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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

A Cheesy Note To Newbies With Secondary Lactose Intolerance
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7 posts in this topic

For those newish celiacs with secondary lactose intolerance, like me, I wanted to give a shout-out of encouragement.

 

When I was first diagnosed in October 2012, one of the hardest pills to swallow was my secondary lactose intolerance. I couldn't imagine living without dairy. I read on this forum and many others that secondary lactose intolerance often went away in 6 months to 2 years. I banked on it. I prayed for it.

 

Every once in a while I'd try to a small milk chocolate candy or a small piece of cheese, but I always felt nauseous a short time later.

 

Until 5 and 1/2 months passed. Then I had a small amount of cheddar cheese on my eggs. No problem. I tried shredded cheddar on my potato fine. I've not yet experimented with REAL milk yet, or ice cream, but being able to add cheese to my daily bowl of rice has made me happy.


I feared, after the first couple of months, that I had lost dairy forever. Now I'm hopeful one day to glug a big glass of REAL milk again, and dive into some ice cream.

 

Hang in there, I guess, is the message. I've received so much support from these forums, I wanted to share this encouragement with others.

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Hi ABQ - good for you!

I still have a severe lactose intolerance (gluten-free since December 2012) but I've found out thankfully, that I can eat well seasoned cheese (Parmesan cheese more than 24 months old is available here in Italy) because it does not containt lactose any more (or less lactose). However I can't have milk nor fresh cheese nor butter nor even large quantities of de-lactosed milk and mozzarella that are on sale in some shops here. Having Parmesa grated on my rice is a big help.

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For those newish celiacs with secondary lactose intolerance, like me, I wanted to give a shout-out of encouragement.

 

When I was first diagnosed in October 2012, one of the hardest pills to swallow was my secondary lactose intolerance. I couldn't imagine living without dairy. I read on this forum and many others that secondary lactose intolerance often went away in 6 months to 2 years. I banked on it. I prayed for it.

 

Every once in a while I'd try to a small milk chocolate candy or a small piece of cheese, but I always felt nauseous a short time later.

 

Until 5 and 1/2 months passed. Then I had a small amount of cheddar cheese on my eggs. No problem. I tried shredded cheddar on my potato fine. I've not yet experimented with REAL milk yet, or ice cream, but being able to add cheese to my daily bowl of rice has made me happy.

I feared, after the first couple of months, that I had lost dairy forever. Now I'm hopeful one day to glug a big glass of REAL milk again, and dive into some ice cream.

 

Hang in there, I guess, is the message. I've received so much support from these forums, I wanted to share this encouragement with others.

I am totally lactose intolerant yet I can eat most Cabot cheeses.  It says right on the package 0 grams lactose.  The same with some Kraft cheeses, especially the low moisture mozorealla.  I have had no reactions.  Please be careful if you are sensitive to casseine.

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I am 7 months in and I think I just got parmesan back, as long as I don't overdo it. Couldn't manage cheddar, yogurt or milk, but I am hopeful for one day :)

Thanks for sharing, I love the positive stuff

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Thank you for posting with such encouraging news for the newbs! :)

 

We all say "hang in there" and "you can get those foods back someday", but it ALWAYS helps to have someone say "Look at me, I'm eating cheese (or some other food that gave them grief) again!! whoohoo!" .

 

It took me almost 15 months to get back small amounts of dairy but I seem to have my own slow , steady pace of healing.

After 2 years, I can have ice cream. yaay!!

 

Not sure I am ever going to glug a big ole glass of cow's milk again, but that's okay. I'm good with it.

 

Good for you and when you do have that ice cream---let us know. 

Cheers!

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I'm at 14 months and can handle all dairy - foods with high amounts of lactose in moderation. I don't think I'll ever go back to drinking cow's milk straight though...

 

Thanks for sharing, I love reading about progress others have made/continue to make. :)

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I didn't develop problems with dairy until a couple years after going gluten-free (or was in denial about any problems beforehand, so kept eating it.) I'm pretty sure casein is my problem more than lactose. I've been dairy free for over a year. I'm finding now that I can handle very small amounts of aged hard cheeses, and small amounts of clarified butter. So here's hoping that I'll be able to nibble on some cheese without fear sometime in the next year.

I haven't drank a full glass of milk in years, so I can survive without that. Almond milk is doing just fine as a substitute, but I need cheeeeese!

 

Cheers

Peg

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