• Join our community!

    Do you have questions about celiac disease or the gluten-free diet?

  • Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
0
Tamber

How Much "cheating" Is Allowed ?

Rate this topic

Recommended Posts

  This stuff can kill you.

This is the bottom line .

 

 

Welcome to the forums :D

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Hi Tamber, again.

 

I just wanted to say welcome again, and it's okay to want to cheat. And one cheat will no kill you, nor another cheat. I know many people in my small town who cheat, although diagnosed.  It's all about choices.

 

When I do get careless, it takes a day out of my life, listless on the sofa and I'm confined to home ( and I suffer less than others).  AND, why waste a day and why waste a day of good health.?

 

Go for the good stuff and live well.  And you know, what's right for you.  I am confident you will choose wiselyl  You will make the right choice. :)

Share this post


Link to post
Share on other sites

I was a bit careless yesterday, and for the first time in a long time something rose up and bit me :ph34r:   I am really miffed with myself because who needs to feel like #*&T when they could be out having fun :rolleyes:

  • Upvote 1

Share this post


Link to post
Share on other sites

I was a bit careless yesterday, and for the first time in a long time something rose up and bit me :ph34r:   I am really miffed with myself because who needs to feel like #*&T when they could be out having fun :rolleyes:

Hope you feel better today. xxxooo    Today is tomorrow. Feel beter  Mushrooms!

Share this post


Link to post
Share on other sites

Hope you feel better today. xxxooo    Today is tomorrow. Feel beter  Mushrooms!

 

Thanks!  Still trying to find something to eat other than yogurt that does not make me feel like barfing.  Think I'll make some veggie soup :)

Share this post


Link to post
Share on other sites

Diagnosed 1 month ago here - I echo everyone, and will add that I thought I had manageable symptoms, but they've gotten worse since being gluten-free.  Now, an accidental glutening is just no fun at all.  And I suspect it will get worse.  This is nature's way of keeping you from cheating.

 

What helped me, and still does, is thinking that research is moving quickly with the new prevalence of Celiac, and maybe science will have a pill, or a new treatment in 5 years or 10 and I can go back to an occasional treat.  But the honest truth is, I'm finding plenty I can eat gluten-free and you just adjust.  The hardest part with me is figuring out when to trust restaurants, etc. and dealing with work related meals.  But I think I'll figure that out.  Good luck.  I was you only one month ago.

Share this post


Link to post
Share on other sites

What if you aren't celiac, and just "possibly" gluten intolerant/allergic?

Share this post


Link to post
Share on other sites

It all depends on how much you want to suffer and how much damage you want to risk doing to your body.    And allergy is something else entirely, and not to be taken lightly, as allergies can become worse and life-threatening.

Share this post


Link to post
Share on other sites

It all depends on how much you want to suffer and how much damage you want to risk doing to your body.    And allergy is something else entirely, and not to be taken lightly, as allergies can become worse and life-threatening.

I guess I am just not really sure what is going on with me. Tests are negative and no GI problems. Went gluten free anyways to see if it helps with my chronic migraines and autoimmune skin issues. Not sure if that is allergy or intolerance.

Share this post


Link to post
Share on other sites

I guess I am just not really sure what is going on with me. Tests are negative and no GI problems. Went gluten free anyways to see if it helps with my chronic migraines and autoimmune skin issues. Not sure if that is allergy or intolerance.

Hey Sweettea!  Migraines and skin issues are closely associated with celiac disease.  Are you aware of dematitis herpetiformis?

Share this post


Link to post
Share on other sites

Hey Sweettea!  Migraines and skin issues are closely associated with celiac disease.  Are you aware of dematitis herpetiformis?

Hi! I just recently heard of it through my gluten research. I was diagnosed with lichen plants and lichen nitidus. I definitely don't look like I have the herpetiformis going on but google I'd probably showing me the worst case scenarios.

Share this post


Link to post
Share on other sites

If you check the dermatitis herpetiformis section on the forum here, there is a photo bank of members photographs of their lesions for comparison purposes.  These run the gamut from mild to severe.  Even dermatologists have a hard time with this diagnosis. 

 

ETA: Eczema and psoriasis are two other skin conditins associated with celiac disease.

Share this post


Link to post
Share on other sites

I guess I am just not really sure what is going on with me. Tests are negative and no GI problems. Went gluten free anyways to see if it helps with my chronic migraines and autoimmune skin issues. Not sure if that is allergy or intolerance.

 

Sweettea - If I may, what tests did you have ? 

 

For me, both the Deamidated Gliatin Abs IgA test and the t-Transglutaminase (tTG) IgA came back negative. It was the tgG IgG test that came back high. And that was later supported by a dramatic change in my Vitamin D levels - from 115 to 35 after approx. 65 days gluten free.

 

PS Does anyone here know whether the innaccurate results of my IgA tests could have anything to do with my having very low Immunoglobuliina A levels ?

Share this post


Link to post
Share on other sites

PS Does anyone here know whether the innaccurate results of my IgA tests could have anything to do with my having very low Immunoglobuliina A levels ?

 

Yes.  The  Immunoglobulin A, aka total serum IgA, is run as a control test to ensure that you produce normal amounts of antibodies.  If yours was low it would invalidate any IgA testing, in which case they use the IgG.   I am hoping you meant your D went up to 115 from 35 ;)

Share this post


Link to post
Share on other sites

Yes.  The  Immunoglobulin A, aka total serum IgA, is run as a control test to ensure that you produce normal amounts of antibodies.  If yours was low it would invalidate any IgA testing, in which case they use the IgG.   I am hoping you meant your D went up to 115 from 35 ;)

Thanks Mushroom. I should have been more specific. While my D,25 was and is completely responsive to supplementation, my D1,25 has been steadily, independently climbing for a few years and finally hit 115 (High normal being 75 at my lab). That signalled to my docs that something was going on. Turns out that celiac was preventing my body from properly metabolizing D3 which then found its way into my blood and my urine and caused a significant deterioration in my oestopenia/osteoporosis numbers as well as a broken tooth.. Once my body is back on track, I'll increase my D3 supplementation  to constructively increase my D levels. It was a lesson that high D 1,25 isn't always a good thing and may in fact signal an infection or other problem.

Share this post


Link to post
Share on other sites

Thanks Mushroom. I should have been more specific. While my D,25 was and is completely responsive to supplementation, my D1,25 has been steadily, independently climbing for a few years and finally hit 115 (High normal being 75 at my lab). That signalled to my docs that something was going on. Turns out that celiac was preventing my body from properly metabolizing D3 which then found its way into my blood and my urine and caused a significant deterioration in my oestopenia/osteoporosis numbers as well as a broken tooth.. Once my body is back on track, I'll increase my D3 supplementation  to constructively increase my D levels. It was a lesson that high D 1,25 isn't always a good thing and may in fact signal an infection or other problem.

 

Okay, gotcha. :)

Share this post


Link to post
Share on other sites

I guess I am just not really sure what is going on with me. Tests are negative and no GI problems. Went gluten free anyways to see if it helps with my chronic migraines and autoimmune skin issues. Not sure if that is allergy or intolerance.

Migraines... I used to have those close to two weeks out of every month... I had no idea they were gluten related before my diagnosis. I hope yours go too.

 

Gluten intolerantsexperience basically every symptom as a celiac except villi damage. They can have ataxia, nueropathies, gastro issues, nutritional deficiencies, and pain - all that inflammation can lead to other disease too. To be safe, I would go 100% gluten-free.

 

Best wishes.

Share this post


Link to post
Share on other sites

Sweettea - If I may, what tests did you have ?  For me, both the Deamidated Gliatin Abs IgA test and the t-Transglutaminase (tTG) IgA came back negative. It was the tgG IgG test that came back high. And that was later supported by a dramatic change in my Vitamin D levels - from 115 to 35 after approx. 65 days gluten free. PS Does anyone here know whether the innaccurate results of my IgA tests could have anything to do with my having very low Immunoglobuliina A levels ?

I've had them all done including an endoscopy with biopsy which is why I'm leaning towards gluten intolerance.

Share this post


Link to post
Share on other sites

Fine line between an intolerance and full on Celiac disease, either way you can end up autoimmune. I only ever got gut aches from eating bread/pasta/etc and a slight brain fog immediately before the gut ache and complete system flush :0 but it wasn't enough of a problem that I thought I needed to stop eating it. I certainly never had anything like you read about with people getting sick at the sniff of a flour dust. It's probably just a matter of how sensitive you are in general. So I figured I didn't have a serious problem with it.. Well I was wrong

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      108,955
    • Total Posts
      943,654
  • Member Statistics

    • Total Members
      67,257
    • Most Online
      3,093

    Newest Member
    Mariemarie
    Joined
  • Popular Now

  • Topics

  • Posts

    • Gemma......if you are ever in London, please check out this place.  It is a 100% gluten free bakery and the food is out of this world!  I can't get bread like this in the States and it certainly is worth a road trip for anyone living in the Uk, within reasonable distance from London.  It will easily satisfy all of your bakery cravings and I bet the bread freezes well. http://www.beyondbread.co.uk/
    • Celiac disease can be dormant for years til a strain/stress to the immune system makes it come out. Many of us have had this issues, your infection run in might have triggered the dormant genes for the disease if you had them. I would follow up with the testing, see about getting a full celiac blood panel if you can, you have to be eating gluten for 12 weeks daily prior to testing. http://www.cureceliacdisease.org/screening/

        If not celiac it could be another food intolerance/sensitivity I suggest keeping a food diary and tracking what you eat, seasonings, how it is cooked etc. And how you feel later. Change up our diet more and look for patterns.  Here is stuff to read up on. https://www.mindbodygreen.com/articles/are-food-sensitivities-for-life
    • Yeah , i will look into getting tested - like you say there is no harm in it . What I found very interesting is the part where you say "Later I got pains in the stomach, usually a dull ache although I could get a fierce stabbing pain there too. When I went gluten free those pains stopped. as did my chronic sciatic backache which Ive subsequently realised was probably due to inflamed tissues pressing on nerves." - I also started to get chronic sciatic nerve pain on the right side over a similar time period and am wondering if its the same kind of thing. If I could solve both those things it would be life changing for me
    • Hi ,  i was thinking that an intolerance and allergy were about the same thing really but sorry if im wrong. I know celiac is an autoimmune disease but was thinking that is different again, more serious and was erring on the side of my possible issue not being that but more of the intolerance type. Clearly im just guessing though and dont know about this stuff , hence the posting for advice, The problem with trying to get tested is that in bolivia there are very limited tests and doctors are unreliable so you have to rely on yourself to certain degree. I have heard of a test here and was planning on looking into that but it made sense to try to get some opinions and advice online first so Im in a better position to understand if any tests here are actually reliable enough. I dont think there is an issue with travel parasites etc as I have already taken the medications thats would kill them like a course of albendazol and praziquantel and that was after a 2 week anti parasite cleanse. That did feel like it got rid of anything and the only issue I have been left with is this pain as described.
    • Karen's point about parasites etc is a good one. They can cause a lot of symptoms similar to celiac /ncgs as you probably know.  At 11 I had my appendix removed following pain in the lower right side of my torso. On waking up the surgeon told me that it was actually ok, when I asked what caused the pain I think they said it was probably glandular - they didn't know. Later I got pains in the stomach, usually a dull ache although I could get a fierce stabbing pain there too. When I went gluten free those pains stopped. as did my chronic sciatic backache which Ive subsequently realised was probably due to inflammed tissues pressing on nerves. I would ask the Bolivian doctors if they can get any celiac blood testing done. The standard ttg may not be beyond their labs. can't hurt to ask? Give your diet my guess is you've had a lot of gluten for a long time. If its an issue for you expect a bumpy ride when removing it.  Best of luck!  
  • Upcoming Events