• Join our community!

    Do you have questions about celiac disease or the gluten-free diet?

  • Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
0
Kates77

Am I Insane? (Trying To Explain Gluten Sensitivity And My Psychological Symptoms To Non-Sufferers)

Rate this topic

Recommended Posts

The majority of my symptoms are psychological: depression, stress, anxiety, mood swings, cravings, obsessive thinking about food, binge eating etc.

 

I also experience digestive issues like diarrhea, constipation, malabsorption, bloating, excess gas and other physical issues like horrible acne, fatigue and weak joints.

 

But my most severe issues (depression/mood swings/food obsession and cravings) are psychological. This makes it extremely difficult for me, when I am trying to explain the connection between gluten sensitivity and my brain, to non-sufferers that just cannot comprehend how diet can impact the way we think.

 

If I was a non-sufferer, I would have trouble believing it as well! But the dramatic change that my whole personality underwent when I went gluten free was just so life changing that I am so convinced in the power of food as something that can both heal and harm. I guess I'm just in need of a bit of support from other people that also get psychological symptoms, and how a gluten free diet has dramatically improved their mental health.

 

Everyone seems to think I'm absolutely insane, and it is just so exhausting trying to explain all of my issues and the link to gluten, without sounding like a nut job.

 

I am currently eating gluten because I am going to get my blood test and endoscopy next Friday, and I find myself praying that I have Celiac Disease, because at least then the connection between my symptoms and gluten would be more concrete. I can't believe that I find myself hoping that my intestines are damaged just so that people will believe me!

 

I would appreciate any comments/advice! x

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


The majority of my symptoms are psychological: depression, stress, anxiety, mood swings, cravings, obsessive thinking about food, binge eating etc.

 

I also experience digestive issues like diarrhea, constipation, malabsorption, bloating, excess gas and other physical issues like horrible acne, fatigue and weak joints.

 

But my most severe issues (depression/mood swings/food obsession and cravings) are psychological. This makes it extremely difficult for me, when I am trying to explain the connection between gluten sensitivity and my brain, to non-sufferers that just cannot comprehend how diet can impact the way we think.

 

If I was a non-sufferer, I would have trouble believing it as well! But the dramatic change that my whole personality underwent when I went gluten free was just so life changing that I am so convinced in the power of food as something that can both heal and harm. I guess I'm just in need of a bit of support from other people that also get psychological symptoms, and how a gluten free diet has dramatically improved their mental health.

 

Everyone seems to think I'm absolutely insane, and it is just so exhausting trying to explain all of my issues and the link to gluten, without sounding like a nut job.

 

I am currently eating gluten because I am going to get my blood test and endoscopy next Friday, and I find myself praying that I have Celiac Disease, because at least then the connection between my symptoms and gluten would be more concrete. I can't believe that I find myself hoping that my intestines are damaged just so that people will believe me!

 

I would appreciate any comments/advice! x

I can completely relate to this. When I try to explain to my doctor that I am certain I have malabsorption, she looks at me like I'm crazy. I try to explain my feelings of derpersonalization and she recommends I should see a psychiatrist, but I know what I am experiencing is tied in with my constipation, flatulence, acid reflux, etc and the most likely cause is Gluten. I don't think you're crazy and I hope you figure it all out. I am now looking into possibly IV therapy through a natural health clinic because they did list malabsorption, depression, anxiety, fatigue and chronic stress in the list of treatable afflictions.  

Share this post


Link to post
Share on other sites

I wouldn't go into it trying to explain to anyone but your doctor(s).  You can say "it keeps me from thinking clearly", but I won't go into a lot more detail than that.  They won't understand, or relate.  And it doesn't really matter if they do, as long as they respect your choice to be gluten free.

Share this post


Link to post
Share on other sites

I can completely relate to this. When I try to explain to my doctor that I am certain I have malabsorption, she looks at me like I'm crazy. I try to explain my feelings of derpersonalization and she recommends I should see a psychiatrist, but I know what I am experiencing is tied in with my constipation, flatulence, acid reflux, etc and the most likely cause is Gluten. I don't think you're crazy and I hope you figure it all out. I am now looking into possibly IV therapy through a natural health clinic because they did list malabsorption, depression, anxiety, fatigue and chronic stress in the list of treatable afflictions.  

I have so many of the same symptoms as you! All of my friends want me to see a psychiatrist and my uncle thinks that I have an eating disorder because I didn't want to eat anything at a restaurant we went to when I had been gluten-free for a week (I tried explaining to him that I would EVENTUALLY eat out, but I was brand new to being Gluten-Free and just wanted to be super safe for the first little while). I really hope you work it all out with the IV therapy. Good luck :)

Share this post


Link to post
Share on other sites

Katie...for your own edification/interest/support; you may want to read about Abram Hoffer.  Interesting fellow, a psychiatrist from Canada, since died, but was in the Orthomolecular psychiatry movement.

The majority of my symptoms are psychological: depression, stress, anxiety, mood swings, cravings, obsessive thinking about food, binge eating etc.

 

I also experience digestive issues like diarrhea, constipation, malabsorption, bloating, excess gas and other physical issues like horrible acne, fatigue and weak joints.

 

But my most severe issues (depression/mood swings/food obsession and cravings) are psychological. This makes it extremely difficult for me, when I am trying to explain the connection between gluten sensitivity and my brain, to non-sufferers that just cannot comprehend how diet can impact the way we think.

 

If I was a non-sufferer, I would have trouble believing it as well! But the dramatic change that my whole personality underwent when I went gluten free was just so life changing that I am so convinced in the power of food as something that can both heal and harm. I guess I'm just in need of a bit of support from other people that also get psychological symptoms, and how a gluten free diet has dramatically improved their mental health.

 

Everyone seems to think I'm absolutely insane, and it is just so exhausting trying to explain all of my issues and the link to gluten, without sounding like a nut job.

 

I am currently eating gluten because I am going to get my blood test and endoscopy next Friday, and I find myself praying that I have Celiac Disease, because at least then the connection between my symptoms and gluten would be more concrete. I can't believe that I find myself hoping that my intestines are damaged just so that people will believe me!

 

I would appreciate any comments/advice! x

Share this post


Link to post
Share on other sites
Ads by Google:


I have so many of the same symptoms as you! All of my friends want me to see a psychiatrist and my uncle thinks that I have an eating disorder because I didn't want to eat anything at a restaurant we went to when I had been gluten-free for a week (I tried explaining to him that I would EVENTUALLY eat out, but I was brand new to being Gluten-Free and just wanted to be super safe for the first little while). I really hope you work it all out with the IV therapy. Good luck :)

Thank you! I'll let you know if it helps. I am so tired of phantom symptoms of illness.

Share this post


Link to post
Share on other sites

You don't owe anyone else an explanation of what is causing you to feel a certain way, because the average person *might* be able to throw around a bit of psychobabble talking points from watching Oprah, Dr. Oz, and a few other cable teevee personalities, or reading trashy popular magazines online, but they have not taken college level courses in psychology or had any medical training.  Malnutrition, and therefore shortages of vitamins and minerals, causes problems with food cravings....  this is not rocket science. This is a physical reaction.  Well-nourished people don't feel the need to binge - eat, because they are not starving to death on the inside. 

Share this post


Link to post
Share on other sites

It's no different (im simplifying greatly here) than the link between hypothyroidism and depression symptoms that miraculously disappear when the thyroid is treated. This is a documented effect...perhaps using it as an example would help explain?

For some Celiacs, I swear it's like our bodies convert healthy food to junk food. Why, how...I don't know but that's the effect. I assume its the malabsorption from intestinal damage, plus the obvious gluten rejection/AI response (which we all express differently).

Share this post


Link to post
Share on other sites

I know that everyone is different so this might not work for you, but I have just started taking a digestive enzyme pill after each meal and I have been feeling a lot better. 

Share this post


Link to post
Share on other sites

I agree that you should just not talk about it to people that you know don't understand.  Just tell them that you feel better, no details needed.

 

Most restaurants have an allergy menu which includes gluten allergy.  I just ask the server for their allergy menu and order from it.   

 

Good luck!

Share this post


Link to post
Share on other sites


Ads by Google:


Here are some articles to back you up: 

 

http://www.scientificamerican.com/article.cfm?id=gut-second-brain

http://www.celiaccentral.org/mental-health/Anxiety/614/

http://www.psychologytoday.com/blog/the-breakthrough-depression-solution/201105/is-gluten-making-you-depressed

 

I had to go back on gluten because of my biopsy next Friday after being off for three weeks and the psychological effects are amazing. Off gluten my ADD seemed to disappear and the insecurities I've been working through in therapy for four years now didn't seem so bad. But don't expect everything to get 100% better immediately. Some people heal more quickly than others. 

 

Good luck!

Share this post


Link to post
Share on other sites

You sound exactly like me!...same situation! I am also paying that I am a celiac, because I know there has to be a reason for the person I've changed into..

Share this post


Link to post
Share on other sites

I would like to add one more thing: Why almost every autistic child is put on gluten and casein free diet? It appears that they do better on it. There is some controversy about it, but I met one woman not to long ago in the Whole food whose naturopath suggested this diet for her son and she was willing to try it. Even you know one popular celebrity whose son has autism and currently is on gluten and casein free diet. It's Jenny McCarthy. I heard her once on Helen to talk about it. She is also on the same diet with her son and she stated that it changed her son's life. Maybe you can explain your situation with the help of this fact?

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      108,938
    • Total Posts
      943,598
  • Member Statistics

    • Total Members
      67,262
    • Most Online
      3,093

    Newest Member
    JadeYun
    Joined
  • Popular Now

  • Topics

  • Posts

    • Anyone who has ever tried to get an official diagnosis for celiac disease has likely experienced one very unpleasant reality: Having to eat wheat for a couple of weeks to make sure the antibody tests are accurate. Currently celiac diagnosis requires gluten consumption. This can be hard for people who have already given up gluten. View the full article
    • Perhaps automated word pull as JMG suggested. It is irrelevant, but I must comment :  Oddly was entertaining for me today (on a rough day) to read this drivel that included celiac bashing . The celiac dis didn't even hurt, for it was from someone who could not formulate a coherent rational  thought  and shared that publicly. At first I wondered what substance the author was on, then I read further to discover more of this odd piece. The author is all over the place. The piece is also laced with a poorly excuted, back handed attempt to express judgement , anger, and veiled hate in a masked arrogant self subscribed Christian label.  Sure the author  makes a point of shaming the offenders who dropped off the offensive clothes. If the author were perhaps more coherent and a better writer the piece could be borderline offensive or effectively shameful. Alas it is neither.  I however felt sorry  not for the donation facility , the homeless , or the readers, but felt sorry for the author . The author clearly has a lot of self hate, anger, low self esteem, poorly hidden beneath a false facade of uppityness, narcissism, arrogance, while identifying /self labeling as a Christian.  I very rarely get to read a piece where I can play/exercise my brain as lay person couch psychologist . This piece lends itself to that perfectly. I went to the link and read the comments below the article from the real people who express how best to give to those in need, where, and how appropriately. So all was not lost. The right people commented kindly, respectfully, logically, in a helpful guiding way and without hate or shame. So regardless of how admin got this article here - most of us should skip this for the rest of us  bored enough or seeking an odd entertainment piece that does not relate to celiac , let's hope the author gets the help they need as a disgusting gluten-free sandwich has more to offer to society. 😉 Lol  
    • Hi Gemma, Welcome to the very select, exclusive, super secret club of NCGS (or I if you like), where you get all the fun of living the gluten free diet with the added scepticism of half the medical establishment and most of the general public   If you're interested in learning more, there's some good resources collected here:  Feel free to add or just post there if you like.  It's great that the diet is working for you. The emotional side is difficult no doubt. It does get easier, trust me, for you and those around you also. You get better at planning, at coping, at working around it etc. The availability of safe foods and wider knowledge continues to improve year on year.  I've barely been back to Germany, one of my favourite countries, since going gluten-free but take some comfort in the fact that its always harder in a different country with a language barrier as well, but even so there's hope: https://foursquare.com/top-places/berlin/best-places-glutenfree-food https://www.tripadvisor.co.uk/Restaurants-g187323-zfz10992-Berlin.html You maybe need to accept there's a level of preplanning needed now that wasn't there before and if you do that you can still be spontaneous in other ways? Expect some setbacks, at times its ok to cry. Or, er happen to get something in your eye if you're a strapping bloke who should know better  Keep a good supply of nice safe snacks and treats at close hand. In your car/bag/pocket. Eat well before you go out. Have your freezer well stocked with nice safe food and your fridge too. Get to know what easy safe options are available, Are you in the UK? Join Coeliac.org and they'll send you the brilliant guide which will unlock so many safe, cheap foods, also available as an app. And post here, lots of good people with advice and support. Best of luck, Matt  
    • Hi All,  Recently (Nov 2017) I was diagnosed with NCGI by my consultant at hospital, this diagnosis has been after years of testing, colonoscopies, endoscopies and a 2 stone weight loss - it took the weight loss for me to finally be taken seriously by dr's. (I was tested for celiac around a year ago, all clear). I'm looking for advice to help me cope with this diagnosis, albeit I am thrilled that I potentially do not have anything life threatening (still undergoing tests, hosp visits etc.) but on the whole, I'm feeling hopeful that gluten may be the root cause to all my ailments and symptoms.  From diagnosis, I have cut out gluten completely, and apart from the odd slip up or cross contamination incident I have noticed a drastic improvement in my life quality and my time spent inside my bathroom walls has dramatically reduced. (TMI?)  The problem I am currently having is that I feel completely isolated from everyone in my life, I feel that me having to follow this strict diet is putting a burden on loved ones, especially when it comes to travel & eating out. (Was over in Berlin over the weekend, spent a good 5 hours over the weekend crying at being a burden to my BF restricting where we can eat, and also the fact that the majority of places we tried to dine, bar one or two, did not cater to the diet).  I thought I was coping with the diagnosis well, however the crying spell and fed up feeling with it proved I'm not. Does anyone have any good tips they followed and can recommend when they were newly diagnosed?    Xxx
    • Sorghum flour gives me massive cramps and diarrhea within 5 hours. I avoid it like the plague now.  FYI: Krusteaz gluten-free cornbread also has it as an ingredient, just found out the hard way.
  • Upcoming Events