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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

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Hi Dilettantsteph -- thanks for your reply.  I should clarify that I'm not posting here on this for me.  I'm posting this because a lot of folks online are suggesting just washing the beans to magically remove the gluten, while Jane Anderson is saying that trace amounts may remain.  I just want to point that out in case there are other sensitive folks like me out there wondering why they are sick.  I have a separate post (the one I linked to) on my own problems.  No one responded there and I suspect the sensitive folks don't check that forum too often.  But it's OK.  (You know, I actually did email Ms. Anderson on this a few weeks ago, but so far no reply.  Oh well. It's OK.)

 

Anyway, I think Jane Anderson meant that testing would still find the gluten:

 

However, informal experiments using home gluten testing kits show it's not that easy to get rid of the contamination — some seems to remain behind, despite your best scrubbing efforts.

The problem is, gluten is a very sticky molecule, and it's just not very responsive to washing. Friends who also happen to be scientists have experimented with this, and have found you can lessen — although not eliminate — the gluten cross-contamination in beans by washing them repeatedly in water with dish soap, and then rinsing.

http://celiacdisease.about.com/od/glutenfreefoodshopping/fl/Gluten-Free-Beans-Sensitive-Trace-Gluten.htm

Sounds like her scientist friends are actually doing the ELISA test here to confirm results. I ordered some of those tests and some certified gluten-free Eden Food canned beans, and I suggest anyone eating beans from any source other than one where they know how it was harvested (their own garden or a small farmers' they have spoken to) do the same, and not rely on just washing.

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edison grainery uses a dedicated facility, and test their legumes to <5 ppm. their other products are also tested.

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I know this is an extremely old topic, but I can attest that rinsing your beans many times isn't good enough, and no I can digest all kinds of beans fine even a huge quantity. I recently got cross-contaminated via dried black beans I ate. I search high and low for an alternative; since, i discovered that beans and greens peas are frequently cross-contaminated, and I found nothing except Edison Grainery which tests their products to 5 ppm. I am extremely sensitive though, so maybe some people can get away with rinsing their stuff. I know 20 ppm definitely wouldn't cut it. 

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