• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Fundoplication Surgery For Gerd?
0

5 posts in this topic

Saw my GI doc yesterday, and he wants me to see a surgeon for fundoplication. I am doing very well with my diet. Scope was good. Markers down, but I still have horrible reflux! I sleep almost straight up, take 60 mg of prilosec and many tums throughout the day. I've tried prevacid, nexium, and carafate. They either did nothing or had really bad side effects.

At first I was excited at the prospect. Until I read the statistics, risks, etc. Inability to burp or vomit? That is really scary to me. Difficulty swallowing, paralytic pileus? 6 wk recovery? 10-20 lb weight loss (okay, that part I can deal with). Irreversible. May not work.

Anyone have this done? Advice, please.

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


My GERD was not able to be controlled by medications. I became intolerent to them. So then, i stopped taking them. A year has passed and now its to the point where, while i get something every day, it is managable via tums, water or food. I cannot sleep without my incline pillow.

It was quite bad. Now it is mainly controlled by my diet. No greasy, fatty, rich, or spicey.

Have you had your gallbladder checked? I've heard that it can cause it. Another thing that might be causing it is you may have a low level of stomach acid. I've heard of that doing it as well.

I would explore other options at this point.

0

Share this post


Link to post
Share on other sites

Have you had 24 hour impedence ph probe or a barium study?  These tests will tell you alot about your GERD.  My daughter had a Nissen and its a good thing she did.   She was refluxing all the time and it wasn't just acidic on all medications used to control GERD.  At the time she was Gluten free, Grain Free, and Dairy Free.  She only ate about five foods and still was vomiting every time something entered her stomach.  She had a structural abnormality and no medicine would work or would ever have.  She had it done robotically with very little scarring.  Would I make the same decision again?  Yes, absolutely.  

0

Share this post


Link to post
Share on other sites

Hi, I am doing everything I am supposed to do.  Yesterday, I went to lunch with my hubby, and I was having a salad, not a speck of bread around us, or cheese anywhere.  Everything should have been good for me.  I used oil and vinegar dressing.  Drank water.  Had blood work done that morning, so not even my 1 cup of coffee for the day was had.  I was clean, inside.  My esophagus closed up on me with the first bite.  I had to stand up and try to walk it off, I was trying to stay calm and breath, through my nose, and calm it all down.  I thought I would burp and it would pass, no I had to spit it up in the bathroom, twice, before I was over it.  Then I went back and when the trembling passed, I was able to eat.  WHAT happened?  Was it a cc reaction?  Is that my Esophagitis flaring up, but why, what did I do wrong?  Before being Gluten Free this used to happen a lot, it stopped when I gave up gluten foods.  My Endoscopy dx has me with Grade 2 Esophagitis, Chronic Inactive Gastritis, Peptic Duodenitis, Hiatal Hernia, Gastric PH 1. Gluten Intolerant/Sensitive as no Celiac Sprue was found. Guess I need to list these things in signature huh.  

 

I  am not using the prilosec the doctor wanted me to use nore the gaviscon, they did not make sense.  Trying Betaine HCl and its working, the Prilosec was not.  Tried the Gaviscon as well and it just made symptoms come back again, so no Gaviscon either.  I may try the slippery elm. 

 

Anyway, any ideas are welcome, as I do not want this to happen again.  It hurts, terribly, if I can avoid it, I will.  Scale of 1-10 pain 8

 

I posted this in two areas looking for answers, I hope someone can offer something.

0

Share this post


Link to post
Share on other sites

Hi, I am doing everything I am supposed to do.  Yesterday, I went to lunch with my hubby, and I was having a salad, not a speck of bread around us, or cheese anywhere.  Everything should have been good for me.  I used oil and vinegar dressing.  Drank water.  Had blood work done that morning, so not even my 1 cup of coffee for the day was had.  I was clean, inside.  My esophagus closed up on me with the first bite.  I had to stand up and try to walk it off, I was trying to stay calm and breath, through my nose, and calm it all down.  I thought I would burp and it would pass, no I had to spit it up in the bathroom, twice, before I was over it.  Then I went back and when the trembling passed, I was able to eat.  WHAT happened?  Was it a cc reaction?  Is that my Esophagitis flaring up, but why, what did I do wrong?  Before being Gluten Free this used to happen a lot, it stopped when I gave up gluten foods.  My Endoscopy dx has me with Grade 2 Esophagitis, Chronic Inactive Gastritis, Peptic Duodenitis, Hiatal Hernia, Gastric PH 1. Gluten Intolerant/Sensitive as no Celiac Sprue was found. Guess I need to list these things in signature huh.  

 

I  am not using the prilosec the doctor wanted me to use nore the gaviscon, they did not make sense.  Trying Betaine HCl and its working, the Prilosec was not.  Tried the Gaviscon as well and it just made symptoms come back again, so no Gaviscon either.  I may try the slippery elm. 

 

Anyway, any ideas are welcome, as I do not want this to happen again.  It hurts, terribly, if I can avoid it, I will.  Scale of 1-10 pain 8

 

I posted this in two areas looking for answers, I hope someone can offer something.

You might try getting a 24 hour PH impendence probe to check your refluxing.  Medications did not work for my child.

0

Share this post


Link to post
Share on other sites
Ads by Google:


Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      107,346
    • Total Posts
      935,625
  • Member Statistics

    • Total Members
      65,027
    • Most Online
      3,093

    Newest Member
    Natasha927
    Joined
  • Popular Now

  • Topics

  • Posts

    • You might be like me and need to get a vitamin and mineral panel blood test.  And make sure it includes iron.   We both might be deficient in certain vitamins/minerals.  My medicals bills have been so high I've put it off and just started taking a multivitamin instead.  But I'm not sure it has it in what I really might be deficient.   So I'm going to spend more money and get a vitamin and mineral panel blood test. Even at my age I have high metabolism.   Gluten free meals only fill me up for 2-3 hours so I have a backpack with me everday and have gluten free snacks to hold me over.   My weight went from 168 to 161 my first month gluten free.  But it seems to have stabilized and might be going back up again a little.  I'm in the start of my 3rd mo. being/trying to be gluten free.   If I am hungry for too long I kinda get light headed and dizzy so I bring gluten-free snakes with me. I drank a bottle of Ensure + my first month to help keep weight on but it didn't seems to agree with my stomach.   It might of been my body trying to adjust to the new gluten free diet that caused that issue.  
    • Thanks, cyclinglady.   That's encouraging to know that people can have a relatively normal life with Crohn's.   I have a co-worker whose in his 50s with Crohn's.  I understand he's had it most of his life.  Lots of surgeries, iron infusions and ongoing pain.   My GI appointment isn't for another three weeks.   I had an abdominal CT scan 9 years ago for similar issues and it was clean.   I'm fairly old for Crohn's --I'm in my mid 40s-- and understand that it mostly affects people in their teens and 20s.  But, there are always those outliers. Given that both my brother and his son have Celiac...I'm hoping(?) for the less destructive disease.   
    •  Sounds like gluten might have snuck back into your diet, either a condiment, spice, a contaminated pot, utensil, bowl, or cup. Is your whole house gluten-free? Are you still fixing gluten meals for the kids? Once you go completely gluten free after the first few months many become hyper sensitive to gluten, where as a tiny amount of CC throws it all off the cliff like all hell broke loose in your guts. Double check back over everything. Read the 101, clean out and double check everything, I found freezer paper/butcher paper to make a nice clean work area and clean up a breeze, foil line pans etc. Cheap starts with cookware are to use microwave cook ware from nordicware, crock pot liners, and disposable or new utensils/cookware. https://www.celiac.com/gluten-free/topic/91878-newbie-info-101/ Try keeping a food diary with a list of everything your eating, include every condiment/spice etc. Try to find a common denominator, Rotate your meals using different foods, cuisines, and source that are gluten-free. You might find some other foods that offend your gut, as many of us also find or develop other intolerance in the first few months.
    • Hi! I was officially diagnosed a couple of months ago now but I have been gluten free for about 4 months since my endoscopy. However, in the last month I have noticed some worrying post diagnosis and treatment symptoms. My appetite has shrunk enormously. I used to be able to eat bowls and bowls of food and still be hungry, I could consume food even when full and I was constantly snacking. I understand over eating is a big part of celiac disease before going on a gluten free diet but food is such a huge part of my lifestyle. This last month I feel as though I have lost myself a bit as huge parts of my character like my love for food, huge appetite and my non fussy nature have all been turned upside down. I could easily not eat any snacks in a day now and not have to have all my meals. I thought I might have lost weight so I weighed myself on the same scales I did a couple of months ago. I am a young tall girl and was 10 stone for the last year at least. In the last few weeks I have lost half a stone which is 7 pounds and am now 9.5 stone. This is not intentional and I did not aim or want this to happen so I am concerned about any continued lack of appetite and weight loss in relation to my health. Therefore, I am going to weigh myself each week and make sure I am eating all three meals. If it continues I'll visit the doctor. Also, I am noticing fatigue still which was a huge part of my pre diagnosis symptoms. I get to a certain point in the afternoon where I feel like I need to go home and rest because I can no longer continue. I have no stamina and it is restricting my freedom, which I feel has already been taken from me as a result of this diagnosis that came at a frustrating point in my life which was a huge nuisance. Finally, I am also finding it a bit of a struggle to get my head around the whole thing still and to understand what it means for me and my life. I am very worried and scared that it will impact me not just physically but mentally and socially and it scares me. I guess this was more me getting all this off my chest and into the open, if anyone has any advice or feedback I will be hugely grateful.
    • I've lost 3-4 pounds.   It surprises me, as I would have expected to lose more, considering how limited my diet has been,  how sick I was since early May, and now walking 35 to 45 min. after dinner.   I think it's the increased gluten-free bread and shortbread cookies.  I've eaten more of these as they settle my stomach and are safe when I'm not sure what else will work.   I think I may also be having more sodium, so there may be a bit of water weight. I am actually doing better.   I've been on Famotidine 20 mg., 2x daily for about 9 days, and added Vit D a few days ago.   I've been able to drop one of 4-5 stacked pillows at night, and will try dropping one more tonight.   I am down to Tums (1500 mg.)  around 3-4 a.m. for mild heartburn / upset stomach, and again when I get up.   Not much else, maybe occasional simethicone.     i tried returning to a salad at dinner, just lettuce, tomato, and onions, but seemed to have more trouble overnight, so quit.  I'm mostly eating an egg with toast, well cooked sweet potatoes/mixed veggies, tuna, some salmon, hamburger, chicken, Ian's fish sticks, bone broth, Schar's breadsticks and shortbread, some soy milk or macadamia milk, and the bakery gluten-free bread.  
  • Upcoming Events