• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

What To Expect, When
0

12 posts in this topic

I am first week in to gluten free diet and (ever impatient) wondered when I would start to feel better. Just feel tired, worn out, stomach achy etc.... Would be keen to hear when other people started to feel more lively!

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Hard to say. Right now i would guess you are still going through gluten withdrawl and as such, your body is probably throwing a fit at not having what it wants.

 

It took a while.  The main symptoms ("D" and vomiting) cleared up within a week of the diet starting, but the other things took a while.

0

Share this post


Link to post
Share on other sites

Many people see noticeable improvement quickly, but there are numerous factors to consider.

Celiac disease damages the body, particularly the small intestine. That damage needs to heal. As soon as you stop eating gluten, you stop making the antibodies. But the existing ones take time to die off. The healing process begins. How long it will take depends on how much damage there is to heal. Younger people seem to heal more quickly than older ones.

I was 46 at diagnosis, with severe damage to my villi. I began feeling somewhat better soon, but had serious symptoms for several weeks. It was several months before I truly felt well.

0

Share this post


Link to post
Share on other sites

Hey Pam and Welcome!

 

Eating simply will help you recover more quickly. Meats, fish, fresh veggies, rice, potatoes, and fresh fruit.  Season with salt and pepper.  Shop on the perimeter of the store and stay away from processed foods, for now.

 

As you feel better, add more items to your menu, one at a time.  Avoid dairy products for a while until your body heals (it can cause you the same issues as gluten)  Dairy products can be added back sucessfully later.

 

But, to your question.  It depends on the level of your damage to your intestines.  If you caught it early, you may experience a quick recovery, if not , a delayed recovery.  But a full gluten free diet is required, so be dilegent.  And good days are ahead of you!

 

 

Feel free to ask any question.  And, again, welcome to the Club.! :)

0

Share this post


Link to post
Share on other sites

Many thanks all for the advice! Much appreciated. Will give it time and not be too impatient! Lactose is something I will take out as well, but was wondering whether the lactase enzyme supplements would help here? I have always tended not to use too many processed foods - but will steer clear totally for a while. Thanks again!

0

Share this post


Link to post
Share on other sites
Ads by Google:


One other question if that's ok. Today I'm suddenly constipated. Is this normal when coming off gluten?

0

Share this post


Link to post
Share on other sites

Well I am dealing with constipation from time to time even 5 months into GFD. A couple of spoons of flax seeds in the morning usually helps. Takes some time for it to get through the system. You may also try prunes or hot chocolate if you're into that sort of thing. Cocoa contains a lot of fibre and this helps speed things up.

0

Share this post


Link to post
Share on other sites

I alternated constipation and D for about 3 weeks when I started gluten-free, having never really had it except when pregnant.

It can take a while for your body to settle.

Welcome :)

Where else could you get to meet people and discuss BMs?Keep asking questions we have all been there and it really helps the transition.

0

Share this post


Link to post
Share on other sites

I opened this post to warn of the constipation.  Keep drinking water and fluids.  Try prune juice warmed if you can't stand the taste cold.

 

If you have NO signs of diverticulitis you might try figs.  They are nature's little colon cleansers.

0

Share this post


Link to post
Share on other sites

One other question if that's ok. Today I'm suddenly constipated. Is this normal when coming off gluten?

I had some issues with constipation the first couple weeks in GFD. Be sure to get adequate fiber from fresh fruits and veggies should help, and steer clear if rice cakes seemed to give me issues in that area.

0

Share this post


Link to post
Share on other sites

It took about 9 months for me to settle into a normal bathroom routine. C was a big gluten symptom for me, as it turned out. When I first started getting "regular" I thought I was getting D, and was irritated that I had to go more often.

Go figure.

0

Share this post


Link to post
Share on other sites

Patience is the main thing. I don't mean resignation: I mean do not get scared if your symptoms take time to clear. Everybody's different. What I can tell you for sure is that if you manage to get really gluten-free, SOME symptoms should clear soon, in the space of a few days. My main symptom - gastro problems - is still there after 5 months gluten-free: some days are OK, some days with C and worse (rare) days with D. But mental clarity and energy are immensely improved, and the depression has lifted (and I've had more normal BM in these months than in the last ten years). Also muscolar tension (causing huge headaches) is much much better.

 

It's a long road: first your body has to get clean of the antibodies (it takes some months) then it has to start reconstructing villis and then it has to adjust. Your gut may become very sensitive to some foods: my personal basic diet is chicken and rice, lettuce and apples (I luckily adore roast chicken and parboiled rice). Stick to non processed fresh food whenever possible. I was given the same advice and didn't really follow it in the first weeks - I thought I did, but I was continually throwing in other stuff (lots of nuts, gluten-free chocolate, cravings for Coke, LOTS of gluten-free biscuits and processed crackers and processed pasta with other stuff in it - normal wheat pasta is just wheat but gluten-free pasta has lots of additives etc) because, hey, I already had cut out everything with lactose plus my beloved wheta pasta and bread and was trying to compensate. But it's really useful to give your body simple foods in the first months.

 

You may be getting some NEW symptoms you did not have before. Don't worry too much. Keep a food journal and try cutting out the foods that could be responsible. Be gentle to yourself. Personally, if by this time next year I'm still having specific problems I will go looking specifically for other health issues that may be causing them. For now, I'm fiddling with food and studying reactions...

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,802
    • Total Posts
      932,558
  • Member Statistics

    • Total Members
      64,294
    • Most Online
      3,093

    Newest Member
    Alisha Patel
    Joined
  • Popular Now

  • Topics

  • Posts

    • You're right on the extremes, I'm sitting in a gluten-free food festival right now and still unsure if to eat anything which I guess means I've hit the extreme end of the scale. Seem to be noticing the recovery pattern over the course of 6 weeks or so after a gluten hit. Will be very interesting to see what the blood test readings come out like when I eventually get them done again. And thanks for the good wishes
    • Your getting plenty of proteins for once and I would drop the L-glutamine supplement what brand is it? Paleo Protein as in the brand? They were not gluten free last I checked, I got sick from it 2 years ago or so when they changed to a non dedicated facility.
    • Very interesting. However, my positive on the DGP test is on the combined assay. When separated into IGA and IGG they are within normal range. Twice the IGA was a point or two above normal range, which can be easily disregarded per University of Chicago.  Much of the research done on NCGS is showing activation of cells which are different then in celiac. Placing it still in a gluten related illness spectrum, but an entirely different kind of mode of transport, if you will, then celiac disease. Odd, because I am pretty sure I read that 1st degree relatives of celiacs have a higher prevalence of NCGS suggesting it is, in part, that they are related. But I cannot recall where I read that.  I think my specialist doc is following the right track given that all of this began at the tail end of a 6 week challenge in 2015/16 and I have an increase in IELs.  which, as I've stated before, is a very non-specific finding however. Symptoms continued On a gluten free diet for me months after.  however I was only on it for that 3 months after they found some inflammation. So maybe I didn't give it long enough.  Or like I said, maybe it's something else. We shall see! 
    • Thank you for your replies, everyone! It was very helpful. I don't think I am comfortable with passing the whole gluten introduction diet again and getting that rash. Or, even getting the rash on my face flared up again. It actually might be a good thing I got 'glutened' at that bd party so I could finally make connection with all the symptoms. As I thought back about my 'allergy' rashes I start wondering if it could be related to gluten all those years but no one even suspected. For example, at some point I started getting itchy rash around my knees, spreading down to ankles (front of the legs) in summer. The dermatologist and GP said it is 'sun allergy'. The usual allergic treatments helped for the itch and the patchy scales slowly healed but it flared up on the same place during the summer multiple times. The strange thing is that it never flared up when I went hiking, or walking in the sun in the city (I have extremely low vit D levels and I need to supplement, so it was no-no to stay completely covered no matter the rash...I needed my natural vit D). The rash only appeared after beach visits. At some point I started washing and drying my skin with a towel every time I went out from the sea, the rash still appeared but I was able to control it so it showed up on day 4-5 when vacation was almost over. Then, last summer after I was completely gluten and dairy free for approximately 9-10 months, and I was annoyed of washing my skin each and every time and getting those weird looks on the beach, I stopped doing it. I was prepared with medicine and creams for that rash but guess what - my 'sun allergy' was mysteriously gone. Not a single blister, not a patch of itchy skin, nothing. Another 'allergy' case of mine is that I found from my own bad experience I got very bad rash from red dyes (in food or cosmetics). If it is food it shows on my face, if it is cosmetics (soaps, perfumes)...whenever I applied it. I am now reading that people with dh should stay away from red dyes. Mere coincidence? I don't know, I am more and more suspicious I could have this DH thing going on for years, if that is DH. I am just annoyed that all the dermatologists I went to during all those years never made connection. No one even suspected. It was the usual path - cortisone creams, pills, etc. At some point cortisone creams were no longer working so they started prescribing some mixtures made in the pharmacy specifically for me with sulfur. That worked like a charm but I couldn't walk around all covered in white cream looking like a mummy (long sleeves in summer here where I live and summer = 35-38 C, is not fun). Then, I tried homeopathy....it worked like a charm but of course those rashes kept appearing and disappearing, I was only able to control the itchy skin so I don't scratch, scratch, scratch...looong, long journey! Sorry about my rant...and, one more time thank you everyone who found the time to reply and share your opinion! Much appreciated!
    • Found this old thread when researching for my daughter who might be having an endoscopy in September. I'm curious to know what the results were?
  • Upcoming Events