• Join our community!

    Do you have questions about celiac disease or the gluten-free diet?

  • Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
0
Jenwrenoz

Failure To Thrive Question

Rate this topic

Recommended Posts

My 2yo is seeing a paediatrician for failure to thrive, he is at the bottom of e graph and dropped off it late last year

We have taken him off gluten to make a difference to his nappies which were toxic and frequent, and it has helped enormously.

But the paed does not believe it is celiac because he is in proportion, both his height and weight are low. He says that if you have celiac you are still normal height, but skinny

He was tested as negative at 11 mo. but my understanding is that was too young to test.

I want to know if that is other peoples experience, I am trying to find the line between being gluten intolerant, or whether we should push for celiac testing

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Welcome to the board.

 

MedlinePlus defines failure to thrive:

 

Failure to thrive refers to children whose current weight or rate of weight gain is significantly lower than that of other children of similar age and gender.

 

 

I'm not sure how your pediatrician arrived at the idea that you have to be tall and skinny to be a celiac.  If your child had been gaining normally and then falls off the chart entirely, can this be normal?  Does small size run in either your husband's family or yours?  Failure to absorb nutrients, which characterizes failure to thrive in celiac disease, affects both the ability to gain weight and the ability of the bones to grow to my understanding.  This is why it is important to be found early, so that bone growth can resume.  Celiacs are often deficient in Vitamin D which is necessary for bone growth, and end up with short stature.

 

Yes, testing is very difficult in young children, but I do think he should be retested,  with a full celiac panel but especially the DGP (deamidated gliadin peptide) which shows up earlier than the other blood tests.  I would insist upon it despite your doctor's hunches.

 

Good luck with getting the right diagnosis for your wee guy. :)

Share this post


Link to post
Share on other sites

Your pediatrician is dead wrong. I am also a pediatrician. Untreated celiac disease is one of the most common causes of short stature. Can you get a new doctor?

Share this post


Link to post
Share on other sites

Your pediatrician is dead wrong. I am also a pediatrician. Untreated celiac disease is one of the most common causes of short stature. Can you get a new doctor?

 

/like

 

Seriously, all of this.  (Except the "I am also a pediatrician" part. :) )

Share this post


Link to post
Share on other sites

Ditto the others. He's wrong.

 

I am almost positive I was aceliac my whole life even though as a child I was extremely tall. we're talking 98th percentile. By age 12 I was 5'8" and 135 lbs and a healthy looking size 7... who happened to get a stomach ache at almost every meal.

Share this post


Link to post
Share on other sites
Ads by Google:


You need to see a different doctor. We were told because our daughter was around the 25 th percentile for height and weight and had been since 6 months old she could not possibly have celiac disease or any gluten sensitivity. WRONG! Gluten free she grew 3 inches in 3 months and put on 4 pounds, she jumped to the 50th percentile for height and has stayed there for 2 yrs. yes , she was in proportion, and we were told she was on the smaller side because her dad and I are, but she obviously wasn't following her really growth pattern

Share this post


Link to post
Share on other sites

My 18 month old fell down the charts both in height and weight. Her gi ped said they look for them to grow in height to ensure the diet iIs working. I'd try to see a gi ped.

Share this post


Link to post
Share on other sites

My 2yo is seeing a paediatrician for failure to thrive, he is at the bottom of e graph and dropped off it late last year

We have taken him off gluten to make a difference to his nappies which were toxic and frequent, and it has helped enormously.

But the paed does not believe it is celiac because he is in proportion, both his height and weight are low. He says that if you have celiac you are still normal height, but skinny

He was tested as negative at 11 mo. but my understanding is that was too young to test.

I want to know if that is other peoples experience, I am trying to find the line between being gluten intolerant, or whether we should push for celiac testing

My twelve year old daughter was diagnosed about 9 months ago.  She had stopped gaining weight and stopped growing in height.  She'd always been short.  She was four foot six.  Gluten free diet: 20 lb gain, and two inches.  My doc said short stature is common.  Change doctors.

Share this post


Link to post
Share on other sites

We believe that two of my kids have celiac, but we had a terrible pediatrician who just really didn't care to find any answers with us.  My daughter will be one tomorrow.  When she started eating at 6 months she had gluten in her diet.  Between her 6 and 9 month check ups she barely grew.  She dropped from the 75th to the 10th percentile.  I was shocked and a little scared!  My ped blew it off, though, and said it was nothing to worry about.  Since we have a history of gluten issues, we took her off gluten immediately.  She shot up more than two inches and gained three pounds in just two months.  We have switched pediatricians and I am glad I followed my gut.  The gluten free diet also cured her of her tummy issues and constipation.  Find a new doctor!

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      108,943
    • Total Posts
      943,612
  • Member Statistics

    • Total Members
      67,284
    • Most Online
      3,093

    Newest Member
    Randilee
    Joined
  • Topics

  • Posts

    • You should get the lymph nodes checked. You need to be eating a regular gluten containing diet to get the best & most accurate results for celiac disease.
    • try ragu double cheddar sauce
    • Hi everyone, This is my first post. I am happy to find a forum for being shared and being answered. I am really despressed with my all symptoms and got confused with tons of information from google :((. Sorry if my story below is long and spend your time. I just want to be shared my worries. Thanks I experienced some symptoms such as abdomen pains, diarrhea, fatigue, one side heachade and enlarged lymph nodes. These things are appeared more frequently after I gave birth to my baby 2 years ago. Recently, it becomes quite bad. I have met some family doctors, they did not concern anything until the recent one. She said that I should try gluten free for 1 month, diary free for 2 weeks, then returned. But I still do not do any tests for comfirming except for CBC test and ultra sound for lymph nodes. All results were normal, except for one indicator in blood test a little low (mchc). The doctor said that she had no concern. I have travelled a lot, so it was hard to eliminate gluten totally. I have had some accidentally gluten eating, so I still feel sick, especially abdomen pain and lymph nodes. I am now in strictly diet for 1.5 weeks and feel quite better, except for the lymph nodes. After 2 months, I finally can return doctor office for more discuss, though I am very worried. To talk about the lymph nodes, I have one in gland for 1 year, not movable; another in neck for about 4-5 months, movable. They are in size of a bean. Are they too big? They seem not enlarge or down size from the day I felt them. Recently, I am very scared to find that there are 2 or 3 on going in the lower neck and groin area. They are at the size of peas. And no one is bad pain, just a little discomfortable. Oh my god, I hope you guys can share my feeling... just some days you wake up and find out that some new lumps growing up in your body. That's a terrible feeling. Has anyone experienced the enlarged lymph nodes? Before or after going gluten free diet. Could the diet help to reduce their size or they will still there. I read about the link between celiac and lymphoma. I am really really scared. My daughter, she is just 2. I will have doctor appointment next week, beside the tests to comfirm celiac, should I ask her to check the lymph nodes again also. Any one got celiac and lymphoma at the same time? Please share your experience. Thank you.
    • For the people that been  diagnosed with celiac diseased and med board, when you got out of the army did you get and disability I've been in the army for 6 years and this has been my family's income for the 6 years, so what assistants have you guys been given???
    • That isn't entirely correct.  the gluten-free list is the stuff that they know is & test to be gluten-free and not made with gluten products.  The other list is no gluten ingredients but not tested .  Read the link for the explanation
  • Upcoming Events