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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.
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Fundoplication Surgery For Gerd?
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5 posts in this topic

Saw my GI doc yesterday, and he wants me to see a surgeon for fundoplication. I am doing very well with my diet. Scope was good. Markers down, but I still have horrible reflux! I sleep almost straight up, take 60 mg of prilosec and many tums throughout the day. I've tried prevacid, nexium, and carafate. They either did nothing or had really bad side effects.

At first I was excited at the prospect. Until I read the statistics, risks, etc. Inability to burp or vomit? That is really scary to me. Difficulty swallowing, paralytic pileus? 6 wk recovery? 10-20 lb weight loss (okay, that part I can deal with). Irreversible. May not work.

Anyone have this done? Advice, please.

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My GERD was not able to be controlled by medications. I became intolerent to them. So then, i stopped taking them. A year has passed and now its to the point where, while i get something every day, it is managable via tums, water or food. I cannot sleep without my incline pillow.

It was quite bad. Now it is mainly controlled by my diet. No greasy, fatty, rich, or spicey.

Have you had your gallbladder checked? I've heard that it can cause it. Another thing that might be causing it is you may have a low level of stomach acid. I've heard of that doing it as well.

I would explore other options at this point.

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Have you had 24 hour impedence ph probe or a barium study?  These tests will tell you alot about your GERD.  My daughter had a Nissen and its a good thing she did.   She was refluxing all the time and it wasn't just acidic on all medications used to control GERD.  At the time she was Gluten free, Grain Free, and Dairy Free.  She only ate about five foods and still was vomiting every time something entered her stomach.  She had a structural abnormality and no medicine would work or would ever have.  She had it done robotically with very little scarring.  Would I make the same decision again?  Yes, absolutely.  

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Hi, I am doing everything I am supposed to do.  Yesterday, I went to lunch with my hubby, and I was having a salad, not a speck of bread around us, or cheese anywhere.  Everything should have been good for me.  I used oil and vinegar dressing.  Drank water.  Had blood work done that morning, so not even my 1 cup of coffee for the day was had.  I was clean, inside.  My esophagus closed up on me with the first bite.  I had to stand up and try to walk it off, I was trying to stay calm and breath, through my nose, and calm it all down.  I thought I would burp and it would pass, no I had to spit it up in the bathroom, twice, before I was over it.  Then I went back and when the trembling passed, I was able to eat.  WHAT happened?  Was it a cc reaction?  Is that my Esophagitis flaring up, but why, what did I do wrong?  Before being Gluten Free this used to happen a lot, it stopped when I gave up gluten foods.  My Endoscopy dx has me with Grade 2 Esophagitis, Chronic Inactive Gastritis, Peptic Duodenitis, Hiatal Hernia, Gastric PH 1. Gluten Intolerant/Sensitive as no Celiac Sprue was found. Guess I need to list these things in signature huh.  

 

I  am not using the prilosec the doctor wanted me to use nore the gaviscon, they did not make sense.  Trying Betaine HCl and its working, the Prilosec was not.  Tried the Gaviscon as well and it just made symptoms come back again, so no Gaviscon either.  I may try the slippery elm. 

 

Anyway, any ideas are welcome, as I do not want this to happen again.  It hurts, terribly, if I can avoid it, I will.  Scale of 1-10 pain 8

 

I posted this in two areas looking for answers, I hope someone can offer something.

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Hi, I am doing everything I am supposed to do.  Yesterday, I went to lunch with my hubby, and I was having a salad, not a speck of bread around us, or cheese anywhere.  Everything should have been good for me.  I used oil and vinegar dressing.  Drank water.  Had blood work done that morning, so not even my 1 cup of coffee for the day was had.  I was clean, inside.  My esophagus closed up on me with the first bite.  I had to stand up and try to walk it off, I was trying to stay calm and breath, through my nose, and calm it all down.  I thought I would burp and it would pass, no I had to spit it up in the bathroom, twice, before I was over it.  Then I went back and when the trembling passed, I was able to eat.  WHAT happened?  Was it a cc reaction?  Is that my Esophagitis flaring up, but why, what did I do wrong?  Before being Gluten Free this used to happen a lot, it stopped when I gave up gluten foods.  My Endoscopy dx has me with Grade 2 Esophagitis, Chronic Inactive Gastritis, Peptic Duodenitis, Hiatal Hernia, Gastric PH 1. Gluten Intolerant/Sensitive as no Celiac Sprue was found. Guess I need to list these things in signature huh.  

 

I  am not using the prilosec the doctor wanted me to use nore the gaviscon, they did not make sense.  Trying Betaine HCl and its working, the Prilosec was not.  Tried the Gaviscon as well and it just made symptoms come back again, so no Gaviscon either.  I may try the slippery elm. 

 

Anyway, any ideas are welcome, as I do not want this to happen again.  It hurts, terribly, if I can avoid it, I will.  Scale of 1-10 pain 8

 

I posted this in two areas looking for answers, I hope someone can offer something.

You might try getting a 24 hour PH impendence probe to check your refluxing.  Medications did not work for my child.

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