• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Did I Get Glutenened?
0

2 posts in this topic

Over a year ago I quit gluten after realizing a strong link between gluten and my sickness/fatigue/diarrhea.

The 'D' stopped once I quit and there was a noticable difference, thought I still felt icky because I didn't realize I also had IBS. I accidentally had a trace of gluten after quitting and the reaction was HORRIBLE, it was a week of severe bloating, constipation, insomnia and aching limbs and back.

 

I've been super careful ever since, and though food ordered in public can sometimes make me feel bad, I assumed it couldn't be gluten because I didn't get the immediate pain and drowsy foggy head I used to get.

But I've been wondering if my sensitivity could have reduced with time?

 

On monday night I ordered a pizza with custom toppings and a gluten free base, that night I had really bad insomnia and bloating. The next day I had to 'bolt' to the toilet for the first time in ages, but it's been constipation as well... last night I had  pain down the sides of my gut/waist, for the last four days I've felt really bloated, nauseaus, run down and tired with more trouble sleeping than usual. Could it be that I got glutened on monday?

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Could it be lack of fiber in your diet? When I was diagnosed with IBS over 30 years ago, I was told stress was a big factor in IBS but fiber helped put it right. I had severe symptoms (I have IBS and coeliac disease) since bcoming coeliac, I have found it really difficult to get enough fibre in my diet. Years ago I was told I needed to consume 30 grams of fibre a day in order to prevent an attack and to stay well. As we all know a large proportion of fibre comes from wheat and gluten and Coeliacs have to find other sources of fibre e.g. Beans, corn etc. as you ate a pizza (gluten free) the other day, it may be that you had not had sufficient fibre in your diet that day, as pizzas do not contain much, if any fibre and that could be the cause of your attack and not gluten (?). Obviously, it's all speculative and you need to keep a food journal and look at how much fibre you are eating throughout the day. The way I look at it these days, is just because I have an 'off day' it's not necessarily gluten contamination that has caused it and I step back and look at the bigger picture.

Good luck, and I hope you feel better soon.

P.S. can you eat dairy? I still can't eat dairy and if I accidentally have any, my symptoms are the same as when I have cross-contamination with gluten.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,427
    • Total Posts
      930,500
  • Member Statistics

    • Total Members
      63,850
    • Most Online
      3,093

    Newest Member
    NatalieAll
    Joined
  • Popular Now

  • Topics

  • Posts

    • I believe the talk around this forum is that cheerios are not gluten free enough for people with celiac at this time. I don't know if anything has changed on that and when their lawyer calls me I'll quickly delete this. haha  
    • Could be we generally say get off of dairy for a few months when going gluten free. The part of the intestines that produce the enzymes, and help break down dairy are associated with the tips of the villi, which are the most damaged if not gone in celiacs. THIS is why most of us end up with a lactose intolerance early on. And most can introduce it later after healing. As to her symptoms with it there was a bunch of research about dairy permeated the gut and causing neurological issues in a autism study I was looking at years ago. And there have been other studies about damaged intestines and how the hormones in milk can easier effect ones body.   Personally I also have a huge grudge against dairy on a personal level as it is not natural to suck on a cows tits and drink the stuff, nor your dogs, nor a rabbits......I mean come on even Human Breast milk you would find odd to drink as an adult right? Back in the past dairy was a great way to get calories and fats when there was famine, etc around I mean it is meant to make a calf grow into a 500+lb cow. But on a genetic and hormonal level it is not really for human consumption and now days the whole corporate BS propaganda push and dairy farms shove that oh its healthy stuff down your throat. There are plenty of dairy free options for everything feel free to message me if you need help finding anything I have been dairy free for over a decade.
    • The full celiac panel checks TTG IGA and IGG, DGP IGA and IGG, IGA, EMA as Jmg stated above. Your test included TTG IGA and IGA. If your IGA was low, a low on TTG IGA would be inconclusive. But your IGA is fine. A high on any one test is a positive for celiac and should lead to an endoscopy for confirmation. So I'd get tested for TTG IGG, DGP IGA and IGG and EMA since there are symptoms. Warning I'm not a doc.    
    • I did a gluten challenge for my endoscopy and requested a second blood test after my follow up with the consultant. I never did see those results but my GP said no celiac was indicated:  Which left me gluten free for life, that wasn't an option after the challenge, but with a less satisfactory diagnosis, one by omission rather than the definitive 'you're celiac' one I was expecting. Yes! I have been 'properly' glutened on a couple of occasions but on several more I've detected a change or a reaction based on what could only have been trace amounts. NCGS is as yet poorly understood but patients tend to have more neuro symptoms than digestive. That's definitely been my experience, although it was only after going gluten free that I realised quite how many digestive symptoms I had just been living with as 'normal'. Close friends and family get the full explanation. 'I have an auto immune disease similar to 'coeliac etc.' If they stay awake long enough I'll tell them about the less than perfect testing process I went through or the Columbia Med research and the possibility of a blood test soon.  They can see the difference between me on gluten and off it so they understand its not all in my head* If I'm ordering food in a restauarant or asking questions about food prep etc I will often just self declare as coeliac - people are aware of that and understand those requests are medical rather than fad diet based. I don't have any problem doing this, I'm not going to claim that and then cheat on dessert for instance and to be honest I expect once the research is complete the two conditions may wind up alongside others as different faces of the same coin.   In the meantime I safeguard my health and avoid getting into a detailed conversation about genuine gluten sensitivity versus faux hipster posturing!       *apart from the bits which are in my head  
    • I originally had it on my face and scalp. (22 years ago)  First biopsy with dermatologist came back as folliculitis.  Then when I had a new outbreak on my upper back, she was able to remove a nice clean blister and we got the diagnosis of DH.  She started me on Dapsone (100mg/day) and gluten free diet.  Now I take 25-50 mg/day.  My understanding at the time was that DH was the skin version of Celiac.  Did a lot of research on my own.  I met Dr. Peter Green at a Gluten free Vendors Fair and he said that a diagnosis of DH  IS a diagnosis of Celiac, even if no other symptoms.    So I stay gluten-free  
  • Upcoming Events