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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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Sibenjam

Pain Under Ribs - What Is Physically Going On?

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I have been having horrible pain under my ribcage for about four years. I have gone to my pcp doctor to complain again and again, and have also seen two different GI doctors, all of whom suggested that I had IBS but had no explanation or relief for the pain. Finally I saw a Liver and Digestive Disease Specialist who agreed with me that I do not have IBS, but quite possibly this is caused by a reaction to gluten. I have been gluten free for nearly 10 days (with one relapse) and the pain is subsiding. In the meantime I had a HIDA scan and lots of bloodwork, for which I am still awaiting results. I have been doing lots of searches on the Internet and over and over again I read anecdotal stories of people with this exact same pain but nowhere have I read an explanation of what is internally, biologically causing the physical pain. Can anyone offer any explanation?  Thanks! Susan

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If its the right side, it could be the gallbladder. Mine did fine on all blood tests and ultrasounds, but when i had a HIDA scan done it showed it was working at 5%. The pain was really bad from it. It was not functioning properly either.

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I experienced this on my right side for MANY years until I found out I had celiac disease.  It took a number of months for it to resolve, though, on a gluten-free diet.  I always thought that it was caused by celiac because it corresponded with the beginning of the small intestine, where I assumed the most damage had occurred.

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Gall bladder is a possibility.  Damage and inflammation of the small intestine caused by celiac disease is another.  Celiac disease causes damage to the villi lining of the small intestine.  It's not real unusual to see posts on this forum by people with both gall bladder issues and celiac disease.  Sometimes the gall bladder can heal after the irritation (gluten) is removed, but not always.

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If it feels like the entire ribcage itself, it could be costochondritis, an inflammation of the connective tissue holding together the ribcage.  This goes along with certain types of auto immune or generalized inflammation conditions, like some types of arthritis.  A flare-up will coincide with a glutening if you have a gluten problem, as well.  It is good to see some of the Liver Specialists cuing in on the problems gluten can cause with the liver, gall bladder, etc.  Anything that makes your liver malfunction, is going to cause a lot of discomfort in other areas. 

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I have costochondritis and it is NOT funny.  Started when I had severe bronchitis which then became pneumonia.  The intense and frequent coughing literally ripped muscles from my bones.  That happened 2.5 years ago and I have had the pain ever since.  Would love for it to disappear but so far has not on my gluten free diet.  Makes it very difficult to sleep at night.

 

Hope you find out what is causing this pain!

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I experienced this on my right side for MANY years until I found out I had celiac disease.  It took a number of months for it to resolve, though, on a gluten-free diet.  I always thought that it was caused by celiac because it corresponded with the beginning of the small intestine, where I assumed the most damage had occurred.

 

 

OH ,so good to see you, Rose! How's the arm??? :)

 

(pardon the interruption, folks)

 

As for rib cage pain, breast bone pain, cholecystitits ( pain & inflammation in my gall bladder which eventually became diseased and was removed)  and costochondritis including severe pain whenever I took a deep breath...well, I had them all while quite ill from UnDXed celiac.

 

Post DX? --all gone. 

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OH ,so good to see you, Rose! How's the arm??? :)

 

(pardon the interruption, folks)

 

As for rib cage pain, breast bone pain, cholecystitits ( pain & inflammation in my gall bladder which eventually became diseased and was removed)  and costochondritis including severe pain whenever I took a deep breath...well, I had them all while quite ill from UnDXed celiac.

 

Post DX? --all gone. 

 

Thanks for reminding us there is always hope.  :)

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Thanks for reminding us there is always hope.  :)

 

Oh, Lovey, my friend,  hope is what I hang my hat on.  :)

With hope, all things are possible.  Without it, you're already beaten.

I say "Never give in." 

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