• Join our community!

    Do you have questions about celiac disease or the gluten-free diet?

  • Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
0
babygrant

7 Year Old, Symptoms And Blood Results

Rate this topic

Recommended Posts

My son is 7 years old and has had gi issues since birth. Since his very first bm. As a baby he would scream and scream and scream, fart and explode. Diaper full of loose, disgusting, mucousy poop. He was strictly breast fed till 9 months and then started him on solids. Constipation and mucousy diarrhea followed. He would be so constipated after just a day or two it would tear his rectum. :( we would bring him to the doctor, nobody would listen. We would bring him to emergency after 2 weeks of no bm's and they'd give him an enema and send us on our way. This child has had more enemas and suppositories than I can count. He's been on senna, lactulose, peg3350, high fiber etc etc. we were always told it was normal blah blah blah. We noticed after he ate bread he hecame a holy terror. He'd also complain of or pain and itchiness at night. Screaming, yelling, sad, etc so about two years ago out of desperation we pulled him off gluten. The change was amazing. No more temper tantrums about nothing, no freak outs, no night terrors and leg pain, and we could take him off the laxatives! Finally we found a pediatrician who would listen. She wanted to do a celiac test so we had to put him back on gluten for 6 weeks. He cried for the first 3 weeks cause he didn't want to eat gluten. We struggled to even get a few bites of sandwich into him midrib that time we had to put him back on peg3350 and senna at night. That was just to keep his stool able to pass. Leg pain scale back and the complete break downs and mood swings came back.

So today we had check up with the ped. His tissue transglutaminase ab iga came back at 13.7 normal being 0-20. The ped says although he is not textbook levels for celiac she believes strongly he does have it. She said in her experience when a non-celiac gets that blood test they always come back less than 5. She thinks because he wasn't eating the equivalent of 2 slices of bread for 6 weeks the results may be skewed. She mentioned a biopsy but strongly suggests against it until he's in his preteens and can do the adult scope.

So my questions, does this sound normal?

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Normal? No.  Normal for celiac, yes; totally.  Constipation, diarrhea, messy poops, pain, meltdowns and other behavior issues, absolutely.  You have a wise pediatrician (a keeper :) ) who recognizes that he probably was not eating enough gluten to produce a full celiac antibody response.  I don't know if I  agree with not doing the biopsy.  He is old enough to handle the procedure well and it will probably be his best chance to get a measure of damage.  To have it done later he would have to resume eating gluten for at least 6-8 weeks which he is most unlikely to want to do (and you probably wouldn't want to be around him while he did it ;) ).  I doubt that he would last the full challenge.  I am not aware of the considerations between a "child scope" and an "adult scope" which would affect the decision of whether to scope or not at this point.  Perhaps you could clarify this with her.

 

Welcome to the board and feel free to keep asking questions.

Share this post


Link to post
Share on other sites

He is back off of gluten now. Has been for about two months since we did the blood work. So we would have to put him back on gluten again if we did the scope.

We cannot get a scope done here for him. It would require a trip to the children's hospital 8 hours away and they will only put him completely to sleep for a scope and biopsy at this age. If we wait till pre-teen years we can get scope done here and under twilight sedation. This ped really advocates for the child and she just thinks he's too young right now to understand the whole prodedure and its too invasive. She thinks that because he does soooo well without gluten and with the blood results why do we need a piece of paper to say yes, he has celiac. She just thinks keep him off gluten since its working, scope when older.

Share this post


Link to post
Share on other sites

So is she prepared to write a lettter stating that he must not be exposed to gluten, since he will come in contact with it constantly in the school system?  Unless you are a homeschooler?  This is the reason you need the piece of paper!  Because it's so hard to keep a child gluten free outside the home without a diagnosis :(  and without making them understand the necessity for it.

Share this post


Link to post
Share on other sites

The teacher and school is completely on board and has been since he went off gluten. Theres actually a couple kids who have celiac. All kids in the school pack their own lunches and I pack him his own treats for parties etc.

Share this post


Link to post
Share on other sites
Ads by Google:


The dietary test you've already done is a valid diagnostic test, and - as far as I can tell from what you've written - has given you guys a VERY clear answer.

Share this post


Link to post
Share on other sites

hopefully they will have the in vitro testing by the time he is that age.  I, frankly, wouldn't want to be around a pubertal male with these psyc symptoms!

Share this post


Link to post
Share on other sites

= Behavior changes caused by gluten, i.e., the meltdowns.  Young teensters & toddlers.... aie yee yee. :ph34r:  

  • Upvote 1

Share this post


Link to post
Share on other sites

Lol oh ok gotcha. He is an amazing child sans gluten. But when we had toast him eat it prior to blood tests I wanted to sell him to the circus!!! He would freak out and be crying next minute apologizing. Said he just can't help it. Poor guy.

Share this post


Link to post
Share on other sites


Ads by Google:


Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      108,947
    • Total Posts
      943,631
  • Member Statistics

    • Total Members
      67,294
    • Most Online
      3,093

    Newest Member
    TammyJ
    Joined
  • Topics

  • Posts

    •   When I woke up from my Endoscopy and was told I definitely had celiac disease the first thing I asked my doctor was do I need to get all new kitchen stuff? He assured me that I did not, and as long as my pots and pans and everything else was washed after being used to cook gluten I would have no problems. Well, I'm 10 weeks into my gluten-free diet and still feeling crappy as ever.  I have not been eating out unless the restaurant is 100% gluten-free (I'm lucky there are several near me).  I am very careful that everything I use to cook my food is thoroughly cleaned at home, but is this really enough?  Did you guys need to replace most kitchenware in order really avoid being cross contaminated?   I'm curious to get some opinions before I spend a bunch of money on new/separate stuff.  Thanks!  
    • They have all given you good advice. Like Ennis_Tx said this is not medical advice. Just some observations. Ennis_Tx mentioned already a good B-complex. But people who have Perncious Anemia low B-12 have "Pens and Needles' feeling in their extremities. Mine was much more pronounced when sleeping. . . while sleeping my nerve ending would go to sleep. This would wake me from my sleep.  I would shake them awake/loose much like a leg that had fallen asleep while awake.  We have all felt that feeling before except the whole side of body's nerve ending would tingle/fall asleep enough to wake me from my sleep. Once taking a homocysteine tablet (B6,b12 and folic acid) tablet call FABB for the abbreviated ingredients under doctor's supervision this "pens and needles' went away. This also happened in my finger and toe tips while awake as if I had pinched a nerve in my back. These sensations are now in remission. Also if you think it is Rynaud's then try Niacin or Niacinamide.  It is a natural vasodialotor and the 'warm sensation" people take when using Niacin especially in a work out supplement is Niacin they add to enhance athletic performance for body builders.. . . because this opens capillaries approx. 10 % more allowing more air into the muscles thus improving their work out. This flushing goes away after a couple days of using Niacin.  The Niacinamide form does not flush the way the Niacin form does but provides the same benefit. Both Niacinamide and Magnesium each lower blood pressure approx. 10% each this way.  But if BP is a real problem for you  take the Homocysteine tablet mentioned above or just Folic Acid by itself. My BP is now normal after taking Folic Acid because it controls' how/what triggers constriction in our blood vessels thus effectively controlling BP. These are some times that I have used to improve my circulation. *** again this is not medical advice just things that have helped me with similar issues.  I hope this is helpful. 2 Tim 2:7 “Consider what I say; and the Lord give thee understanding in all things” this included. posterboy by the grace of God,
    • Thank you for your advices, Kareng and Ennis_TX. Hope you guys are still doing well with celiac. I will ask my doctor about the preparation for the Celiac screening and lymph node checking. By the way, do these test cost much? To Ennis_TX: Did you do any test or check for your lymph nodes, when you noticed them swelling. And did you have many of them? did you member their size? Were they hurt you. Sorry for asking to much. My doctor just told me do ultra sound. I dont know should I ask her to do another tests to make sure the reason of swelling lymph nodes
    • IF your still getting cramps look into supplementing with Magnesium, either Natural Vitality Calm or Doctors best in the glycinate powder. Depending on other symptoms and the way your body works depends on which form is best. Calm is best if you have hard stools, do not go daily with a BM you start it off small 1/4tsp and work it up to the full dose over a week or two. If you get loose stools cut back as you dose this to tolerance. Doctors best is easier on the stomach and will not cause D or loose stools like Calm but can cause you to really relax too much and cause very vivid dreams (this is a good sign that it is working) You will notice the cramps lessen with both of these. The cramps in combination with the numbness is a sign of magnesium deficiency which is caused by your damaged intestines normally and can be made worse by PPIs and a few other issues.
  • Upcoming Events