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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Newly Diagnosed Kids Should Get This Book!
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My 8-year-old was diagnosed last month and I just want to recommend the book "Eating Gluten-Free with Emily". My daughter loves it and it has really helped me explain what's going on. It inspired her to be a "gluten detective", which has been very helpful when friends are offering snacks or my clueless husband offers something she can't eat.

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We also have an 8-year-old that was just diagnosed.  He thought that book was OK, but a little young.  We really liked The gluten-free Kid:  A Celiac Survival Guide.  We have a library copy.  I haven't found it online yet.  I'm afraid it is out of print since there are only used copies available on Amazon.

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My 9 year old got diagonised in November 2012 just before her 9th birthday. I have been looking into stuff for her to read. She is very good about reading labels on her own now and looking for things that she can eat!! What other books are out there for her to read?

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Thank you! I've been hunting up books other than "The Trouble that Jack had" for my children. Most are not available here, so I'm trying to figure out ways to afford the shipping to get them.

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My daughter loves that book too. She was diagnosed a year ago at age 6 and it was perfect for her -- she still asks us to read it to her (or reads it to herself) frequently.

 

I also got The gluten-free Kid out of the library, but I think it was a little old for my daughter.

 

It seems odd that there aren't more choices, with the incidence of celiac skyrocketing like it is.

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    • Thanks everyone. I appreciate the answers. I'm waiting to hear back from her dr and then we will go from there. If the dr doesn't think the results show anything then I will get a second opinion thanks to everything that has been shared on here. I will make sure and not change her diet for now.  I am planning on getting tested myself, I have had suspicions since last summer that I could have it. I have a form of autoimmune arthritis, just unclear exactly what it is at this time. I  going to ask to be tested for celiac at my next appt though.
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    • Welcome to the board. I agree with the previous posters that you are very likely looking at celiac. Please do keep her on gluten until all celiac related testing is finsihed. After that do give the diet a good strict try even if the biopsies are negative. Also keep in mind that celiac is genetic so it would be a good idea to screen others in the family even if they don't seem to have symptoms.
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    • Peter is correct.  You do have a positive so that warrants further investigation.  Here is a link supporting our comments: http://www.cureceliacdisease.org/faq/are-raised-dgp-igg-levels-an-early-sign-of-celiac-disease/ http://www.mayomedicallaboratories.com/it-mmfiles/Celiac_Disease_Diagnostic_Testing_Algorithm.pdf Does she have celiac disease?  You will never know for sure without an endoscopy.  Even then, there is a chance the biopsies are negative, but keep in mind that she might just be starting to develop celiac disease or that the damage was not captured (the small intestine is the size of a tennis court if spread out).   Personally, I tested negative on all but the DGP IgA, yet I had moderate to severe intestinal damage.  The celiac blood tests are good, but they do not catch all celiacs,  some celiacs can even test negative to ALL the blood tests. Consider yourself fortunate that your doctor ordered several of the tests and not just the screening TTG IgA (very good, keeps cost down, but does not catch all).    The DGP is the preferred test in small children.  I do not know why it caught me because I am old,  but it did!   Confusing, isn't it?  I wish there was an easier way to diagnose, but  we have to work with what we have available to us.  
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