either choosing the restaurants, or if I cannot do that, eating at least something sure BEFORE I go to the restaurant where everybody else is meeting. I've found my friends most accomodating until now. But what I mean is, dt's easier to eat little... and say "no thanks, no dessert" or "water is fine, thanks" with a smile! It means I have to take responsability for what I eat: I mean - of course I do that, but even if my friends are generally accomodating I cannot expect ten people to eat where I want. So I'll eat before, bring along crackers and just have a salad at the table without making a big deal out of it and without expecting people necessarily to get worried about me. It's my problem, not theirs, so I have to get organized...

  • Upvote 1

Share this post


Link to post
Share on other sites

The good news it that my anti-transglutaminatose antibodies have gone down. They were at 78 in December when I went Gluten Free, now they are at 17.5: still over the 16 which marks the upper level of sensibility, but way down.

 

Just curious, is this U/mL or some other unit of measurement? On my ttg-iga tests it says the reference area is <7 (U/mL), so I'm curious, do different labs use different reference areas..??? Or are we talking different units of measurement here?

 

Anyways, good to see that the numbers are coming down. 

 

I still have very bad days, but I have understood it is not only gluten. Eating too much, drinking alcohol and/or eating spicy foods means that I feel like crap the day after even if I had no gluten at all, and I get back to the big D.

 

This is my experience as well, I am 99,9% sure that I do not consume any gluten, but sometimes I still feel crap afterwards. Haven't found any patterns yet, but I am suspecting that I should stay away from pancakes and tacos and rather eat soup and wok dishes.

 

I also keep a food diary related to symptoms, extremely useful.

 

I talked to a nutritionist who recommended me to do the same, so that's probably a good idea.

 

My energy levels are generally much better. Still not what I would like them to be, but definitely better..

 

Good to hear. Read that you are traveling, I hope you're trying to stay away from stress as much as you can. Last week I ignored the advice of my GP and overdid it because I was feeling more energetic. I ended up getting a cold and woosh, I was dead tired again. I guess we're more susceptible to illnesses while the TTG levels are up. Just a friendly warning:-)

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      108,915
    • Total Posts
      943,489
  • Member Statistics

    • Total Members
      67,085
    • Most Online
      3,093

    Newest Member
    Pamelas
    Joined
  • Popular Now

  • Topics

  • Posts

    • Thank you Gail for your response. Of course one should be mindful of the possibility of food allergies but I don't think that's the case with my current situations. Save for gluten containing product, everything I eat now I used to eat before with no reaction whatsoever. I think my issue is more likely to be deficiency in minerals and such.
    • Posterboy, thank you for your response!    Regarding magnesium, do you think relying on food sources like fruits, bananas in particular, is not enough? Just out of curiosity, when you started taking Magnesiums Citrate supplements, did you already consume enough fruits?
    • I fix meal packs in a food prep kit I got online called a jax pack I can fix enough for 1-3 days depending on which pack I fill. I find fixing full on meals in advance...think something that looks great bento style and smells amazing to make others jealous and make it look pretty so you can smile when you pull it out and brag about it.....I had to go the ego route with it sometimes to comfort myself. This allows me to go out and eat sometimes with others. I learned to cook and offer to cook for others...perhaps you can practice and amaze your friends by fixing up some gluten-free dish like crock pot roast, or chicken shred it and have a nacho party? Think of something easy, naturally gluten-free and can bring everyone together and amaze them with your cooking skills. 

      I have comprehensive list of gluten free foods, while we do normally suggest a whole foods only diet, there are options now days for instant meals, and all those standard kids quick foods like hot pockets, cheese sticks, nuggets, tots, corn dogs, etc now from other companies so you can also look the part and not feel that different.

      You are indeed very lucky to have medical services...I have not been able to see a actual doctor since last fall when I lost insurance....I have some friends who are doctors who help out and a chiropractor that will work with me but I can not get blood or labs done.....imagine having to trouble shoot everything and go hit and miss all the time.....

      https://www.celiac.com/gluten-free/topic/120402-gluten-free-food-alternative-list-2018-q1/  
    • I don't think they currently do medically approved Celiac testing ( last I heard). http://www.cureceliacdisease.org/faq/why-dont-you-recognize-tests-stool-tests-or-otherwise-for-gluten-sensitivity-that-are-currently-available-through-companies-like-enterolab-or-cyrex/
    • Thanks so much for the tips! I told my mom them and she thought they were pretty clever. And I never realized how lucky I was to have medical help. I’ll be much more careful with personal information. I was going to delete the post in case it had too much info but i can’t unless you delete your reply. It’s ok though. Thank you!
  • Upcoming Events