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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

I Got Glutened, Quasi-On Purpose. Bad Cathy...
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I have been gluten-free for more than two months, and I can honestly say I feel the difference.  I never had (discernible) tummy troubles, but tons of "other" issues.  The most concrete difference is my mood, my focus, and my energy level.   Eating at home is fine; DH and children are more than supportive, and we are working (slowly) toward testing the kids and having a completely gluten-free home.

 

So this weekend, I had a chance to see some old friends, and we went to Buffalo Wild Wings.  I knew right off the bat most things would be off-limits, so I settled on something "safe:"  chips and "molten buffalo dip."  Little did I know (and failed to ask), the fryers are multi-use, and the cheese dip came out in a deep-fried flour tortilla bowl.  

 

I decided to run a test, as I had no idea what kind of symptoms I might exhibit, should I be accidentally glutened.  Long story short, I found out.  In addition to the cross-contamination from the bowl, the cheese dip was evidently loaded with gluten.

 

The next morning, I thought I had a hangover.  I only had two ciders!  I felt hot, flushed, almost like a fever.  My ankles got sweaty!  After a bit, I was sick to my stomach.  I honestly though (hoped?) it was stomach flu, but no one else in my house got it, including two small ones who must stay in constant physical contact with me.  My mom, who is Celiac/DH, was sure immediately that I had gotten glutened.

 

I felt like crap the rest of the day, and the following day was a little rough for this high school teacher.  I finally feel like I'm on top of it (two days post-glutening), although I"m still really tired.  Despite my fatigue, my sleep has been poor, and it's been harder to fall asleep.

 

Sorry for the ramble -- I just didn't know where else to turn!  I know I can't be 100% sure, but I really do feel that I got glutened -- and suffered the consequences.  And no, before you ask, I will NEVER do that again!!

 

And a small post-script:  My MIL sent a lovely package of chocolates for us and the kids -- some of it has gluten, but all labels warn of cross-contamination on machinery.  Rats.  South Bend Chocolate Factory goodies.... *sigh*  That's OK.  I need to lose weight anyways, right?

 

Love and good health to all,

Cathy

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Please bump if this isn't the right forum/thread.

 

I have been gluten-free for more than two months, and I can honestly say I feel the difference.  I never had (discernible) tummy troubles, but tons of "other" issues.  The most concrete difference is my mood, my focus, and my energy level.   Eating at home is fine; DH and children are more than supportive, and we are working (slowly) toward testing the kids and having a completely gluten-free home.

 

So this weekend, I had a chance to see some old friends, and we went to Buffalo Wild Wings.  I knew right off the bat most things would be off-limits, so I settled on something "safe:"  chips and "molten buffalo dip."  Little did I know (and failed to ask), the fryers are multi-use, and the cheese dip came out in a deep-fried flour tortilla bowl.  

 

I decided to run a test, as I had no idea what kind of symptoms I might exhibit, should I be accidentally glutened.  Long story short, I found out.  In addition to the cross-contamination from the bowl, the cheese dip was evidently loaded with gluten.

 

The next morning, I thought I had a hangover.  I only had two ciders!  I felt hot, flushed, almost like a fever.  My ankles got sweaty!  After a bit, I was sick to my stomach.  I honestly though (hoped?) it was stomach flu, but no one else in my house got it, including two small ones who must stay in constant physical contact with me.  My mom, who is Celiac/DH, was sure immediately that I had gotten glutened.

 

I felt like crap the rest of the day, and the following day was a little rough for this high school teacher.  I finally feel like I'm on top of it (two days post-glutening), although I"m still really tired.  Despite my fatigue, my sleep has been poor, and it's been harder to fall asleep.

 

Sorry for the ramble -- I just didn't know where else to turn!  I know I can't be 100% sure, but I really do feel that I got glutened -- and suffered the consequences.  And no, before you ask, I will NEVER do that again!!

 

And a small post-script:  My MIL sent a lovely package of chocolates for us and the kids -- some of it has gluten, but all labels warn of cross-contamination on machinery.  Rats.  South Bend Chocolate Factory goodies.... *sigh*  That's OK.  I need to lose weight anyways, right?

 

Love and good health to all,

Cathy

Early in my diet i cheated 3 times... :ph34r: Never again...

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I know the feeling!  Were you ever dx'd by a doctor or did you just decide to go gluten free?  I have a bunch of symtoms and pretty much self dx'd myself because when I went gluten free for close to 3 months, almost every symptom went away.  I accidentally glutened also - eating out at restaurants - I can totally identify with the "hangover" feeling.  Not sure what it was that I ate and I had wine instead of gluten free cider and back in the day I could easily drink 3 nice glasses of wine and feel fine.  Now I get very ill from just one glass.  I am back on gluten again so I can get an endoscopy on Friday.  My tummy is starting to hurt but not like it did before (although I am eating gluten, I am eating fruits, yogurt and taking a good probiotic - something I never did before - never touched fruit or veggies - just at processed junk 24/7).  And all my other symptoms - fatigue, bags under eyes, rashes, itchy eyes, achey joints - all came back. 

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I "cheated" too at the beginning....  I kept thinking well maybe I can have a little gluten LOL!  I learned pretty quickly ummmmm no. 

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I have done the "oops I forgot to ask" thing where you end up with something that probably is/has gluten but you don't want to complain to the wait staff because you never mentioned it before.

But no more of that for me either. No way. Not fun. I also call it a gluten hangover, because that's basically what it is.

But it's a lesson, and I'm sure you'll be scrutinizing everything from now on.

 

Hope you feel better soon!

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I know the feeling!  Were you ever dx'd by a doctor or did you just decide to go gluten free?  I have a bunch of symtoms and pretty much self dx'd myself because when I went gluten free for close to 3 months, almost every symptom went away.  I accidentally glutened also - eating out at restaurants - I can totally identify with the "hangover" feeling.  Not sure what it was that I ate and I had wine instead of gluten free cider and back in the day I could easily drink 3 nice glasses of wine and feel fine.  Now I get very ill from just one glass.  I am back on gluten again so I can get an endoscopy on Friday.  My tummy is starting to hurt but not like it did before (although I am eating gluten, I am eating fruits, yogurt and taking a good probiotic - something I never did before - never touched fruit or veggies - just at processed junk 24/7).  And all my other symptoms - fatigue, bags under eyes, rashes, itchy eyes, achey joints - all came back. 

I have an actual diagnosis, although until my first "glutening," I never recognized any GI symptoms or reactions.  This was a HUGE wake-up call for me.  I feel like the diagnosis is real now, which is bittersweet for me...  my mom also has an official diagnosis, but her DH issues were very evident as soon as her celiac manifested...

Thanks so much!

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I have no official diagnosis, as I went gluten-free before I knew that I needed to get tested first. I get very similar symptoms to what happened to you...feeling hot and flushed, and "hung over" in the morning....tired, headache, in a fog. But with the extra fun rash to go with them. So needless to say I will not be doing a gluten challenge. ;)

 

No compulsion to cheat here...cross contamination even makes me a little itchy and rashy. My "big one" was when I assumed all tamari was wheat free and found out the hard way that Tree of Life tamari is NOT. My bad for not reading the label carefully. After that I have no interest in eating wheat ever again.

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I have been there. 

Recently, I got take out and the place sounded so busy when I called to order, I didn't ask questions, I just got what I wanted thinking it should be safe. I knew within 15 mins of eating that there was something wrong. It had to be the seasonings. I hadn't been that sick in a really long time and it was 3 full days before I felt better. 

 

Before that, I had willingly eaten gluten and I felt bad but not like this. Now I know that there is just no turning back. I need to be vigilant because it is clear that I am very sensitive. I have reactions to food cooked in shared deep fryers, I have reactions when gluteny foods touch my food. 

 

I never thought I would be someone who was sensitive, but even my husband, who wasn't supportive at first, has become better at telling waitstaff about my gluten issues than I am. I have learned through making bad choices, but I am done with that because I cant afford to miss work, or kids activities because I am in bed, sick, due to me being lazy. 

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I have no official diagnosis, as I went gluten-free before I knew that I needed to get tested first. I get very similar symptoms to what happened to you...feeling hot and flushed, and "hung over" in the morning....tired, headache, in a fog. But with the extra fun rash to go with them. So needless to say I will not be doing a gluten challenge. ;)

 

No compulsion to cheat here...cross contamination even makes me a little itchy and rashy. My "big one" was when I assumed all tamari was wheat free and found out the hard way that Tree of Life tamari is NOT. My bad for not reading the label carefully. After that I have no interest in eating wheat ever again.

"hung over"  -- absolutely!!!  I'm thinking "gluten hang-over" or "gluten flu" are two things that most accurately describe how I felt.  Plus, I have a slow metabolism, so it took a while for me to feel sick.  I am really starting to feel better, and it's Wednesday night -- I got glutened Saturday night!!  Unreal...

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Since I suffered from Cluster Headaches and Chronic Migraines for over a year before I was diagnosed correctly, those were the killers for me. The stomach issues, unfortuantely I got accustomed to it and wasn't sure if it was related, just thought I had a nervous stomach. Now, whenever I get glutened, my stomach if the first thing to act up but I get certain when the migraine starts pounding. I would never even risk it as I feel like it's not worth it. There was some mac and cheese my mom made over the holidays that tempted me for a second, but no longer.

 

Gluten Flu / Hangover is definitely what it feels like. Like you've been awake for 2 days with no sleep, ate some terrible food, and are about to get the flu....terrible. Feel better. 

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