• Join our community!

    Do you have questions about celiac disease or the gluten-free diet?

  • Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

Rate this topic

Recommended Posts

A few funky topics in one :rolleyes:

 

I don't have my follow up visit until next month to discuss any further diagnosing considering I can't help to be gluten-free and feeling wonderful!  But now I'm starting to notice that when I have any bit of dairy besides eggs, I don't seem to have problems with eggs...  I get the severe sharp stomach pains and bloating.  Are my symptoms to other possible food allergies amplified because of a "cleaner diet" transition?  I've always ignored my gi symptoms in the past so I'm wondering if I've always been kind of lactose and just recently noticing or can other post gluten-free reactions to other things exacerbate once you go through process of elimination?  Now I'm nervous I really have to cut out dairy...

 

Last night I was using a massage chair and started getting hives... I have physical/exercise uticaria and was wondering if anyone had something like this and if it would all be linked somehow.  It's not been as bad since I've been off gluten but I still get them sometimes.  Like if I run on the treadmill or run outside I start getting welts in between my thighs, burning itching all over my body.  Or if I get a back massage and the person starts to do the "chopping" massage I get hives as well and if I wash my car with my garden hose the cold water pressure that hits my legs will give me horrible itching, burning, welts :( .

 

Is there any correlation with blood type and celiacs/gluten intolerance?  The "blood type" diet was part of a conversation my co-workers were having and what's interesting is that its suggested that people with blood type 0 should be on more of a "paleo" style diet considering it is the "ancient" blood type, the newer food groups like dairy, grains, etc are difficult for the body to process.  My blood type is 0 and was wondering if there are any celiacs that are as well.  I don't expect this but what some research is saying is that about 50% of type 0 are celiacs.

 

Hope you are all having a wonderful day :lol:

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


I'm not surw about your "research" on blood types.   Please share it.  Type 0 is the most common blood type, it might make sense that its the most common type among people with Celiac.

 

http://www.redcrossblood.org/learn-about-blood/blood-types

 

O positive is the most common blood type. Not all ethnic groups have the same mix of these blood types. Hispanic people, for example, have a relatively high number of O’s, while Asian people have a relatively high number of B’s. The mix of the different blood types in the U.S. population is:

 

 
Caucasians
African American
Hispanic
Asian
O +
37%
47%
53%
39%
O -
8%
4%
4%
1%
A +
33%
24%
29%
27%
A -
7%
2%
2%
0.5%
B +
9%
18%
9%
25%
B -
2%
1%
1%
0.4%
AB +
3%
4%
2%
7%
AB -
1%
0.3%
0.2%
0.1%
 
 
This table didn't copy well.  Look at the link.
 
 
 
Edited by kareng

Share this post


Link to post
Share on other sites

This is a link that goes over Dr. Peter J. Adamo's blood type philosophy...  I don't expect it to work for everyone or be followed but I thought it was interesting! :)  Was curious if anyone followed it and it makes sense that a majority of celiacs are type o because of how common the blood type is, I didn't know that! Its geared more towards weight loss but I feel that the layout it provides makes sense if in fact you have some of these food allergies that it suggests you to avoid. I thought it was neat how it lined up to the fact that I started noticing my trouble with dairy, certain grains and how I need to be active and love being active even though I have been suffering from fatigue. There's also information on other blood types.  http://www.dadamo.com/bloodtype_O.htm

Share this post


Link to post
Share on other sites

.

 

.  I don't expect this but what some research is saying is that about 50% of type 0 are celiacs.

 

 

This is a link that goes over Dr. Peter J. Adamo's blood type philosophy...  I don't expect it to work for everyone or be followed but I thought it was interesting! :)  Was curious if anyone followed it and it makes sense that a majority of celiacs are type o because of how common the blood type is, I didn't know that! Its geared more towards weight loss but I feel that the layout it provides makes sense if in fact you have some of these food allergies that it suggests you to avoid. I thought it was neat how it lined up to the fact that I started noticing my trouble with dairy, certain grains and how I need to be active and love being active even though I have been suffering from fatigue. There's also information on other blood types.  http://www.dadamo.com/bloodtype_O.htm

 

 

So basically, there is no research about blood type and Celiac.  As I remember, this guy has no real medical evidence of most of the "info" in his book.  Its was just a fad diet book.

Share this post


Link to post
Share on other sites

What? Another with the same symptoms I get while exercising? And with a name! Awesome, really.

I have tried many diets to help with my AI conditions, blood type included. I found the Arthritis protocol worked well for me as it eliminated all inflammatory foods - gluten, dairy, nightshades, soy, alcohol and it was very low carb, yes I am an O. I was impressed and moved onto the suggested SWAMI which is personalized, I guess, to me. Well, it brought back many of my symptoms and didn't work for me. I am dairy intolerant too and am having a hard time with it. Just tested cheese (mozarella) again today and my face is somewhat burning now (within 10 minutes of consuming). I would have to meet a A type to try both paleo and the blood type to get me fully convinced. My body is pretty sensitive and I can react pretty quickly to foods so on the blood type diet apples are shunned but I don't get a reaction when I eat them - figs are a superfood but I start burning within 10-15 minutes. I still suggest a food journal and elimination diet over anything else.

Share this post


Link to post
Share on other sites
Ads by Google:


So basically, there is no research about blood type and Celiac.  As I remember, this guy has no real medical evidence of most of the "info" in his book.  Its was just a fad diet book.

Sorry I didn't want to provide misleading information just thought it was interesting.

Share this post


Link to post
Share on other sites

What? Another with the same symptoms I get while exercising? And with a name! Awesome, really.

I have tried many diets to help with my AI conditions, blood type included. I found the Arthritis protocol worked well for me as it eliminated all inflammatory foods - gluten, dairy, nightshades, soy, alcohol and it was very low carb, yes I am an O. I was impressed and moved onto the suggested SWAMI which is personalized, I guess, to me. Well, it brought back many of my symptoms and didn't work for me. I am dairy intolerant too and am having a hard time with it. Just tested cheese (mozarella) again today and my face is somewhat burning now (within 10 minutes of consuming). I would have to meet a A type to try both paleo and the blood type to get me fully convinced. My body is pretty sensitive and I can react pretty quickly to foods so on the blood type diet apples are shunned but I don't get a reaction when I eat them - figs are a superfood but I start burning within 10-15 minutes. I still suggest a food journal and elimination diet over anything else.

Yeah the hives with exercise is weird. My mom has it as well! And I agree on the process of elimination diet. I match that of what that diet says but I understand that it's not backed with medical research so it wouldn't apply to everyone. Sucks with the dairy issue because I love cheese on everything ;(

Share this post


Link to post
Share on other sites

I am very familiar with all the heat/exercise related symptoms - for me this continued to get worse even after my celiac diagnosis -- an awful lot of reading and research led me to Histamine Intolerance (HIT) - you see, when we exercise our bodies produce histamine -- in a healthy body histamine is regulated by enzymes that are created in the mucosal lining of the small intestine -- those with celiac disease have damage to the small intestine -- so it makes it very difficult for some of us to regulate histamine. 

 

Limiting histamine containing and histamine inducing foods has helped me tremendously -- still researching as much as I can about "HIT" as it is not something US doctors are very well versed in.

 

As for the blood type diet -- I am familiar with the principles of this -- as far as I know there is no correlation between blood type and celiac disease -- I have O- and my kids/grands have different blood types.

Share this post


Link to post
Share on other sites

As with any other allergy you could possibly eventually have an anaphylaxic reaction right? I mean how can you tell... I get scared sometimes since it gets triggered so differently.. I don't want to be in a Zumba class and collapse.. I notice when I do I turn bright red and feel like I'm on fire then ill have shortness of breath because of activity induced asthma :|.. Is it getting better for you now? I feel like the more I take time to realize all this the more I feel like my list of problems rise lol.. Is it from some brain fog lifting :P so I just checked out your list and it sounds a lot like me! Do you mainly eat whole foods? I looked at a hit food list and it makes gluten-free in addition to this more restricted. This is tough :( if it helped you with your heat intolerance/exercise reactions I really might have to try.

Share this post


Link to post
Share on other sites

Yep - removing histimane foods has helped quite a bit. I can now be out in the sunshine as long as I don't push it. I can ride my bike or run as long as it is under 65F and walk up to low 70s - for me this is a huge improvement.

I am hopeful that I am finally healing my small intestine and will eventually get many of the foods I have removed back - just not anytime soon.

And yes I carry benedryl, inhaler and Epi pens when I excerise - well everywhere - but especially when I am exercising.

Share this post


Link to post
Share on other sites


Ads by Google:


Just so you know...  Eggs are not dairy.  I have always gotten hives easily.  Not always a known cause.  Dairy does make me sick but I don't have celiac.

Share this post


Link to post
Share on other sites

Trxlm, I relate to your point about the fog lifting and finally "seeing things". I has taken me two full years to get to a point where I see a food causing a reaction. I personally react to all inflammatory foods (except red meat and eggs) so the list is pretty extensive. I can have most things in moderation but find soy, peanuts, gluten and dairy (not so much butter) have to be kept out. I do find the more I eliminate and stick to a very restricted diet the better I feel and do. Tough lifestyle though while facing others because they think I am a whacko.

The burning, itchy rash mostly happens when I exercise outside in cooler weather.

Share this post


Link to post
Share on other sites

Just realized that I didn't answer about whole foods -- I often forget my signature is so long perhaps it is not clear what I actually eat.

 

Meat, Fish, Almonds, Vegies that do not contain or induce histamine production -- limited fruits - mostly apples and pears -- occasional other fruits, but never citrus or bananas.

 

I use almond and coconut flour to make muffins and limit my oil to coconut with a touch of olive oil.

 

Life is much better now that I feel much better -- was very difficult to keep losing foods without much improvement -- now that I'm vertical it is easy to make lots of yummy things with my limited food list.

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      108,938
    • Total Posts
      943,600
  • Member Statistics

    • Total Members
      67,265
    • Most Online
      3,093

    Newest Member
    momaofglutenfree
    Joined
  • Popular Now

  • Topics

  • Posts

    • Hey!  I also recently started a gluten free diet because of non Celiac's gluten sensitivity, and as a college student who can't really eat in the dining hall or participate in late night pizza runs, I totally understand where you're coming from. First things first: you probably aren't as much of a burden on people as you think you are. They most likely understand that this is a big transition period for you and will take time. If you are really worried about it,  just talk to them, explain your concern and try to come up with a plan. I have found that if I don't make a big deal about being gluten free, neither will anyone else. The first time or two matter of factly explain that you cannot eat gluten for medical reasons, after that, if someone offers you something you can't eat, I have found it to be best to just respond with a simple "no thanks!" As far as making sure you don't starve, nut based granola bars (such as kind bars) are your best friend. I always try to have one or two handy, especially on trips! ( I like to have savory ones, like Thai chili flavored, that way it feel more like eating real food than sweet flavored ones!) That way, if there is really nothing you can eat, you always have something. I also scoured celiac and gluten free blogs my first few weeks and figured out what fast food places have Celiac's and NCGS friendly options (Chick-fil-A is a good one, I usually get their fries and request that they fry them in their designated gluten free frier, and a side salad, Wendy's is also good, you can get any of their baked potatoes, chili, or side salad with no croutons, there are a lot of other places too, but there are my favorites) I have found that a lot of times there are things that we can eat places, but because Celiac's and especially NCGS is something that has just started to get more attention, most people, even those working at restaurants just aren't familiar with it, and most restaurants do not have a designated gluten free menu. Your smart phone and Google are also great, I am all the time in a  restaurant googling "does (restaurant's dish) have  gluten?" Usually we can eat salads, and burgers and such without buns, but it is always a good idea to just tell your waiter or the person taking your order something to the effect of " hey! I am unable to eat gluten for medical reasons, which means I can't have things made with wheat, rye , or barley, or anything that touches things made with it, I was hoping to have (dish), Which isn't made with any of these things, but was wondering if you could use clean utensils and preparing area, that way I don't get sick! Thank you!" Usually people are more than happy to help, they just don't understand your situation. As far as you feeling like less of an outcast, this transition period has been a great time for me to realize the importance of hanging out with people and enjoying their company, even if you can't fully participate. No one really cares if they are all eating pizza and you are eating a sandwich you brought on gluten free bread. People are going to express concern because they care about you and don't want you to be hungry or feel left out. Whenever someone says something like " oh will you be able to eat anything here?" Or "oh I'm sorry I'm eating (delicious gluten thing)" just not making a big deal out of it and saying something like "oh I'm good anywhere!" (Because you are with your granola bar! Also you can almost always eat salad) Or "no, you enjoy what you like!" Will make you and them feel better. For a while you will feel a little left out, and that is okay, but I have found that I am so much happier when I go on that pizza run with my friends and a granola bar, even if at first you have to fake it till you make it! Good luck! I know it isn't easy, but it does get better!💙💙
    • Anyone who has ever tried to get an official diagnosis for celiac disease has likely experienced one very unpleasant reality: Having to eat wheat for a couple of weeks to make sure the antibody tests are accurate. Currently celiac diagnosis requires gluten consumption. This can be hard for people who have already given up gluten. View the full article
    • Perhaps automated word pull as JMG suggested. It is irrelevant, but I must comment :  Oddly was entertaining for me today (on a rough day) to read this drivel that included celiac bashing . The celiac dis didn't even hurt, for it was from someone who could not formulate a coherent rational  thought  and shared that publicly. At first I wondered what substance the author was on, then I read further to discover more of this odd piece. The author is all over the place. The piece is also laced with a poorly excuted, back handed attempt to express judgement , anger, and veiled hate in a masked arrogant self subscribed Christian label.  Sure the author  makes a point of shaming the offenders who dropped off the offensive clothes. If the author were perhaps more coherent and a better writer the piece could be borderline offensive or effectively shameful. Alas it is neither.  I however felt sorry  not for the donation facility , the homeless , or the readers, but felt sorry for the author . The author clearly has a lot of self hate, anger, low self esteem, poorly hidden beneath a false facade of uppityness, narcissism, arrogance, while identifying /self labeling as a Christian.  I very rarely get to read a piece where I can play/exercise my brain as lay person couch psychologist . This piece lends itself to that perfectly. I went to the link and read the comments below the article from the real people who express how best to give to those in need, where, and how appropriately. So all was not lost. The right people commented kindly, respectfully, logically, in a helpful guiding way and without hate or shame. So regardless of how admin got this article here - most of us should skip this for the rest of us  bored enough or seeking an odd entertainment piece that does not relate to celiac , let's hope the author gets the help they need as a disgusting gluten-free sandwich has more to offer to society. 😉 Lol  
    • Hi Gemma, Welcome to the very select, exclusive, super secret club of NCGS (or I if you like), where you get all the fun of living the gluten free diet with the added scepticism of half the medical establishment and most of the general public   If you're interested in learning more, there's some good resources collected here:  Feel free to add or just post there if you like.  It's great that the diet is working for you. The emotional side is difficult no doubt. It does get easier, trust me, for you and those around you also. You get better at planning, at coping, at working around it etc. The availability of safe foods and wider knowledge continues to improve year on year.  I've barely been back to Germany, one of my favourite countries, since going gluten-free but take some comfort in the fact that its always harder in a different country with a language barrier as well, but even so there's hope: https://foursquare.com/top-places/berlin/best-places-glutenfree-food https://www.tripadvisor.co.uk/Restaurants-g187323-zfz10992-Berlin.html You maybe need to accept there's a level of preplanning needed now that wasn't there before and if you do that you can still be spontaneous in other ways? Expect some setbacks, at times its ok to cry. Or, er happen to get something in your eye if you're a strapping bloke who should know better  Keep a good supply of nice safe snacks and treats at close hand. In your car/bag/pocket. Eat well before you go out. Have your freezer well stocked with nice safe food and your fridge too. Get to know what easy safe options are available, Are you in the UK? Join Coeliac.org and they'll send you the brilliant guide which will unlock so many safe, cheap foods, also available as an app. And post here, lots of good people with advice and support. Best of luck, Matt  
    • Hi All,  Recently (Nov 2017) I was diagnosed with NCGI by my consultant at hospital, this diagnosis has been after years of testing, colonoscopies, endoscopies and a 2 stone weight loss - it took the weight loss for me to finally be taken seriously by dr's. (I was tested for celiac around a year ago, all clear). I'm looking for advice to help me cope with this diagnosis, albeit I am thrilled that I potentially do not have anything life threatening (still undergoing tests, hosp visits etc.) but on the whole, I'm feeling hopeful that gluten may be the root cause to all my ailments and symptoms.  From diagnosis, I have cut out gluten completely, and apart from the odd slip up or cross contamination incident I have noticed a drastic improvement in my life quality and my time spent inside my bathroom walls has dramatically reduced. (TMI?)  The problem I am currently having is that I feel completely isolated from everyone in my life, I feel that me having to follow this strict diet is putting a burden on loved ones, especially when it comes to travel & eating out. (Was over in Berlin over the weekend, spent a good 5 hours over the weekend crying at being a burden to my BF restricting where we can eat, and also the fact that the majority of places we tried to dine, bar one or two, did not cater to the diet).  I thought I was coping with the diagnosis well, however the crying spell and fed up feeling with it proved I'm not. Does anyone have any good tips they followed and can recommend when they were newly diagnosed?    Xxx
  • Upcoming Events