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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Late Diagnosis?
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5 posts in this topic

My son has gluten intolerances and I have just found out that I am celiac. How common is it to be diagnosed this late? Also, I need to be very careful with contamination with my son (ie no sharing toasters etc). Does the same contamination risk apply to celiac? Thankyou

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Welcome Pam!

 

Unfortunately it is not uncommon to go undiagnosed with Celiac Disease -- I was diagnosed at 43 after decades of symptoms dismissed as something else.

 

Yes, understanding gluten cross contamination is extremely important in Celiac Disease -- it is also possible your child has Celiac and not Non Celiac Gluten Intolerance -- many children do not test positive to the current antibody tests -- especially if the doctors did not run the complete panel to begin with.  Since your son has been off gluten for some time, it really doesn't make any sense to reintroduce gluten to complete the panel.  You might want to talk to a celiac specialist regarding both of you.

 

Let us know if you have any more questions!

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Hi Pam,

 

I hope you are well.  I am glad you discovered your celiac.  I noticed symptoms over most of my life time, certainly 30 years back, and was diagnosed when I was 49!  It was quite a surprise.  I had no known family member with it.  Well, now we know, and we can learn and follow the diet and hopefully, heal up.

 

Diana

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I am 59, it took me a few years as well 

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I too am a celiac and all of my children tested negative to celiac, although two of the three have pretty obvious gluten intolerance. I think there is a chance it is celiac for them but it doen't make a difference in the long run on their treatment: gluten-free for life.  :)

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