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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Help Please Tests, Confused
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3 posts in this topic

Hi,

I'm new to the forum and totally confused.

Basically, I was on a course of antibiotics about 6 months ago and then my problems started.

It began with a gurgling right side, bloating, gas and a feeling of fullness that lasted a long time after I ate espcially certain foods. Tried probiotics, no help.

 Now it's many more including the gurgling, BM that are mostly loose with that varying colors and undigested food. Occasionally, difficult to go. I blurp from just drinking water.

In reading the symptoms, I do get brain fog, shaky after certain meals. I am tired after eating and must nap after lunch which is usually a sandwich on rye bread which made me sick for 2 days last time I had it. If dinner is breaded or contains pasta, I'm ready to feel asleep. I get weak, shaky legs and in bed by 7, asleep by 8pm.

 

My doctor "threw" in some tests for cealics as an afterthought at my last checkup. They are as follows

 

Anti-Endomysial    1:10  Ref  <1:10  (Marked as anormal)

Gliadin, IgG, Abs.   <20    Ref <20  (marked as negative)

Gliadin, IgA, Abs     <20    Ref <20  (marked as negative)

 

I tried talking to her and she said I was "on the cusp". Then she moved onto other things and we never got back to it. I am calling her tomorrow and will discuss it more. What tests should I get to get a definate answer?

Is there any other tests I should have?  Like vitamins, B12 & folic acid were low but came up on supplements, haven't been tested in awhile.

I did some experimenting and have avoided any gluten heavy foods and feel better after eating them. Not competely gluten-free because I read you have stay on gluten to do accurate testing. But I really feel bad after eating food with gluten so I don't want to even eat.

My Sed Rate is always elevated. My Vitamin D is always low. My iron level is low normal.

I am also positive for hashimotos and graves antibiodies but not on meds due to stable thyroid numbers at the moment.

Any help appreciated. Does any of this point to cealics/gluten problem or do I have another problem?

Thank you so much.

PS- This forum is wonderful and full of great information.

 

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Welcome to the board.

Your EMA IgA was abnormal. That is a very specific and sensitive test for celiacs. A positive result shows up only after there has been a significant amount of damage done to the small intestine.... As a general rule, when an EMA is positive it's probably celiac (something like 97% of the time).

It is not clear which glia din tests your doctor ran. There is the deaminated gliadin peptide antibodies (DGP IgA or DGP IgG) which is a newer very accurate test, and then there is the anti-gliadin antibodies (AGA IgA Or AGA IgG) which an older test that tends to be less superficial and sensitive.... You might want to find out which test was run.

The other celiac blood tests that are often done is the ttg IgA and ttg igG tests. A total serum IgA is a good idea too. Keep eating gluten until you are finished testing - whether it is more blood tests or a biopsy. You don't need to eat a lot of gluten, just a slice or two of bread, or muffins or cookies. Perhaps eat it in the evening so you can sleep through some symptoms.

The nutrients that are often tested for are D, B12, ferritin, iron, potassium, calcium. If you find these are low, consider taking sublingual tablets, or even injections, because your damaged gut won't absorb the nutrients as well as your mouth.

Because you already have an autoimmune disease, and Hashimoto's is very closely linked to celiac disease, I would hazard to say that you have celiac disease even if the rest of your tests appear negative. Once your testing is done, I suggest going gluten-free.

Best wishes!

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Thank you. I have a call into the Dr now and told her specifically that this is what I what to discuss.

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