• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

2 Months Gluten Free & Still.....
0

20 posts in this topic

I'm new here. Was diagnosed by biopsy 2 months ago and despite being Gluten Free for 2 months, I'm still having periodic problems with severe diarrhea. The bouts always seem to occur in the morning, after a normal BM. Breakfasts are simple (gluten-free cereal and some fruit). I'm puzzled and frustrated -  any suggestions ? 

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


So I've been having the same issues.  I have been nearly 100% gluten free for the past 3 months... I still have symptoms like fatigue, diarrhea, bouts of brain fog etc and considering whatever damage has been done it takes a while for your body to regenerate and heal. Do you at least feel better overall?  I'm not an expert and have not yet been diagnosed with celiacs or non-celiac gluten intolerance but from my own experience, advice from this forum, and personal research it is all about what you eat and a lot of times people with this problem are given dense nutrional options like gluten free pizza, gluten free donuts, cereals, breads, etc... but what a person in this condition really needs are WHOLE foods, almost paleo and whomever can tolerate grains and some dairy. So in that sense try a break from anything processed and opt for whats tolerable that is natural in its own form... so nothing in boxes or cans, fruit, some nuts, animal proteins... it is all individual to what your body can or can't handle other than the fact that you can't have gluten. Most importantly check for possible vitamin deficiencies that you may need to supplement on and be patient because it's most likely your body trying to heal :) I hope you get better, I know it's tough but you're on the right track, give it time and maintain positive thinking :)

0

Share this post


Link to post
Share on other sites

I would consider cutting dairy for a while. That could be causing it.

0

Share this post


Link to post
Share on other sites

Thanks for the thoughts and ideas. I'll definitely try eliminating dairy - especially since I often have some yogurt at breakfast.

 

I'm really curious about the "delay time" between eating a "problem" food and the onset of diarrhea. Is it typically almost immediate (say... within an hour) or can the problem manifest itself 12-24 hours later?

 

All input welcome !!

 

 

0

Share this post


Link to post
Share on other sites

I'm new here. Was diagnosed by biopsy 2 months ago and despite being Gluten Free for 2 months, I'm still having periodic problems with severe diarrhea. The bouts always seem to occur in the morning, after a normal BM. Breakfasts are simple (gluten-free cereal and some fruit). I'm puzzled and frustrated -  any suggestions ? 

Hello Morvenite, I empathize with your frustration. It may take some time for you to learn where gluten is hidden (not intentionally). You can find a list foods that contain gluten but are not necessarily labeled as such. Also, I stay clear of Oats even if they are labeled as gluten free. I too struggle with this. On another note, stay hydrated with electrolytes if you continue to have diarrhea. Keep well. Susan

0

Share this post


Link to post
Share on other sites
Ads by Google:


Has anyone found a good food journal for tracking gluten mishaps and other food allergens?

0

Share this post


Link to post
Share on other sites

For the first few months, I would have symptoms and not really know why.  I did keep a food journal for about a month.  It made me feel as though I was keeping track of some things, especially since my symptoms were delayed (which is why I had no real idea I had celiac until a good GI helped me out).  The first real glutening I had after ditching the gluten was about 3 hours and it was from a liquid source-margaritas to be exact.  Who knew!  Now my reaction time tends to be about 6 hours, but usually from cross contamination of some kind.  I have read other people say in the forum that sometimes their reaction times change and sometimes they don't.  Sometimes their symptoms change and sometimes they don't.  I think it really depends.  Also, some people feel the effects right away and other people have posted in the forum that it takes them a good day or two to react.

 

Going back to the symptoms you are having- in my case, it has taken a lot of detective work to figure things out.  I was glutened off of our grill (that took a couple of times).  We used to cook pizza on the grill and apparently gluten is resistent to the fire!  I just found out that the hand sanitizer I have been slathering all over my hands before I eat has wheat in it.  I couldn't figure out why I would come home from work for weeks feeling as though I have been slightly glutened even though everything I ate was safe.  Take a look at your bath and beauty products as well as limiting dairy for a bit.  Gluten can be in shampoo, toothpaste, chap stick, all forms or make up including lip stick, hand lotion... Maybe something else in your morning routine is causing you to react?

 

Good luck to you!  I love to know when you figure it out : )

0

Share this post


Link to post
Share on other sites

For the first few months, I would have symptoms and not really know why.  I did keep a food journal for about a month.  It made me feel as though I was keeping track of some things, especially since my symptoms were delayed (which is why I had no real idea I had celiac until a good GI helped me out).  The first real glutening I had after ditching the gluten was about 3 hours and it was from a liquid source-margaritas to be exact.  Who knew!  Now my reaction time tends to be about 6 hours, but usually from cross contamination of some kind.  I have read other people say in the forum that sometimes their reaction times change and sometimes they don't.  Sometimes their symptoms change and sometimes they don't.  I think it really depends.  Also, some people feel the effects right away and other people have posted in the forum that it takes them a good day or two to react.

 

Going back to the symptoms you are having- in my case, it has taken a lot of detective work to figure things out.  I was glutened off of our grill (that took a couple of times).  We used to cook pizza on the grill and apparently gluten is resistent to the fire!  I just found out that the hand sanitizer I have been slathering all over my hands before I eat has wheat in it.  I couldn't figure out why I would come home from work for weeks feeling as though I have been slightly glutened even though everything I ate was safe.  Take a look at your bath and beauty products as well as limiting dairy for a bit.  Gluten can be in shampoo, toothpaste, chap stick, all forms or make up including lip stick, hand lotion... Maybe something else in your morning routine is causing you to react?

 

Good luck to you!  I love to know when you figure it out : )

 

 

I'm new here. Was diagnosed by biopsy 2 months ago and despite being Gluten Free for 2 months, I'm still having periodic problems with severe diarrhea. The bouts always seem to occur in the morning, after a normal BM. Breakfasts are simple (gluten-free cereal and some fruit). I'm puzzled and frustrated -  any suggestions ? 

I'm sorry you still have symptoms, but it can take years for the intestines to recover from a lifetime of celiac.  Also, you can be sensitive to other grains as well and as other people have answered, other ingredients.  The processed gluten-free foods can be especially harmful as they contain an array of fillers and substitutes.  Xanathan gum, for one is frequently used as a binder and is a known laxative!  This alone could be your problem.  You need to read labels carefully and become a detective.  Start your day with fruits, eggs, vegetables.  Start juicing as veggies are very high in anti-inflammatories.  Look up anti-inflammatory diet and that should help.  It is not easy and it's not fun, but after awhile you learn to eat to live and it becomes more important to feel good than to eat.  Blah...:(  but true

0

Share this post


Link to post
Share on other sites

Thanks for the thoughts and ideas. I'll definitely try eliminating dairy - especially since I often have some yogurt at breakfast.

 

I'm really curious about the "delay time" between eating a "problem" food and the onset of diarrhea. Is it typically almost immediate (say... within an hour) or can the problem manifest itself 12-24 hours later?

 

All input welcome !!

in the beginning of my gluten-free diet, my reaction time (causing the big D) was almost immediate.  like i licked my fingers while re-heating 'regular' food for the kids and BOOM 5-15 min later i was running to the bathroom.  now that i am a few years in, it takes 2 days to get the full on reaction.  it will start sneaking up on me within 12 hrs i will get a headache.  then all my joints hurt, pain under ribcage, severe fatigue, cranky mean irritable.  i actually notice when i start feeling bad now that i normally feel so good.  when i was very damaged and sick, i felt bad all the time so didn't really notice when i felt sick-er.  the only thing i noticed was the D.  if that makes any sense  :)  now that i DON'T have a headache ALL THE TIME i notice when i get one.....

 

nope, the grill won't burn off the gluten.  unless you have a grill that can do, like, 650 F.  i use tinfoil when i have to grill on a un-dedicated grill.  i have a little one for me when i'm home that has never touched gluten.  also, good call on the hand sanitizer - my first camping experience i was sick as a dog and couldn't figure out why!!  now it's soap & water  :)  

0

Share this post


Link to post
Share on other sites

It is recommended that we eliminate dairy from our diets for 6 months and then try reintroducing it. I will probably just stick with goat milk products instead of the full range of dairy products when I reach that milestone. Also, the Paleo diet made me feel so much better (that's no grains). I've spent many months eliminating one thing after another and decided to take a quicker route (Paleo). Last night I binged on raisins and am not feeling too well today. It's just not worth it to cheat. Many people don't have to give up all grains. I simply wanted to get off the roller coaster and feel better.

Hang in there and good luck!

Cali

0

Share this post


Link to post
Share on other sites

Welcome! I'm seeing some great suggestions here, so I guess I'll jump in too! Lol I'm a big advocate for the food journal, doesn't have to be anything more than a little notebook that will fit in your pocket. Something that you can jot down what you eat and how you feel, so you can track what makes you feel yucky, for lack of a more scientific word.

0

Share this post


Link to post
Share on other sites

in the beginning of my gluten-free diet, my reaction time (causing the big D) was almost immediate.  like i licked my fingers while re-heating 'regular' food for the kids and BOOM 5-15 min later i was running to the bathroom.  now that i am a few years in, it takes 2 days to get the full on reaction.  it will start sneaking up on me within 12 hrs i will get a headache.  then all my joints hurt, pain under ribcage, severe fatigue, cranky mean irritable.  i actually notice when i start feeling bad now that i normally feel so good.  when i was very damaged and sick, i felt bad all the time so didn't really notice when i felt sick-er.  the only thing i noticed was the D.  if that makes any sense   :)  now that i DON'T have a headache ALL THE TIME i notice when i get one.....

 

nope, the grill won't burn off the gluten.  unless you have a grill that can do, like, 650 F.  i use tinfoil when i have to grill on a un-dedicated grill.  i have a little one for me when i'm home that has never touched gluten.  also, good call on the hand sanitizer - my first camping experience i was sick as a dog and couldn't figure out why!!  now it's soap & water   :)

What if your husband takes a torch and scrubs and burns the grates off and the inside. Can you use the grill then?

0

Share this post


Link to post
Share on other sites

What if your husband takes a torch and scrubs and burns the grates off and the inside. Can you use the grill then?

We just buy new grates every year or two. They aren't expensive at the hardware store.

You could torch and scrub and that would probably work. If the grates are small enough, you could put them in a self cleaning oven and turn it on the clean cycle.

0

Share this post


Link to post
Share on other sites

What if your husband takes a torch and scrubs and burns the grates off and the inside. Can you use the grill then?

ahhh!  creeper!!  lolz - yes, my husband did that :)  but i was hesitant to suggest it because not everybody has cast iron grates and is handy with a torch.  also, we 'reseasoned' our cast iron pans by putting them in the oven on the self-clean cycle.  seems to have worked. or we maybe never cooked anything with gluten in them??  

 

i like the replacing the grates, karen, i am just married to a stubborn man!  :P

0

Share this post


Link to post
Share on other sites

ahhh!  creeper!!  lolz - yes, my husband did that :)  but i was hesitant to suggest it because not everybody has cast iron grates and is handy with a torch.  also, we 'reseasoned' our cast iron pans by putting them in the oven on the self-clean cycle.  seems to have worked. or we maybe never cooked anything with gluten in them??  

 

i like the replacing the grates, karen, i am just married to a stubborn man!  :P

I probably should not have posted about the torch and scrubbing with a wire brush.

I like the idea of buying $$$$$ new grates too. :D

0

Share this post


Link to post
Share on other sites

ahhh!  creeper!!  lolz - yes, my husband did that :)  but i was hesitant to suggest it because not everybody has cast iron grates and is handy with a torch.  also, we 'reseasoned' our cast iron pans by putting them in the oven on the self-clean cycle.  seems to have worked. or we maybe never cooked anything with gluten in them??  

 

i like the replacing the grates, karen, i am just married to a stubborn man!   :P

 

We just get something like this.  My hub would think his time was worth more than the $20 to replace the grates.  ^_^

 

http://www.homedepot.com/p/Char-Broil-Pro-Sear-Adjustable-Porcelain-Coated-Steel-Cooking-Grate-14-3-4-to-17-in-long-4984350P/202018231?N=bxde

 

When we travel and want to use a grill at the hotel or condo, we get some disposible ones from Walmart.  The ones I get have ridges &  small slits oin the bottom to let the grease out.  You open them up.   My hub positions them on the dirty grill and opens the holes that are between the dirty grates.  Keeps the food off the grate. Couldn't find the exact kind to show you.  They are 3 for about $4. 

0

Share this post


Link to post
Share on other sites

we take the little grill with us when we travel, also.  i will look for those disposable ones :)  great idea in a pinch!

0

Share this post


Link to post
Share on other sites

May I ask how long you have been affected by gluten? It can take a long time for your body to recover. If it has gone over a long period, i.e longer than a year then the recovery can be everything from a few months to a year+. For my it has been 9 months and I'm still recovering. Probably another x months before things go back to normal. Just gotta be a trooper and hang in there!

0

Share this post


Link to post
Share on other sites

I want to thank everyone who has posted on this topic for their comments and suggestions. As suggested, a couple of weeks ago I adopted a dairy free protocol and was already to declare "mission accomplished" .......until today !! There definitely seemed to be an improvement in the number of D days, but then "wham" again today. So, guess I'll have to be even more vigilant about the Gluten content of foods eaten in tiny amounts and try to sort out what's causing the problem. It sure doesn't help that the reaction time (as reported here) seems to vary substantially (maybe even on a personal basis).

 

I'm also wondering if anyone else has had any experience with proton pump inhibitors. I've been on one for about 2 years, roughly the same length of time I've had "D" issues. Maybe I should start a new topic about this.

0

Share this post


Link to post
Share on other sites

I'm glad to hear that you're feeling better.  Give it some time, you'll figure it out.  Sorry I can't help you with the proton pump inhibitor.  I don't really know what that is/does.  Ignorance is bliss, I'm sure  :D

 

I hope you continue to improve!!!

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,749
    • Total Posts
      932,173
  • Member Statistics

    • Total Members
      64,206
    • Most Online
      3,093

    Newest Member
    Nati
    Joined
  • Popular Now

  • Topics

  • Posts

    • King Arthur Flour has excellent mixes and gluten free recipes if you enjoy baking.  If you live in a city, there are bound to be bakeries and cafes that make gluten free items and some groceries stores that stock them as well.  
    • You could have the full celiac panel done to see if any other numbers come up high. TTG IGA and IGG, DGP IGA and IGG, EMA. If your doctor is not a gastroenterologist then you can try going to one. They know what to test for. You could also simplify your diet and start a food log. Gradually introduce foods and when stomach pains start you can see what you ate in the last two days to cause a problem.  
    • I had the same issue with stomach pain after diagnosis and it turned out to be soy protein that was causing it.  I never ate much soy before diagnosis and gluten was keeping me constantly ill so I never realized it was an issue till I stopped going with foods with soy on the suggestion of good freind. Not saying that is the problem with you but thought I would throw it out there as a possibility. If you are eating oats you may want to drop those for a bit also since some of us will react to those even if they are gluten free. In addition is there any way you can avoid eating oput for a month or so? You may be getting glutened but not enough to show on the TtG. I could be wrong but I think the DGP tests are the preferred ones for checking with dietary compliance. You should also consider dropping dairy for a bit. Add it back in when you are feeling better starting with stuff like hard cheeses, yogurt and butter that have low amounts of lactose. Hopefully you will be able to figure out what is going on soon and get some relief.  
    • I was diagnosed with celiac 2 years ago and since have been gluten-free. When I started my ttg was 88. I just recently visited the doc because I still seem to suffer from almost daily stomach pain. My ttg came back at 4. The doc suggested I try Metamucil and next week give lactaid a try as I still eat dairy.  The metamucil I took one day and I had such bad stomach pain and loose bowel movements I felt too miserable to try it again. I haven't tried the lactaid yet but in the past I have and didn't see much difference.  Heres the other thing: I do eat out a lot. I try to stick with safe places but every now and then I play the odds. So I usually manage to get sick once a month (lately it's been more) so I went to the doc and had my ttg level tested to see if my body is still getting gluten and this is why I still feel horrible. But my levels came back at 4, so now I'm just wondering... what the heck? I'm feeling super discouraged and doomed to a life of unexplained stomach pain.    The annoying part is all my dr did is give me the results. Like "oh you're continuing to improve." Ok, but I'm in paid so what's going on? No answers, ever. It seems like I get suggestions, but they never do anything and I'm so fed up with my body. I'm tired of waking up frequently wondering what I could have ate that is bothering me. I had no idea two years later I'd still be struggling. Lately the stomach pain has increased and it's daily now again. I've been taking pepto for it and it helps a bit, but I don't want to live life digging in my purse for pepto everyday.   any advice or suggestions from anyone who has been through this are appreciated.  I get that celiac may not be the only problem but I don't know where to go anymore as I've been searching for 2 years.      
    • I agree that this article is a scare tactic.  Looks like this child was starved to death. Note the article states the parents did not seek medical help. Millions of children and adults have food allergies and intolerance but do not have this happen. Following a medical diet is a healthy choice for quality and quantity of life. These types of articles have no value in this place of healing.
  • Upcoming Events